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Tomorrow we ring the bell

luvofmylif
Posts: 344
Joined: Sep 2012

Well, tomorrow we ring the bell. We met with the oncologist today and the last Cisplatin was cancelled due to hearing issues and tinnitus. He received 2 out of 3 doses and if he received a third treatment it would be a decreased dose and dr explained that the decreased dose has not been shown to make much difference. He said that the 2 doses he received acheived the mark that has been shown to have a positive effect so that's the decision.

So, Thanksgiving will start a little early as we ring the bell at 930 tomorrow morning.

God bless each and everyone of you brave and kind people on this site. You inspire me and give me courage and I pass your advice and wisdom to John everyday. He too is grateful for you all because I relay information and encouragement to him from you all.

God bless you all on this path and on Thanksgving this year you will be in my thoughts and prayers.

Joan

ditto1
Posts: 630
Joined: Mar 2012

and great job Joan helping him get there. I to only had 2 cisplatin vs 3 and so far NED on last CT scan, still waiting on PET in Dec. I well remember my last RAD and ringing the bell, dont tell anyone but tears ran down my cheeks as I exited the room for the last time. My wife daughter and grandbaby awaited me. The grandbaby and I rang the bell. So God bless both of you and its on to recovery and ultimately NED.

Skiffin16's picture
Skiffin16
Posts: 8071
Joined: Sep 2009

I bet John is going to hear that bell, loud and clear...

Happy Thanksgiving Joan...

Best,
John

luvofmylif
Posts: 344
Joined: Sep 2012

Thanks so much guys. And, yes John will have no problem with his hearing tomorrow when he rings the bell.

Happy day.

Joan

Happy Thanksgiving to all

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

I am so excited for you. I know it has been a long hard road and you have done so well. What a great caregiver you have been.

CivilMatt's picture
CivilMatt
Posts: 2925
Joined: May 2012

Joan and John,

Congratulations on stepping up to the challenge (they do not give you much choice). It is time to leave the treatment bus and move on to the next phase and believe it or not it is easier. So after tomorrow, kick off your shoes, rest, relax and heal (and I’ll be ringing my bell for you too).

Best,

Matt

phrannie51's picture
phrannie51
Posts: 3685
Joined: Mar 2012

What a day it will be!! I am so happy for you two...I remember well, what a relief it was to be over that part of treatment...not having to get up and get out every single day to a "job" I really didn't like at all.

Now it's rest and healing time...and time to dance around the kitchen!!

p

cureitall66's picture
cureitall66
Posts: 860
Joined: Aug 2012

So glad your now finished! No treatment for Thanksgiving and Friday for us .....we make those days up Monday and Tuesday of the next week. Then we are done....as far as we know. Dr will talk to him on Monday and let him know how he's progressed. Keeping our fingers crossed that we don't have to add any more tx days or weeks.

The bus ride goes faster than we think, at least as caregivers it feels that way.

Hope you have a wonderful Thanksgiving! We all must be thankful for each day we are given...

Cris

luvofmylif
Posts: 344
Joined: Sep 2012

Chris, so excited you are almost there. Hope you guys have a good Thanksgiving as well. Hoping your treatment ends next Tuesday. Keep us posted

Joan

Hard12Find
Posts: 203
Joined: Sep 2012

Congratulations....I'll be ringing something in celebration with you, maybe just the ringing in my ears....Welcome to the recovery train.....All Aboard!!!
Jim

Mikemetz's picture
Mikemetz
Posts: 342
Joined: Nov 2011

This is one of the biggest hurdles in the HNC treatment progression, so congrats on not having to do the third Cisplatin infusion. And great timing--right before Thanksgiving. I hope this is the first sign of getting fully on the road to recovery.

Lots of very positive news on the HNC site lately--here's hoping it stays that way!

Mike

VanessaSLO's picture
VanessaSLO
Posts: 280
Joined: Jul 2012

Now you can begin to heal, recover, rest and enjoy with the family. It's great when it is over and you know you wont hurt your body more... So I wish you a good and fast recovery.

hwt's picture
hwt
Posts: 1906
Joined: Jun 2012

John & Joan,
I rang the same bells at BJW and I also had my last Cisplatin cancelled because they felt they had given me all they could safely give. Both my CAT w/contrast and PET were NED. Blessings to you and your family on this beautiful Thanksgiving Day.

Candi

luvofmylif
Posts: 344
Joined: Sep 2012

Thank you Candi. I hope you have a happy and peaceful day. I was worried about you because I hadnt' seen you on this site for awhile. Good to see you on here.

Happy turkey day to you as well

Joan

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

So happy you were able to ring the bell! I actually was given a bell from my husband just like the one at the rad onc office. He mounted it on the wall and also put up a plaque. It's called Billies Bell and it's to rung on all special occasions! I'm heading out now to ring it for you. Enjoy this Thanksgiving as best you can and know that the healing will happen, brighter days are ahead.
Billie

luvofmylif
Posts: 344
Joined: Sep 2012

God love you for ringing the bell for us. That is one of the sweetest things we have had done for us. Today when we were with family it was so nice but one thing bothered me. Alot of them kept saying "arent' you glad it's over". I know they mean well but I just think to myself ' it's never gonna be over'. I don't think I will ever have a completely peaceful moment again. They just don't understand because they haven't had to live through this ordeal.

My heart is linked to all of you on this site. There I go crying again....

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

Others just don't understand. One of my favorites is when I'm telling someone that I have no sense of taste and they reply with "oh yes, one time I had this really bad cold and I couldn't taste anything...it was the worst! Don't worry, it'll come back"
I must admit also that as positive as I try to be, I feel too that this will never truly be over. NED is amazing and such a relief to hear but as time passes between scans the "what ifs" creep back in to my mind.
You are right too when you say that our CSN family are the ones who really get us and know what we are dealing with.
By the way, the bell rang beautifully when I rang it in your honor.
Take care,
Billie

Mikemetz's picture
Mikemetz
Posts: 342
Joined: Nov 2011

I remember being driven home by my wife from the hospital after my last rads dose and thinking to myself that it would be nice to mark that event in some way. Of course, I couldn't eat real food (toasting with a Boost before it went down my PEG wasn't all that appealing) and could not drink anything but a few sips of water at a time. So, I went home and took a long nap and relished the thought of not having to go for another treatment the next day. Ringing a bell for myself, and all others who had made it that far would have been a nice thing to do. So, I'm going to get a small bell and ring it whenever someone posts that they've finished rads and/or chemo.

Billie, even if I stay NED the rest of my life, what I am learning is that HNC will always be a part of my life--forever. On the negative side of that are the scars and side effects of the rads and chemo that show no sign of going away for good. On the positive side of that experience is being the recipient of so much love and support, meeting new friends on this site, and knowing that I was strong enough to fight off the beast--for now. HNC never goes out of your life--even after NED. The key is knowing how to deal with the new-normal it has brought to your life.

Mike

vetorama's picture
vetorama
Posts: 16
Joined: Sep 2005

Congratulations and a definate Happy Thanksgiving:)

luvofmylif
Posts: 344
Joined: Sep 2012

Congrats vetorama. Hope you are doing ok. Let us know

Joan

luv4lacrosse's picture
luv4lacrosse
Posts: 1387
Joined: Jul 2010

Love that your treatment is finally over. I ring out for the second time at the end of January.

Best!!

Mike

Grandmax4's picture
Grandmax4
Posts: 585
Joined: Dec 2011

hope he's doing well

luvofmylif
Posts: 344
Joined: Sep 2012

Thanks everyone for well wishes. And Mike, hang in there ...you getting close.

JOan

luvofmylif
Posts: 344
Joined: Sep 2012

Thanks everyone for well wishes. And Mike, hang in there ...you getting close.

JOan

luvofmylif
Posts: 344
Joined: Sep 2012

Thanks everyone for well wishes. And Mike, hang in there ...you getting close.

JOan

hwt's picture
hwt
Posts: 1906
Joined: Jun 2012

Recent visits to the site have been brief but I keep each of you in my thoughts and prayers. My Mom had successful surgery in early Oct. but while in the Care Center fell and broke her wrist. Since it was a compound fracture it required surgery. She then developed double pneumonia and has been hospitalized going on 2 weeks. She is 87 and a fighter. Large family all here for support.

Candi

luvofmylif
Posts: 344
Joined: Sep 2012

Sorry about your mother. I know what it feels like to have an ill mother. It is so painful. I will be thinking and praying for her and you and family. I hope she makes it through all this. My mom was also a fighter and tough...you have to be to make it to 87.

Joan

hwt's picture
hwt
Posts: 1906
Joined: Jun 2012

Thanks and God Bless you and yours.

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