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gbm hope!!
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Nov 14, 2012 - 8:44 pm
my father is now six months into his journey with a gbm stage four that was determined inoperable. on nov. 1st we went to get his mri and were prepared for the worst because he has become very symptomatic to the treatment of temador, avastin, lithium, and the various other drugs. we assumed the symptoms were from the tumor growing because its touching the part of his brain that affects speech and memory and both were greatly decreasing. after the mri we found out the treatments are working!!! his tumor had shrunk 25% from its original size!!! we were ecstatic to learn this amazing news and it really helped putting us back into perspective and back into positive thoughts and back into the fight! I hope hearing this will brighten your day and help u get back the hope that we were foolish to lose ourselves so soon! and if anyone has stories of the same symptoms as my father i would love to hear your story... its hard to find anywhere that really gives u enough information on what to expect. just wondering how much of his speech and memory loss are permenant or will it come back to him eventually?? ~kayla |
Joined: Nov 2012
Hi Kayla
That is very encouraging the news about your father. My sister had memory problems but they seem to improve with time? For her its been worst before surgery and after, she has had two surgeries a year apart. But once it starts getting better it stays that way which is great. I'm not sure if tumor location makes a difference but it probably does. All the best and thank you for sharing good news its always useful to hear positive things in this journey;-) God bless you and your dad and family
Joined: Aug 2012
Thanks ..god bless u and ur family also...this is literally hell on earth and its great to hear of good news as well as have it yourself because it is so elusive with this type of cancer.. Try and hang strong even though it is the hardest!!
Joined: Dec 2012
My husband got diagnose in april 2011 , he was having headaches that just would not go away, he had an operation, did the usual radiation, and the chemo pills, everything sEemed to be looking good, then one day at home he started having seizures, so at the hospital they said he had 8 plus seizure all together,and he stayed out of it the whole time, they said it was caused by pressure in his brain so they put him on 4mg of decadron, and then september 2012 his mri showed regrowth so they did another surgery, this time it affected his speech, having hard time saying what things where or what he wanted to say, and it affected his walking, well here we r today, noticed on dec.25th everything was getting worse he was sleeping all day needed of help walking, so took him to the hospital and they showed us his mri from dec.28th and his tumor grew so large and fast, they are giving him 12mg of decadron now instead of 4mg to try to get the swelling down then the doctors should be talking with us today aout our options.now my question is itt worth it to have athird operation and risk more damage to his speech and mobility or leave it run its course and let him be happy ?? he is only 29 and two beautiful little girls, any dvice would be greatly appreaciated thank u :))