Nov 20, 2012 - 5:07 pm
Hi and hope you are all well and ready to celebrate Thanksgiving. I am just about half way through my second battle and I must say I am having a very hard time coping with the whole "treatable but not cureable" diagnosis. My first scan at 6 weeks revealed that the tumors in my lung had not shrunk, but have changed in appearance indicating the druge are having a positive effect. The tumors in my Mediastynum must still be too small to show up on a CT scan, as they only were revealed on a PET Scan. I am doing Erbitux evry week, and Carboplatin and a 4 day infusion of 5FU every three weeks. The doc's all tell me that the worse the side effects are, the better the drugs are working to kill my cancer. Don't know if it is true or BS, but since I look like a blistered troll now, head to toe acne, mouth sores, finger and toe nail infections ETC. I will assume it is working.
I know the "treatable" thing could give me many years of having cancer, but in remission, or it could take me down quick. I was so close to my two year NED from the first battle, and was wanting to know if any of you have or are battling severe depression, lack of interest in your career, insecurity with your marriage/spouse ETC. I am going to see a Psychiatrist with a specialty on Oncology next week to get some help.
Looking for any advice from anyone who is "in my shoes" regarding the deperssion, or who has a simillar diagnosis.
Do not let my "glass is half empty" attitude deter from everything we still need to be thankfull for.
I will pray for all of you on Thanksgiving.
have a good one.