Nov 05, 2012 - 10:37 pm
Some of you may remember back in June a metastatic brain tumor was found. I received a craniotomy with tumor resection, followed by stereotactic therapy. PET, CAT, bloodwork and tumor markers in July were NED!! YAY! MRI of brain, CAT scan of chest and bloodwork in Sept NED!! YAY! Last week i started having some problems similar to the symptoms of the tumor progression. I was taken to the hospital where I received more tests. The chest Xrays and bloodwork still all good. The MRI of my brain showed no new spots, there is some swelling and edema at the surgical sight. It could very well be "post craniotomy changes". The doctors are studying the films and I have an appt on Wednesday but the anxiety is driving me crazy!!! I want to be done with this. They have me on steroids and anti seizure medicine which makes me crazy, wired, emotional and jittery. i can't focus or stay centered or concentrate on anything. I just want want to be me,I want to take care of my family and my home and be normal. Why won't this thing just leave me alone!