Nov 16, 2012 - 3:34 am
I don't have to make the decision, the doctor stopped the chemo. I went to the pharmacy and the Pharmacist looked at the rash on my face and neck, told him it was everywhere, what should I buy? He made me call my doctor, said it was an allergic reaction to the chemo. The doctor told me to stop the chemo, take Benedryl for the next 2 days and I will see him on Monday. He said if my breathing gets difficult to call him and go to the ER.
I have been on Afinitor and Exemestane for 5 weeks now and have sores that look like chicken pox everywhere. Start out with a red blister like pimple thing, then they crust over like a chicken pox and itch like crazy. Showed the doctor when I just had a few on my face and he said it is from the chemo. Now they are covering my back, chest and some on my stomach and legs and a few on my scalp. They are miserable. Tonight is the worst of this rash.
Called the nurse Tuesday afternoon because my chest (ribs actually) were so painful. Finished scripts of antibiotics and steroids less than a week ago and my chest felt so tight and really hurt, but my breathing was good. Covering Dr called in refills for both (my dr is on vaca til 26th), while my son went to pick them up. I went to throw in a load of whites and when I picked up the nightgown I wore Sunday, my Fentenyl patch fell out. The chest pain was from no pain meds for 2 days, didn't take the new meds, put on a new patch. Felt much better about 6 hours later. That is the 2nd one out of the box of 5 where the glue did not stick. They are so expensive, and I have to explain why they didn't last the full 30 days.
On Thursday I got my package for open enrollment for insurance for long term disability. 2 months ago I got a letter from the Insurance Company that determines eligibility that after review of my case, my long term disability was extended til 10/2016, which is 5 years per the guidelines of our union contract. The company is stating it ends April 30, 2013.... big difference. Called benefits Tuesday, they put in an inquiry. Asked who makes the determination, was told the insurance company. Said they would let me know today, today they said 5 more business days, so that means after Thanksgiving.
I do not have the patience of a saint to begin with. Am questioning this chemo and the se. At my last visit with my onco 2 weeks ago, he asked if I felt the chemo was working, I laughed. How could I know, I was on this chemo for 3 days when I got sick with the bronchial infection, I wake up 3-4 days a week now with a headache from hell, my face is puffy from all the steroids in the last month, and I have these sores all over my body.... and I sleep way more than I am awake again. Now how would I know if it is working. I am seriously thinking of stopping it.
My ex called this morning and when I said that if all of this is for a few months longer and this is as good as it gets, then I am stopping it. He told me that is like suicide as I know the outcome with out it, tried to explain there is no guarantee with it, and I may be losing my medical and life insurance in April.
I am so frustrated and tired of all of this. Thanks for listening to the whine!