Nov 07, 2012 - 11:08 pm
I am a Stage four Tongue Cancer Survivor. It has been over 7 years since Radiation treatment.(December, 2005 - January, 2006)
I have read a lot of posts, and only answered to one. I'm not sure you folks want me on your board, because I highly recommend natural cures above standard treatment in many cases. Of course this has to be the patient's decision. Prior to cancer I was already doing research as a hobby, but the past 7years I have focused more on health, natural cures, and cancer treatments.
Three- fourths of my tongue was removed. Reconstructive surgery was done, using muscle, nerve, and tissue from my thigh. Nine days later it lost oxygen and turned purple. Therefore, an emergency surgery was done. The tongue was reconstructed again, using the needed muscle, nerve, and tissue from under the breast and underarm.
The very next evening it was discovered that an artery was not working, so a third surgery was done. Three surgeries in ten days. (I thought I was a goner that time!) But I made it even to the surprise of some of my doctors!
I was released from the hospital the day after Thanksgiving, 2006. Radiation was scheduled to begin December 28th. I had researched enough that I did not want to do Radiation! But, my family, with my best interest at heart, wanted me to. They were sure I would die without it. So, I gave in.
After a brief trip home, we returned to Houston. On the very first day of radiation, I came out and felt like my mouth was very full of something. I went to the bathroom, and it looked exactly like melted Mozzarella cheese! I took paper towels and grabbed it and pulled and pulled. It was awful and scary. But that never happened again during my treatments.
Since Radiation, the beautiful tongue is no more. I have not even seen it! It was shrunk so much! It has no movement, no ability whatsoever, to help me swallow.
Please don't get me wrong. I am very thankful that I survived and have as good a life as I do. I am thankful to my entire team of doctors, without whom I would not be here.
I was given the opportunity to spend time with my grandsons and see them grow up into adolescence. I'm so proud of them.
But the facts remain. Radiation and chemo leave people with a low quality of life.
Radiation side effects can occur month after or even years after radiation has ended. I have lost almost all hearing in the right ear, and the left ear is going , too. I I'm told this is nerve damage and nothing can be done about it. I have lost 4 teeth.
So, if I had it to do over, I would not take any radiation treatments. I would eat healthy. I would research what is best. I would make sure I took an oxygen supplement, as well as keep track of my pH. Cancer cannot live in an oxygenated environment, nor in an alkaline environment! Furthermore, If you have radiation, they cannot guarantee you that your cancer won't come back. They have no idea.