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CT Scan soon

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

In March, when I had scans done in anticipation of chemo and then radiation thereapy, the CT scan showed two or three tiny spots in the thoracic region (lymph nodes), but not in any organs. The spots were too small for a PET scan to give any more information about them. Both the oncologist and the radiologist decided to go ahead with chemo, as planned, and do another CT scan after I finished chemo. The radiologist told the oncologist that sometimes these do appear, and they do not mean that there is a problem. The surgeon wondered why they thought it might be related to my surgery. Oh, well.

The end of July I had a follow up CT scan. No change in the spots, which was a good thing for two reasons:
1) The chemo had not made them disappear; were they cancerous, that could have occurred.
2) They were no bigger.

Before my oncologist wants to give me the ok to have my port removed, he wants one more CT scan just to be sure nothing has grown. That will be some time the end of this month, as I meet with the oncologist December 3.

Has anyone else had a similar occurrence? I'm not worrying about this, but I wish I could know of others who have had similar spots and what the verdict was about them. I have done a search on this discussion board and come up empty.
----------------------

Tomorrow marks the 2nd anniversary of the death of one of my best friends. She had breast cancer initially, but eventually it spread to other areas. (Her husband, a good friend of mine) says that he does not think that they went after this disease as aggressively as they should have. (She had a single mastectomy and chemo. That was it.) Hindsight causes us to second guess ourselves. Who knows what was being suggested 10 years ago for treatment of the disease. She did chemo again, and she tried some other things the last time around; but eventually she came to the conclusion that nothing was going to change. She was ready to give up the fight and be freed from her pain and disease. She was an eight-year survivor.

It was hearing my friend's voice in the back of my head lot athat prompted me to make an appointment last November to have some possible problems checked out. I did have a problem. (Initially I was going to wait until at least spring before doing anything.) Since then I have had surgery (Feb.), chemo (Apr-Jul), and radiation (Aug-Sep). I am now doing hormonal therapy.

It added to the weirdness of it all to think that I was/am dealing with the same disease she did. My hope is that my steps in dealing with it have been such that I don't get it back elsewhere, as she did.

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

I have mets in some lymph nodes between my lungs, we track and follow the cancer with CT scans (blood tests don't work in my case). There are a couple of spots we've been watching for about a year now, one in my lungs and one in my liver. There have been no changes in those spots in all that time.

Best wishes for good news from the next scan.

Hugs,

Linda

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

I have an idea that those, if still there, will be watched. It seems logical, now that I have a "history." When I was doing taxol with the chemo, I did have a cough (sometimes rather nasty; most of the time, just pesky). Like me, the oncologist had wondered if the cough was something other than taxol -- related to those spots -- but the CT scan showed otherwise. Once I finished taxol, the nasty coughing bouts disappeared and the pesky cough disappeared maybe about two or three weeks after my last dose.

Thanks for taking the time to reply.

jnl's picture
jnl
Posts: 3873
Joined: May 2009

I am so sorry to read about your friend passing. I am wishing you the best with your CT scan. Keep us updated.

Hugs, Leeza

camul's picture
camul
Posts: 2034
Joined: Dec 2010

but do have nodules that showed up in my lung when I had a ct scan about the time when they found the cancer was back (8 1/2 yrs after initial dx). They have watched them but there has been no change so they are just nodules. I have been on so much chemo in the last 2 years that they would have shrunk or we should have seen some change. I have never worried about them.

I am sorry for your friend and her husband. It is always hard to lose someone you love. As far as aggressive treatments, my onco was very aggressive as we figured it was HRT induced. I had a single mastectomy, chemo, and a hormone blocker. Unfortunately, the hormone blocker was toxic to my system and I was only on it for less than a year.

A second onco said that my onco was too aggressive, that after looking at my numbers she would have only done a mastectomy! I told her I agreed with my onco, HRT etc. She didn't waver. Truly, I believe I would not have had 8 years of NED without him being so aggressive. We can second guess all we want but bottom line is not everyone's body is receptive to chemo, and mine like your friend's is like that. I am on my 4th chemo this time around, and have been sick for the month I have been on this new one.

I tried tamoxifen again this go round and it was still toxic! I agree with her husband and hit it with all you have now so there is no recurrence.

If you see posts from 'Cypress Cynthia" read them about being compliant. Take all the meds if your body tolerates them, use the pain meds when needed--if you are fighting the pain it puts more stress on your body and it is not able to fight the cancer as well... etc.

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

I have been dealing with this aggressively, doing what my oncologist and radiation oncologist planned (chemo and rads). I am now on tamoxifen.

I was encouraged last CT when my oncon said that it probably is a good sign that the spots did not disappear after chemo that the spots had not grown, AND that nothing shows up in the organs.

Right now I am doing well.

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Wishing you all the best with your CT scan. We'll get the pink bus out for you so we can all ride along for support and encouragement.

Hugs, Angie

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

I will try to think to let the date be known, once I have it in hand. Probably if I do not get a call or paperwork by Friday, I will call Monday.

VickiSam's picture
VickiSam
Posts: 8253
Joined: Aug 2009

Please update us when possible.

Strength, Courage and HOPE for a Cure.

Vicki Sam

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

Thanks.

survivorbc09
Posts: 4378
Joined: Jun 2009

Keep us posted! Prayes and lots of good luck!

Hugs, Jan

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

Thanks

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Wishing you good luck!

Hugs, Lex

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

Thanks.

survivorbc09
Posts: 4378
Joined: Jun 2009

Did you get your paperwork today?

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

I did not get the papers in the mail today. I had decided that if I did not know anything by today, I would call.

Not getting home from school as early as usual, by the time I called the office, the person who sets up the appointments through the hospital had left. So, Marc (one of the nurse's) took a message -- in case Anita did not get it in the mail today so I would get it tomorrow. I told Marc that I need to know so that I can let the secretary who lines up subs know.

So, I should know by Monday when the CT scan is. (The irony of all this is that my CT scan will probably be the same week as the week last year when I had my initial appointment that eventually verified that I had a problem.)

Thanks for remembering and asking.

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Sorry you didn't get the papers yesterday, but, I am sure if you call Monday, you will get it lined up. I am wishing you the best with your CT scan too and will be there on the pink bus to support you.

Hugs, Debby

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

Today I was cleaning out a folder of materials I have collected since last January, when I was diagnosed with bc. Some I tossed; much I kept.

I was re-reading a copy of the pathology report and was encouraged with how often it indicated that the cancer was generally contained. Only one lymph node was affected, and even with that, there was no indication the cancer had spread beyond that. I had the chemo and rads to keep it that way.

Last year when I was being cautiously optimistic about things I was always wrong (which my gut had told me). As for this CT scan, I am optimistic. Not only did reading that pathology report help with my thinking, but I am coupling that with the report I had from the one done the end of July to check those spots.

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

I am optimistic for you too!

Good luck,

Kylez

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

I got my appointment set>

CT scan/blood work, Tuesday, November 27, in the morning.

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

I'll be on the pink bus with you on the 27th!

Hugs, Megan

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

Thanks for the encouragement!

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

Good luck!

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

I realize that all here wait with baited breath when someone in the group has tests or surgery happening. We are an amazing cyber-family.

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

We have a special bond, that is for sure! Good luck to you!

desertgirl947's picture
desertgirl947
Posts: 419
Joined: Oct 2012

thanks

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