Nov 12, 2012 - 8:47 am
My sweet 50yr old husband (Nelson)has had more than his share of difficulties during and following treatment. The last two months have seen him in the hospital 4 times with presumed medication reactions, uncontrolled coughing, and then a blood clot with a side of cellulitis from a peripheral IV. Thankfully, the clot is superficial and there is no need for anticoagulants. Finally, all the acute events have cleared and his med onc can take a good look at the 'big picture' of all his symptoms and begin to consider a larger problem may be afoot. He is almost 8 weeks out from completion of 9 weeks of induction chemo, and 33 rads with concurrent weekly chemo for BOT stage 4 with bilateral lymph node involvement.
His symptoms are bilateral weakness and stiffness of gait, fine motor difficulty of coordination in his hands, transient confusion, chronic cough, occasional double vision and incontinence of urine. She has never had anyone with the degree of cough he has experienced and the difficulty getting it under some control as well as the other symptoms concurrently. The thoughts are that there is a neurological basis for all he is experiencing. He is having a MRI of the brain and cervical spine, hopefully tomorrow. He will need to be sedated since he cannot stop coughing for the 2 hours needed for the MRI. He does not cough in his sleep, thank goodness.
His symptom profile most resembles paraneoplastic syndrome, but that usually appears before the cancer is discovered. Radiation myletis is a possibility, but he is not experiencing the normal 'electric shock' type symptom that indicates that problem. So, we are left with either a new cancer causing the paraneoplastic syndrome or some other neuro problem. Maybe chemo side effects too. She called him an 'enigma'. He is not on any medications that can explain what is happening. We are scared and confused.
Has anyone experienced this type of symptom pattern or anything similar? The walking/coordination difficulty is the most troublesome problem at the moment. It seems to be slowly progressing. We hope to get the MRI and then see the neurologist this week.
Any input is appreciated!