Nov 09, 2012 - 11:45 pm
When I was 26 (April 2011) I was diagnosed with Stage IV colon cancer that had spread to the liver. I started with Folfox and that worked well until my body developed an allergy to oxaliplatin. Then I switched to Folfiri with Avastin and that didn't work at all. Then I had surgery - I had my colon removed (I have a colostomy) and I had a liver resection. Less than a month after the surgery I had a lot more spots on my liver. I started Folfiri with Cetuximab and that worked for a while, but just stopped working. Now I have two small spots on my lungs and a bunch of spots on my liver (biggest one is 2.5 cm). Now my doctor wants to start me on a new drug Stivarga, but that isn't a great option. Unfortunately, everything I've read says there are no good options left.
Is it possible to get radiofrequency ablation, then get it every few months as the cancer grows back? Is it possible to use something like that as a way to maintain it. I know there's probably no way to cure me now, but I don't want to just give up. Also, I know I'm not eligible to put on the transplant list, but if I have a relative that wants to donate half of their liver to me, does anyone know if that is an option? My doctor says it isn't, but does anyone have any experience with something like that. I would think that if I could get a healthy liver, then do the radiofrequency ablation on the two small spots in my lungs that I'd be in much better shape than I am now. Please, I'm just looking for anyone that has blown through all the first stage treatment options, and what worked best after that. Thank you so much.