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Head and neck cancer now multiple myeloma

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

My husband is being treated for Stage IV oropharyngeal cancer. On October 26th he became very ill and could not eat or drink anything. At first they thought he had a blockage in his intestines. It ended up being hypercalcemia. They told us at first it was from his head and neck cancer. After more blood work and a decline in health they have now determined he also has multiple myeloma. We are now in a whirlwind of activity since he is already completing radiation and was supposed to have chemo, but has been too sick. Now we are told we have to see a hematology oncologist and will most likely have another form of chemo. I am so stressed out.

jjranchguy
Posts: 9
Joined: Nov 2012

I have been through Multiple Myeloma 2 years ago. The chemo that my Hematologist put me on was Valcade, Revilimid and dexamethizone. I was on chemo, which was mild for appx. 3 months. Then I was scheduled for a Stem cell transplant. They use my own stem cells. Then they gave me a chemo that shut my bone marrow down (this chemo was strong) and gave me my stem cells back after a day or two. i was released by the transplant dr. after 12 days and have not scene him after my 100 day check-up.
Make sure that the dr. are giving med for nausea, because that was the one thing that my dr. forgot. I got meds after I was sick in the clinic.
I know all the info that you read is doom and gloom, but a positive attitude will help.

karebare
Posts: 3
Joined: Sep 2011

You are so right about the whirlwind of activity - and there is so much doom and gloom.
Keep researching and talking to people - find a multiple mmyeloma support group close to
you. Talk with the people who are the 10 - 15 - 20 year survivors to keep up your spirits. It is tough to do but stay positive - they are making strides with the chemo
for MM - hopefully you have an onocologist you trust (and check the internet for new
therapies). Put one foot in front of the other and take a breath - then do it again.
Stay strong!

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

Thank you for your comments. Unfortunately we found out David has Primary Plasma Cell Leukemia. Very rare 1:1,000,000 chance of getting it. No cure and very little success treating it for more than a few months. I am devastated. David is tired and sick but wants to fight.

RusselRagrats
Posts: 4
Joined: Jun 2014

 When myeloma cells accumulate in the bones, they can crowd out normal cells and invade bone tissue, damaging and weakening bones.

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