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hi, i am newly diagnosed with what we are thinking is uterine cancer

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

definitely cancer they said the aggressive type, they told me that the sample from the D&C had some non cancer cells in it and that concerned them. They are having me rule our the cancer coming from possibly my colon. had a clean colonoscopy 1 1/2 years ago!

the short of it is this all happened yesterday afternoon, my head is spinning, i only feel like crying and am coming here for some support. I had blood tests yesterdays to rule out cancer coming from other areas, they called these markers.

i am going to do a cat scan - pelvic today at 2:30 ET. Monday i meet with the surgeon to review findngs and gynecological oncologist next Friday

how did you guys get it together so fast. how do you even go about finding dr's for second and third opinions. right now i feel so useless and overwhelmed, sad and scared

any advice even reassuring words would be great.

thanks much

nempark
Posts: 666
Joined: Apr 2010

So Sorry, you have been dx with this ugly disease. As horribe and scary the situation may seem, you will manage to move on and take care of yourself. We were all there exactly in your shoes, we know what you are going through. I do not know about second opinions, but the ladies here will guide you through. Please have someone go to your appointments with you and have them take notes because you are not going to register anything now. Pray that God give you the strength and wisdom to face this journey. it's doable as you will see on this forum. best wishes.

janh_in_ontario
Posts: 110
Joined: Sep 2010

Hybrid
We have all been where you are today. Believe it or not - the worse I have found so far is the waiting. Waiting to see a Dr., Waiting for tests, waiting for results, etc. It seems you are being moved quickly through the system and you will find that your head will be spinning for weeks to come. I hope you have a spouse or child or sibling to go through this with you. I don't think I could have made it alone - although there are many on here who have.
I found visits to the Dr were definite times when I needed someone with me - two heads are better than one and many times I would be stuck on one thing the Dr said and would miss the next 3 things - so try to find someone to go with you. Take notes and bring questions with you. When I go in to the Drs office I seem to leave my brain outside - so I would bring questions with me and make sure they were answered before I left.
Used to tick my Dr off but I didn't care.
God bless - keep asking questions - nothing is off limits here. We try to understand everyone's situation is different - but the pain, anxiety and worry is all the same.
Peace and comfort - glad you found us.
Jan H

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

Janh_in_ontario. thank you so much for the kind words. I am too glad I found you. I am lucky in that my husband is out of work (not lucky for the money) but lucky for his time. My best friend is retired so she should be able to help. we should have the first round of tests done for meeting with surgeon on monday. I think i just need to take a break on the worrying as it can't do anything between now and monday. i agree the waiting is tough.

i feel like crying all the time, change that i am crying all the time. i am hoping this is a stage i need to pass through as i need to get positive and strong. Any tips on this. i am not normally one who cries but i feel like i can't talk about it without crying.

ConnieSW's picture
ConnieSW
Posts: 710
Joined: Jun 2012

I think it is a good thing your tears are coming. I believe they are like the steam valve on a pressure cooker and help deal with grief and anxiety. I am not a crier but did sob really hard a couple times ( set off by some inconsequential thing). I think it helped and I have wished many times since that I could just turn it on when I'm feeling stressed. It's ok.

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

I agree with all that has been said. OK to cry - let it out and talk about it with your husband and friends. Ask for help. One suggestion to be positive and strong is to make a conscious decision to do just that. I remember when I decided not to just be a cancer victim. It is very freeing.

Other thoughts - get copies of your records. Ask for a tissue assay (functional profile). I went to a nearby major cancer center for second opinion.

Sounds like your docs are moving fast which is good. Waiting is the worst. Glad that you are deciding that worry is fruitless. It is.

Hugs and best wishes. Stay connected. Mary Ann

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

This must have been a bad week for Uterine Cancer, I read three weeks ago how spotting is abnormal for Menopausal woman, I called for a GYN appt.
Went 7 days ago they did a uterine cell biopsy on first visit and I got a call on my way to work on the 19th that I had Uterine cancer. two hours later I found out it was Endometrioid Adenocarcinoma Grade 2. My first appt. with a cancer Dr. Isn't till the 30th. My emotions are all over the place. I can't
Stay off the Internet googling all about this.

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

i found out my results this past Tuesday. i haven't found out the specifics just yet as i needed to go do a pelvic cat scan as not all the cells were cancerous from the d&c. they have to rule out met. So at least you are in a little better shape. On Tuesday i was a mess. Wed continued but got it together for the pelvic Cta. I have done a bit of blood tests and have a follow up with the Dr on Monday to review these tests to see where we are.
my Dr before I met on Tuesday to find out the results of my biopsy had already called in a gyno oncologist and have an appt next Friday there. is your appt with the Dr a gyno or gyno oncologist. I am sorry they just called you when you were alone on your way to work. That must have been very frightening hearing that alone.

Because so much was happening so fast and I couldn't hold it together, I quickly emailed a friend and said I needed help getting positive as that attitude was currently very south. I am a big bicycle rider and she said she would get a group out on Thanksgiving morning meet at 7:30 am

By Thursday I woke up at 4am and said I can't change anything. My job in this journey is to fight and this is the first time I will need others. I have typically been a very strong willed leader in my family and work. So I called another best friend real early on Thursday and said I have put a team together will you join. She was thrilled with my attitude and we decided to name it Team Sharon we will beat it (not sure even what we are fighting just yet, just know I have to beat it )everyone close I have shared I have asked to join my journey with a role. I now feel supported.
Well thanksgiving came I went on my bike ride, 20 miles and it was great. It took me out of the house and got me an instant high. Now Friday I continue to read posts and I am scared again.. I can't change anything, as much as I want to. I can only fight. I just don't know what i am fighting yet. Looking back at the past 4 days. I needed to feel that way, I needed to cry non stop, I needed to be angry. I don't think I could feel strong today Friday if I hadn't. I am even getting better saying I have cancer without shedding tears.

I can definitely understand how you feel. You call yourself Sisters Three. Since we are starting the same time I feel like you a sister I could use, I really don't have any blood relatives, no siblings to lean on. That is why I needed a team of friends. I do have my husband and kids but don't wan the entire burden on them.

i am too googlng everything. It is driving me crazy. I allowed my self so much of that and after the first few days and on ThanksgivingIi decided to gain control and not let the situation control me. How I felt after my bike ride told me to not let this control me. I am still living and I need to continue as such.
It is scary, I am scared. But i want my team of friends to stay strong so I have to be brave. please when you feel down or awful, or scared, please post to me. I am here

norma2's picture
norma2
Posts: 486
Joined: Aug 2009

The diagnosis and the fear for me was like being thrown in a deep pool of water. At first going under I was over-whelmed. Then kicking I came up to the top and started to float and breathe. It got easier as time went along. Surgery, radiation, chemo... and I am still here 3 years later No Evidence of Disease (NED) so far.
It can be done and your wonderful spirit will carry you through. I found my beleif in God was a great comfort to me through it all. Each of us develops our own way of coping. Thanks for offfering your support to us all. We are here for you too.

debrajo's picture
debrajo
Posts: 815
Joined: Sep 2011

Honey! you are all over the map! Slow down, you don't even know what to fight yet! And stay away from the internet and Dr. Google! It will give you a nervous breakdown and stress you out even more. I have 1a,c poorly differentiated which is early bad agressive stuff. You can't find out everything at once..we all play the waiting game with these cancers. Talk to your dr. get all your reports, make a list of questions, and take someone with you to hear what you miss and give them permission to ask questions for you, and don't forget to breath! Best, debrajp

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

If your riding a bike 20 miles a few days after diagnosis your on the right side of fighting it sounds like. I read a post a few days ago about the waiting and that seems to be the biggest hurdle to learn to deal with. My shock was at first, I can't do this right now, maybe in a few months. My husband who is 58 (I'm 50) is facing surgery the second month of Dec for 6 aneurysms found in his aortic vein. We have been told to get our important stuff in order before his surgery. I was strong and had it all together for him, then got tripped up by this.

I'm huge on finding deals so 6 hours after diagnosis went to buy new jeans, found 6 pair all my size at the GOODWILL almost new condition.For some reason this was comforting and calming. Normal stuff to try to make it a normal day. same with your bike ride.
I'm sisters three because of my two sisters who have always been there for me, we are all three strongly connected but they don't have the same
Experience that all you ladies can share with me. When I found this sight I gave a huge sigh of relief. Real women willing to give energy to those who need it to fight this disease. Thank you,. Hybrid Spirits sounds like we will be in this together with the more experienced ladies.

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

wow, you do have a lot on your shoulders. I will keep your husband in my prayers. That is too funny about Goodwill. that is my daughters favorite store for the same reason. God put those jeans there for you to find to uplift your spirits. Have you worn the new jeans yet?

How was your thanksgiving? I could imagine a little like mine but even worse given the support you are trying to give your husband.

fyi,, i am 54 so in the same age range. What can I do to help you with anything I might have already attended to as i think i might be one step ahead, will know more this coming week.

from your posting title, sounds like you might like to cook as well? what other things make you feel good? i decided to make sure i do one thing a day to keep me positive.

let's keep in contact to make sure our spirits and positive attitude stay afloat.
talk to you later

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

My Friday appt. is with a gyno oncologist. Other than the Uterine biopsy (positive, which gave diagnosis) CA125 test (showed negative, but in 20 % of women with cancer they still show negative) the only other tests were pap which no results they have reported as of yet and other blood and urine all negative. This will be an on going thing as they decide new tests on Friday. I was told to expect colonoscopy and varies CAT/ Ultrasound tests. I'm guessing in another three weeks we may know how far it's gone plus new updates on the stage. Of course wishing it won't go farther than stage 2.

You have me wanting to buy a bike. I wonder if Goodwill has one????????

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

How funny. What state do you live in. my best guess for a cheap bike is craigs list and believe it or not our dump here has them. I started leading bike rides this summer to share my passion and get folks out no matter what they had. i have one guy who got his bike at the dump and would ride in his jeans. So maybe. I told my husband that i will now need to take my passion for biking to cancer patients so the rides can be suited for them. I hope I get to do that.
The key is to find one thing for yourself every day. i just got back from a walk through our town walking trail through the woods, it is 43 and sunny a little windy here in Ct. Do you like to walk? My friend read an article this past week on the benefits of being out doors in the woods on getting rid of bad cancer cells, must be one of the mind over matters. We both have to stay positive as that will only work for us. what other things do you like to do?

how is your husband feeling?

(oh by the way it may sound like i have it together, i do and i don't. I go into a slump but try to quickly refocus myself and repeat, feeling sorry will not make this better. I can feel that both of us will be strong and get through this together. God brought us together as our journey has started about the same time.

any great plans today?

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

I live in North Carolina, there are really not a lot of places to ride bikes close to the house but I love to ride. About 12 years ago I had a truck and a matching MTN bike that I loved and rode often, I haven't had either of those for years and miss them.

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

Come out and play! I need your gusto!!!!!!!!

SettledSue's picture
SettledSue
Posts: 27
Joined: May 2012

I still Google my disease frequently and have been since I was diagnosed in March. I carefully look at the dates of the articles though, since treatments have changed over the years. I give the most weight to the most recent articles.

Sue

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

I have started googling more on diet changes I can incorporate into my life. Doing this while I wait and wait for tests to come and go.

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

Both of us have a stressful Friday to deal with. Thanks for all your encouragement over the last week. So, how are you???????

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

hybridspirits, Are you okay, I know you had an appt. on Monday for findings.
best Wishes for your day.

Lisa

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

i have had my appt with my gyno oncologist. wonderful dr. spent the last week checking every organ to make sure it didn't come from there. Past everything okay, blood markers okay, colonoscopy ok, pelvic cat scan oaky. today had abdominal cat/lung cat and i think i have covered all body parts.
i have surgery (full hyster) next wed, freaking out a bit. will get the results from abdominal cat scan and if okay they are getting closer to feeling that it came from the uterus. As long as no major surprises on Monday from cat surgery stays as planed
If anyone has any great advice re the hysterectomy that would be great. The plan is to use the Divinci robot.

Sisters three, how are you doing? i know i am basically going crazy in circles typically organized and not so much now. I did buy a juicer seeing you were juicing, can you share some of what you are juicing. i did get the anti cancer book and
foods to fight cancer books.

How is your husband doing? does he have his surgery soon. Both of you are in my thoughts.

Ro10's picture
Ro10
Posts: 1574
Joined: Jan 2009

Good luck with your surgery. I had the DaVinci surgery. I went home the day after surgery. There was minimal pain. I gradually increased my walking after I got home, and recovered quickly. Waiting for the pathology report was the worse part. Unfortunatelly I had UPSC stage 3-C so the doctor talked about the need for chemo the day after surgery. I hope you have good resuts from you CAT scan. In peace and caring.

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

It sounds to me like you have a good team on your side! Great news of all the organs being cleared!!!! Things are a little slower on my side. Not really the docs fault. My husbands surgery is scheduled for the 17th. Scary stuff but he has an exceptional heart surgeon. He will be in the hospital for aprox
5 to 7 days. my surgery is scheduled for Jan 7th, that is if he is well enough for me to go through with it. My house is hilarious with the two of us pushing the other one in front of the line for this and that.

Anyway, my ct scan is next Friday. I have met my new GYN/ONC and she seems great. She will look at the CT scan and I meet with her on the 28th
For the results. She says she will also do the Di Vinci that is if my Uterus will fit through my vagina (this is a totally bazaar conversation!) If it is too large due to tumors she will open me up because she said some doctors would slice it up and pull it through but she won't due to possibly spreading cancer cells inside my body. That sounds reasonable. I truly believe your surgery is going to go well, and you will be on your feet within 24 hours like RO said.

I will send you what I have been juicing in the morning. I'm really tired right now.

I hope all of you sleep well tonight!!!!!!

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

Green Juice trying to drink 16 ounces a day (this is hard, it takes a lot of veg's to drink that much) all organic if I can
Kale
celery
3 diff lettuces
A small amount of cabbage
Green pepper
Broccoli

Now I will also add for another 8 to 16 ounces if I have the time and the extra veg's (a v-8 tasting juice)
Tomatoes
Small amount of beets
Celery
Kale

Here is where you see controversy
I also once a day drink carrot/apple juice
There is a bunch of info about sugar feeding cancer, all I'm trying to do here is get some nutrition that I haven't been used to getting.
I want to keep healthy and not drop weight for my surgery. The Doc was very clear to me, DO NOT go home and go to extremes on any
Cancer diet before surgery. Your health is good now and I want it to stay that way .....don't make my job hard by getting sick through some
Weird dietary changes!!!!!! So with that being said, I am trying to just add nutrition to my body. I have also started some supplements. some the ladies here have suggested, which I looked up and are on track with a lot of the research, some I have gotten on my own.

COQ10. Which I used to take years ago but stopped for some stupid reason
A Turmeric & Bromelain mix capsule At night
a Liquid Tumero Active w black pepper at night I just found this the other day at my health food store
Once a day mixed with water vitamineral Green version 5.2 (this is a greens supplement that tastes like sweet grass) kinda yucky

I then eat a balanced diet with more veg's, fruits and lean meat. Ta da, nothing crazy. After surgery and after finding out EVERYTHING I'm
fighting then we will see.

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

thanks for the recipe. i will take the juicer out of the box and give it a whirl. You are lucky you are in North Carolina as maybe it is warmer than here in CT. I am praying for your husband, but am glad he has a great dr. That really matters.
interesting question on the uterus with a tumor. They haven't said i have a tumor so maybe it will fit. They haven't discussed stage or anything because they needed to make sure it wasn't coming from anywhere's else. the cancer cells didn't start looking like a uterus. I have had every cat scan possible = pelvic, Abdomen, chest and a colonoscopy. I know the rest of my body is clear which is nice. I can tell you when you have these tests you start to just loose weight from the fasting! My biggest fear is having to go through chemo. Guess we will cross that bridge when they tell me what they see next Wed.
i have also been trying to make changes in my life for the better. started eating much better and going after the organic produce. Guess as a mom of two and primary wage earner I mistakenly put myself last. Now I am learning to put myself closer to the top.

the last two days to keep myself focused I have been cleaning my kitchen, the spice cabinet, the food pantry, and now the refrigerator/freezer. Wild hugh, i did this before I gave birth twice. Maybe it has something to do with the hysterectomy.

tomorrow it might be in the upper 50's here so I am hoping to do something fun outside, how about you? doing anything special for yourself?

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

It's great your getting your house in order, with surgery in two days you will be taking it easy for a while. Now that the house is clean less worries on your end. I agree with always putting myself at the bottom. That is something I will work on to make sure I get the same consideration as others in my life. I think the biggest thing other than eating better is trying to get the exercise planned in to everyday. That can be a tough one. No more just weekend walking or yard work, I have to go for the hour a day route. if I don't hear back from you HYBRIDSPIRITS I'm praying your surgery goes well and you have a quick recovery!
Take care!

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

Thanks for the kind words tomorrow we have the hysterectomy. hope Mr DeVinci gets a good night sleep! I need him rested as we have a big day together. Sisters three i can't believe my hardest chore has been packing my bag. You would think. off to work for a 1/2 day and one last ultrasound they want to do. So far every cat scan and xray and colonoscopy has been negative so let's all pray that my body can get it's act in order and give the information they need to beat this. tomorrow is 12/12/12 the last time time will see it all equal. hope that means good luck.

exercise and treating ourselves. yes that is hard. But you are right we need to make that commitment to ourselves what kind of exercise you like to do?

the next time you will hear from me will be post op! take care and do something nice for yourself, you deserve it!

janh_in_ontario
Posts: 110
Joined: Sep 2010

Sending prayers and hugs your way today. I pray God directs the hands of Mr. DeVinci and the brain of the surgeon. I pray for peace and comfort for your family as they sit worrying about you. I pray for a very quick recovery for you and some good news at the end of the day.
Hugs
JanH

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

JanH
thanks so much for the nice words and thoughts

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

JanH
thanks so much for the nice words and thoughts

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

JanH
thanks so much for the nice words and thoughts

txtrisha55's picture
txtrisha55
Posts: 461
Joined: Apr 2011

sorry

txtrisha55's picture
txtrisha55
Posts: 461
Joined: Apr 2011

sorry

txtrisha55's picture
txtrisha55
Posts: 461
Joined: Apr 2011

Praying for a good day for surgery and good results. trish

plantlady2012
Posts: 49
Joined: Dec 2012

I can't wait to hear you are home again from your surgery and doing well, hybridspirits!

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

I'm hoping you have had a successful surgery and your clean of all ugly cells! When you feel like it give us all an update, I'm sure you will be riding that bike in 6 weeks!!!!!

We are all in a tizzy here, getting ready for hubby's surgery Monday am and FINALLY get a CT scan tomorrow am. It seems like forever I have known I had cancer but not how far it has gone. Of course the scan is on a Friday so that means maybe I will hear something by Tuesday. Here's to hoping I have photogenic insides!!!!!!

Everyone sleep well!!!!!!!!

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

thanks for all the prayers and kind words. Surgery went well. Had the robotic surgery and I feel blessed for that. I was home in less than 12 hrs after the surgery was done. (5PM on Wed and discharged at 3PM on Thursday) awesome. Everyone was right about the robotic. I just came back from a 1 1/2 hr walk outside (resting along the way of course). each day you are so much better. I should have my final pathology report next Monday/Tuesday. So as we are all learning waiting is a now a new skill I have acquired.

( I will give one advice on the surgery, bring your own gas-x or something similar as the hospital might give you something very weak like they did for me. Once I got the gas-x at home it was day and night with gas and my entire disposition)

I have started reading the anti cancer book, a definite book to purchase and read.

Sisters three, my thoughts and prayers are with you for your Husband's surgery on Monday. I will check in early next week to see how you made out with the cat scan and how your husband is doing. Till then keep doing nice things for yourself

talk to all later, and guys without the support I have had from this group I wouldn't have such a positive attitude towards beating this. Thanks so much all!

ConnieSW's picture
ConnieSW
Posts: 710
Joined: Jun 2012

So glad it went well and you are feeling good. I had the same experience last March. Remember, it was still a major assault on your body and you need to take good care of it as it heals. Don't overdo.

Connie, retired but still a nurse

plantlady2012
Posts: 49
Joined: Dec 2012

So glad to hear you are doing so well after the surgery! And isn't the Anti-Cancer book wonderful? There are lots of other really good books out there, too! I will post about some of the ones I have read when I have more time.

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

Very happy to hear that you are doing well and healing fast. We both will be on pins and needles over the next few days waiting on news. I am here to say what ever it is we will deal with it!!!! The husband and I have been trying to cram a months worth of work into one weekend. We have laughed a lot which is good. Here is to hoping every lady out there who reads this finds something to laugh at tonight also!!!!!!!

Talk with you Tuesday!!!!!!

Lisa

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

My husband just came through his triple aortic anurysms surgery with flying colors!!!!!! When the doctor picks you out of the crowd and bursts into a grin you know things are GREAT!

THANK YOU GOD!!!!!

What an amazing Christmas this wil be!!!!!

Hybridspirits's picture
Hybridspirits
Posts: 189
Joined: Nov 2012

thank you so much for the update. I am soooo happy for you and your husband. Yes it will be a wonderful Christmas for the two of you. Please send best wishes to your husband

janh_in_ontario
Posts: 110
Joined: Sep 2010

Hallelujah! That is amazing news! Now let's get you on the same page of good news and it will be fantabulous!
Enjoy the holidays
JanH

ConnieSW's picture
ConnieSW
Posts: 710
Joined: Jun 2012

One down, one to go. So glad it went well.

Double Whammy's picture
Double Whammy
Posts: 2449
Joined: Jun 2010

Both Hybridspirits and Lisa's husband have completed successful surgeries. Way to go! Here's hoping for a good path report this week and uneventful recoveries for both.

Suzanne

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