Nov 20, 2012 - 10:38 pm
Having something positive to say is so rare for me that I thought i'd share. As an update I'm SQT1 N2C and finished my third round of Induction Chemo (may you never have to go through it). I went to see my ENT today for him to take a look before we begin Chemo/Rads. After scoping me out and a thorough exam he could find no visible evidence of my tumor or any lymph node that was impaired. He told me that this was the absolute best result he could have envisioned and that it was important because reaction to the Induction is a strong indicator of how I will react to the rest of the treatment.
I caught him on a good day as he was almost through and spent a good deal of time with me discussing my disease. Now understand, he's primarily a cutter but a really bright guy and really up on this (HPV+) disease. He told me about some studies going in in Pittsburg (seems the mecca for robotic throat surgery and a top H&N program) that is trying to find out what the proper (read, effective) amount of RADs are. He said it was looking favorable for 25 but the data is still not conclusive. I'm scheduled for 35 and I pressed him on his opinion on shortening it down. He told me that if it was him that was going through it he wouldn't risk 25 based on the data that is now available but he would not go over 30 because, his words "those last five are a b#tch". He also told me about one of his patients that had Induction and Chemo (Erbitux) and refused RADs. He said he's cured (been five years) but that was like putting a loaded gun to your head and spinning the chamber. I'm not that brave but I think I am going to fight for less RADs.
Have a safe Thanksgiving everyone and remember, your friends and your family are all you really have.