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Roller Coaster Ride

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

One thing seems for certain: when you're at the top of a natural high over something, you're about to go low again! I spent last weekend resting and getting my strength back from the surgery the week the before when some sneaky little punk nailed me in the back of the head with something new!

About an hour after I got up Tuesday morning, the vomiting started, soon followed by the aches, fever and (of course) diarrhea. Another trip to the ER to confirm what I already knew: I have the flu. I haven't had the freaking flu since I got out of the Air Force and stopped getting annual flu shots, now after 27 years it's back! I've been drinking a lot water and Gatorade and after only a couple of hours it would all take the express elevator right back up. That part of it has stopped. I hope. Just wish the diarrhea would, I haven't been able to get any good sleep the last two night because of having to get up and rush to the bathroom just about every time that I'd finally start to get to REM sleep. My nurse has been coming in every day to do IV fluid replacement and Zofran as well as my magnesium infusions The on call nurse will be doing that over the weekend.

There is one nice thing: our dear Miss Kitty made me a beautiful afghan last month and I've got it wrapped around my shoulders or on my lap just about the whole time. I'll have to have someone take a pic. Just wrapping it around me helps make me feel better.

God Bless!

Ray/Doc

jen2012
Posts: 1255
Joined: Aug 2012

Ugh! Sorry doc try to get some rest. Feel better soon!

Chelsea71
Posts: 1170
Joined: Sep 2012

Sorry you're feeling under the weather. Boy, you've had a rough time of it lately. Hoping your luck turns around soon.

Feel better soon.

Chelsea

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

oh my! you certainly have had a hard time lately. do get better! that is so nice of her to make that for you. she is a very special lady. know that i hope you get over this real soon.
hugs
judy

cinreag
Posts: 154
Joined: Oct 2012

You and me both Doc. I came down with the flu Tuesday evening.
Didnt think I was ever going to quit shivering.
Im over it now.
Hope you get over it soon!!!

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

Doc I know what you mean...sounds like me.....one step forward and two back. They stink because we know we have to fight something else then get better then treatment and back to ground zero. Pray you get better real soon. Jeff

rogina2336's picture
rogina2336
Posts: 188
Joined: Apr 2011

Yuck!!! The flu really sucks worst for all riding the cancer train. I pray for a speedy recovery for all. Kim

steved
Posts: 836
Joined: Apr 2004

Must get my flu jab- is sure something I could do without right now. It is making how when the body is busy healing from one thing it is vulnerable to get hit with another thing. Rest and recoup.

You are due a runof good luck surely!

Steve

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Ok, still getting over the flu and then my port gets infected! I was admitted to the hospital yesterday and still waiting to hear from the surgeon to see if they're going to remove the port and put in a new one.

I have to admit that lately I've been feeling betrayed by my body. No matter how hard I fight, something else seems to pop up to knock me back down again. It's like the old carcass is giving up on me and I just don't know what to do about it.

Ok, that's enough of the pity party, now let's have a pita party! I've got hummus and guacamole, who can fry the pita wedges?

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 474
Joined: May 2012

Enough for you! You have had enough hospital time. I know it must be frustrating for you. I just hope you get the port fixed and get out of the hospital and start feeling better to get that next chemo dose.
Sandy :)

JayhawkDan's picture
JayhawkDan
Posts: 206
Joined: Apr 2012

You deserve a break, Doc. Hopefully you'll get all this crap behind you (no pun intended) and you can enjoy the Holidays.

Dan

danker
Posts: 772
Joined: Apr 2012

Hope you get over the flu soon. This too can be beat. Good luck!

cinreag
Posts: 154
Joined: Oct 2012

Surgery, flu, port infected.....
Sure hope your luck(?) unluck(?) changes soon. I believe you could be allowed a pity party.

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Well, they took out my port Sunday morning so now I'll have to wait until the infection is all cleared up before getting a new one. I know that I'll be in hospital until Tuesday at the earliest, so I'm just going to settle in and try to make the best of things. I'll talk to my onc tomorrow and see if I can still get chemo peripherally until the new port is installed. Has anyone had chemo administered into their arm instead of a port? If so, what might I expect from getting treatment that way?

I would like to say thank you so deeply for your thoughts, prayers and well wishes. They really do matter a lot.

God Bless,

Ray/Doc

steved
Posts: 836
Joined: Apr 2004

Ive never had a port so have have had many cycles of chemo through lines they just pop into my hand for the treatment. Is fine except struggled with oxaliplatin which left my arm incredibly sensitive and painful for several days. Mainly had avastin and 5fu though this way with no problems.

Do you what chemo is planned?

Steve

Lovekitties's picture
Lovekitties
Posts: 2998
Joined: Jan 2010

Sure hope that the infection is easily resolved, new port put in, and get you sprung from the hospital soonest.

I know you are anxious to continue the chemo and hope that IV is a possibility even with the infection. If not on regular schedule perhaps a day or two off chedule.

While there, rest up, eat well and try to get your strenght back from all you have endured recently.

Prayers in bunches for your speedy recovery.

Hugs,

Marie who loves kitties

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Today I was told that I have an infection in my bowel and that there's really no treatment for it but to let it get flushed out of the body on it's own. I'm getting almost constant antibiotic IVs along with potassium, magnesium and saline. A PICC line was installed for chemo until a new port can get put in, hopefully that won't take too long to happen. I did ask, because all the antibiotics are going to kill the good bugs in the gut, could we start some probiotics and I'm going to have my family try to locate some kafir at a grocery store.

I've also got a swelling in a most particularly delicate spot, but the doc says with all of the drugs I'm on that should take care of it.

dmj101's picture
dmj101
Posts: 527
Joined: Nov 2011

WOW.... we know what your holiday wish is this year.
I will keep you in my prayers Doc..
GET BETTER PLEASE!!!

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 474
Joined: May 2012

Wrong time and wrong place for that swelling, lol. Working at a hospital we see that all the time, hopefully it will go down soon. Make sure you have it all elevated with wash cloths under it and propped up. Ouch!
Sandy :)

thingy45's picture
thingy45
Posts: 588
Joined: Apr 2011

Dear Doc, every time I lurk and come on you get yourself in trouble.
I will personally talk to the Man upstairs, this is way to much all just before the Hollidays, enough of that. Get better soon. You have been and will be in my prayers
and thoughts, Hugs, Marjan

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

aw shucks, Marjan, what can I say but admit that I'm a chronic problem child.

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Hmmmm ... never thought of using a washcloth to ... u-hum ... get it up. Thanks for the tip, I'l give it a shot.

Chelsea71
Posts: 1170
Joined: Sep 2012

I think it's really unfair that you're having to go through all these problems. Looking forward to the post where you're telling us that your out of the hospital and feeling like your old self. Get well soon.

Chelsea

cinreag
Posts: 154
Joined: Oct 2012

So sorry Doc.....

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Got some news from the onc today that's going to give me even more to be thankful for! I'm probably going to be going home today, if my potassium level is high enough (it's a tad low, but not too far off.) He's got me scheduled for chemo tomorrow using the picc and my insurance has approved us to start using Zaltrap but not with the Vectibix. The really great thing about that is my skin will start to repair and I'll get my fingers back!

Lovekitties's picture
Lovekitties
Posts: 2998
Joined: Jan 2010

That is just great news Doc, not only the going home part but also about being able to change the Zaltrap.

I hope and pray that this change is the one which will bring you great results.

Hugs,

Marie who loves kitties

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 474
Joined: May 2012

What chemo were you on Vectbex? Why are they changing it? Was it not working?
Sandy:)

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

I guess the FDA has not approved Zaltrap to be used with Vectibix and we want to see if I get better results with the new drug. My CEA has been on the rise and the tumors in the liver are marginally larger than they were in August. Gotta confess, I'm not going to miss the sore and bloody fingers and feet, the sand paper skin and all the other side effects of Vectibix. Now I wish we could replace the iranetecan with something that will let my hair grow out again.

smokeyjoe
Posts: 1428
Joined: Feb 2011

Sheesh.....you just can't seem to catch a break!!! Too bad these infections don't get right into those cancer cells and kill them off....

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