Nov 08, 2012 - 11:38 pm
Okay all ....you all know me well enough to know by now I like it straight and simple with some stats and facts ...so here are my results today with my oncologist visit for a routine follow-up scan....... and I hope to hear some thouhts and feedback from you all.
I had been asking for an eyes to thighs scan for the last two scans, but insurance denied that. Said neck only due to no symptoms. Scans were not for monitoring was their reasoning.
I have had no symptoms or reasons for eyes to thighs mind you, I just personally feel like if recurrence rates (per my ENT) can be 35% and as many of my friends on this site and others have come back with mets to other locations, then monitorng SHOULD be allowed and be aggressive. But that's my humble non-doctor opinion :)
So, todays CT w/ contrast showed the very top part of my left lung (same side of my neck where my lymph node was affected and probably got the most rads) had a "ground glass" appearance. Since the scan was only of the neck, it barely showed the top of the left lung, but caught this part of the lung in the picture and the radiologist felt a full lung CT w/ contrast was needed. So back I went same day for another scan of the lungs just hours from the last scan.
The Oncologist spoke with me BEFORE the full lung scan and he indicated he was not too concerneda bout what he saw in the neck scan only at the top of the lungs bc it could be scar tissue or "radiaton scatter" or some infection.
However, after the lung scan w contrast was done, I called and I was informed the lower left lobe (superior regions I think they said) showed some of the same ....
Oncologist still feels this is more of an infection. He prescribed Levaquinn 500mg, one a day for 7 days. Wants to see me in 6 weeks for another scan.
Now, I just finsished hunting in the wood many days off an on from 5am - 7pm at night in wet, cold conditions. I felt great. Was carryiny my 60lb pack with me everywhere up and down hills!! I've also spent the last 2 months bent over a chainsaw cutting LOTS of wood.
I just recently posted I have been feeling a bit flush and tired...but no fever. My blood pressure today was 118/72 (nurse said perfect blood pressure ..and it's always been that way since my weight loss of 85lbs after treatments.)
So with these areas in the top of my left lun and in the bottom of my left lung "lower lobe superior area I think she said ...
...what am I looking at? When I breath in deep I can feel that ache, very slight, many of us get after treatments ....but I do not feel short of breath, I am not running a fever and other than that ache like when you breathe in cold air....that's it. I feel great and I feel like I have plenty of energy.
Is what the doctor orderd good enough? Should I ask more questions? If so, what kind?
I'm with all of you. It ain't nothing until someone says it is....and no matter what may come I see this past year as a wonderful year. The extra time I have had with my family because of the day and age we live in as well as the value of prayer in my life I have no complaints. I've already told my wife I plan on being around till I am 101 years old..... :)
So if you all can give me some feedback, suggestions on what to ask, do or whatever and also keep me in your prayers the next 6 weeks a bit harder than normal (well wishes and positive mojo always accepted) ...I would appreciate it.
Thank guys! :) Took my first Leviquinn tonight .....hey, I'm think I'm feeling better already ..LOL :) :) :)
Sorry for the usual long posts ....you all know how chatty I am :)