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Ok...about this tube removal....

phrannie51's picture
phrannie51
Posts: 3618
Joined: Mar 2012

After FINALLY getting the two Dr.'s to communicate in the way that made them each happy, I finally got my appointment to get my tube removed. They gave me my choice...to have anithesia when they pull it out (no driving no work for the rest of the day)...OR, just suck it up and have them pull it without anything....I chose the later. They said it was like a "bee sting" (Dr.'s seem to compare everything to a bee sting, don't ya think??). Hubby said "well, none of them have had it done, so they actually may mean a 40 pound hornet sting."

I'm nervous now...how bad did it hurt? I get it pulled on the 9th.

p

staceya's picture
staceya
Posts: 701
Joined: Jan 2010

Congratulations!
I am so proud of your stength!

katenorwood
Posts: 1808
Joined: May 2012

Phrannie,
I know nothing on this issue, other than to tell you that you've been one tough cookie throughout everything ! I am amazed at your strenghth and attitude. Glad to hear it's coming out ! Thinking of you ! Katie

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

That being said I would want something to calm my nerves. I tip my hat off to you for your bravery. You are one tough cookie.

Mikemetz's picture
Mikemetz
Posts: 333
Joined: Nov 2011

Kate's description of this as a sting from a 40-lb hornet is pretty accurate--well, maybe a 10-lb one! It does sting, but not for long. My advice would be to make sure the doctor tells you when he/she's going to pull, so you can be ready. I wasn't told, and the sting plus the loud "Pop" took me by surprise, which took my breath away a bit and I think hurt more.

Consider it another positive sign that you're on the way to a full recovery--congratulations!

mike

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Great! I think almost all of us were wide awake for the tube removal. I was an exception. When I asked about the possiblity of having it without drugs, I got an absolutely not - the nurse acted like other people must have barbarians for docs. It was just as well - I got a two-fer while I was out - tube removal and throat dilation. Everyone I recall said that their removal was intense for a few moments.

Yay, you! Getting rid of the tube is wonderful.

Laralyn's picture
Laralyn
Posts: 433
Joined: Apr 2012

...that I remember what it was like! :-)

Before I say anything else, I'm assuming you have the same kind I did, which I think was the collapsible kind. Basically it folds when there is pressure pulling it out. You might want to confirm that's the kind you have to help you decide.

I didn't have any anesthesia. It took about 5 seconds (literally) to have it pulled. The doctor said he would count to three and when he reached three, he waited for me to nod before he pulled. It was a sudden, sharp pain that was strong enough to make my eyes tear up, but not enough that I actually cried. Imagine if you took a tee shirt, pulled it fairly taut, and cut a nickel-shaped hole in it... then pulled a quarter through that hole. That's essentially what happens--it hurts because your skin stretches and bleeds for a few minutes, then it contracts back right away.

I remember thinking "OW!" for about 30 seconds afterward while the doctor held dressing on it. It felt a little sore as they taped bandages to it. The rest of the day, I was tender if I bent over or stretched pretty far.

For me, the pain was minimal compared to what we all went through with radiation and chemo. Yes, it hurt, but it really is a sharp pain that's over quickly. The tenderness afterward is probably about the same whether you have anesthesia or not, so if you have the same kind, it's really about whether you are in a state where more pain sounds OK. I think it's a personal thing, and timing can make a difference. It took me long enough to be able to eat again that I was about 4 months past treatment when mine was pulled, so I felt all right about it. If it had been closer to treatments, when I was still really tired and still trying to recover, I would have felt differently.

Let me know if you have any more questions, and I'd be glad to answer. I can definitely say it feels GREAT to have the tube out!

phrannie51's picture
phrannie51
Posts: 3618
Joined: Mar 2012

When she asked me which way I wanted to go, I thought..."I've been thru all this other stuff, who cares about a bee sting"...Now I'm wondering if this isn't one of those things that is better if you never see coming...(like getting zapped by an electric fence)...LOL.

I just don't want the pain to go on and on like it did when they put it in....that wasn't supposed to be a bad deal either...

p

Laralyn's picture
Laralyn
Posts: 433
Joined: Apr 2012

The pain really is over in 15-30 seconds. After that, it just feels a little sore. It was a LOT less pain for me than when I had it inserted. It sounds like it didn't hurt at all for some people, so what I'm telling you is probably the extreme case. That means the extreme case is a sharp pinch then about 15 seconds of stinging. :-)

CajunEagle's picture
CajunEagle
Posts: 357
Joined: Oct 2009

I believe the sensation lasted maybe 15 seconds. This is very minor after all you've been through. At this point in time, we are all way too tough to worry about taking the tube out. It's just an "ouch".

CivilMatt's picture
CivilMatt
Posts: 2825
Joined: May 2012

Hi Phrannie,

When I had my PEG popped, it did not hurt, but was a little uncomfortable. A firm tug, a popping sound and swoosh a little bit of belly juice came out. The hole in your stomach closes up almost immediately and the wound on the outside a few days later (like any incision).

This is a milestone for you, congratulations. You are not using it, if it is still in good shape, tell them to give it to somebody else.

Best,

Matt

My wife came in and watched the popping of my PEG.

Ingrid K's picture
Ingrid K
Posts: 810
Joined: Mar 2011

Hi Phrannie

My experience was EXACTLY like what Matt describes above.

I was literally sitting up and the doc says, "you ready ?" and before I could answer he yanked the tube out....a little pressure, a loud pop and it was out.

You will be just so so happy to have it gone, you won't even feel a thing.

good luck !!

boardwalkgirl
Posts: 261
Joined: Jun 2012

My surgeon that put it in was who took it out. He numbed around the area with some Lidocaine first, which that stung a little. Then he just popped it out and that didn't really hurt at all. Just felt a little pressure. Mine was sore for about 2 days afterwards. I did take a Lortab before I went in to have it removed. I am so glad you are getting rid of it, it just makes you feel better.

ratface's picture
ratface
Posts: 1232
Joined: Aug 2009

for a second or two. It would take longer to administer the pain meds. The nurse puts her foot up on the chair and gives it a big yank, you may not even get a doctor to do it. You could request a bullet or piece of wood to chew on. I would not go through the hassle of being admitted to have it done as that is invariably more painful. Honestly the removal is a cakewalk compared to what you have been through and totally doable and tolerable. What I wasn't prepared for was the cauterization of the wound. This feels like someone poured hot coals on to my skin and is slow to diminish in duration. Cauterization does not seem to be a common practice but I do recommend it for healing purposes as there is never again any pain to the site. I do not handle pain at all, to any degree, as I'm a big sissy and I did it with no real issues and you can to.

michdjp's picture
michdjp
Posts: 186
Joined: Sep 2011

So happy to hear you are getting your tube removed and i hope all goes well. On a little different note, how did you come to the decision to remove the peg, do you have to gain weight? My dad is at the point where he uses his only maybe at night during the day he eats breakfast lunch and dinner by mouth, mostly macaroni, ravioli, manicotti grilled cheese pancakes. We are still have trouble with meats. I believe we are just keeping the weight stable, not gaining though.
Well I'm so happy you are progressing it is certainly not an easy road.
All my best
Michelle

phrannie51's picture
phrannie51
Posts: 3618
Joined: Mar 2012

give the go-ahead on getting it pulled. Ok, so I cheated a little and wore heavy work boots on my last weigh in...but, I hadn't used my tube for a month at that time. I've probably gained 7 lbs now, which would make the Onc very happy...and it'll be nearly 2 months of not using my tube by the time I get it out...

As long as your dad is still using it, he might as well keep it...it's there to use. He's eating all the things I ate when treatment finally stopped...the soft stuff. Don't worry about graduating to meats for a while (I still can't do them)...but everyday my repetoire of food increases. Today they had chocolate cake at work...it was dry, and I looked like a kid when I got done eating...but I could taste the first few bites and it was good.

Your dad will know when he's had enough of the tube...

p

amy_h414's picture
amy_h414
Posts: 98
Joined: May 2012

My husband said his removal wasn't that bad. The gastro doc who put it in yanked it out in his office. Just a 1-2-3 YANK! and that was it. He said it stung for a second and then it was over.

I think you'll do fine. It'll be over fast, they'll slap a bandage on it, and you're out the door.

Grandmax4's picture
Grandmax4
Posts: 578
Joined: Dec 2011

do this, I never had a peg tube..for 5 weeks I had a feeding tube in my nose, my Doc gave me no warning when he pulled it out, just suddenly said, you no longer need this, yank.

phrannie51's picture
phrannie51
Posts: 3618
Joined: Mar 2012

in this thread...LOL. I'm sure I'll be sweating bullets the day of this appointment...but I still want it out as fast as possible, no pain no gain...right? So maybe I'll take one of Lola's sticks with me, and I can bite down on that....ha!

p

D Lewis's picture
D Lewis
Posts: 1521
Joined: Jan 2010

I think I was an exception here. My gastro doc was female, and she had to give a really long slow hard pull. No yanking there. I had some kind of muscle spasm and just lay there gasping and squeaking for what seemed like two minutes before it abated and I could breathe. After that I was fine. No after effects at all.

I had the kind of PEG with a large mushroom-shaped flare at the end. It looked HUGE.

Deb

tuffenuff's picture
tuffenuff
Posts: 273
Joined: May 2012

i had the same kind. my doc yanked it out and then stuck it right in my face and said "see?". not too sure why he thought i wanted to see. anyway, he had a pretty good arm.

Hondo's picture
Hondo
Posts: 5635
Joined: Apr 2009

Glad to hear it is coming out, bring a big stick with you, when the doc ask what the stick is for. Let him know he will find out if it hurts more then a bee sting. Ha ha ha

Wishing you the best
Hondo

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

I haven't had a tube put in (me) YET. So I may try to share psychicly in the removal experience. If I feel anything, I will just pass out. Please look for me on the floor. Rick.

QT314
Posts: 5
Joined: Dec 2011

Congratulations on getting your tube removed. I remember being concerned when I had mine out and wasn't sure what the procedure was like. Well, it took 2 seconds and I didn't feel anything. The doc just yanked that sucker out and it didn't hurt at all. I had no idea it was that easy. No problems after either other than the fact that I now have what looks like 2 belly buttons - but I can live with that. I'm sure everyone is different, but I wouldn't worry about it - truly a piece of cake compared to everything else you've probably gone through. It is so nice to be able to wear anything you want again (except maybe a bikini!) Good luck and happy eating.

rush1958's picture
rush1958
Posts: 197
Joined: Jul 2010

They brought in the head grounds keeper at KU Med to tie a log chain on to one end of the tube and ran it out to a delivery truck and chained it to the bumper. They gave me a leather glove to bite on, gunned the the delivery truck's motor and dumped the clutch. I didn't notice any pain with the tube coming out, but the road rash and broken bones from being dragged down the street for six blocks took several months to heal.

OK.... OK.... isn't quite like that.... I was lying on a table, the nurse deflated the internal end and it slipped right out. Took about 1/2 to 1 second to accomplish. No pain, no fuss and they put a small bandage on the tube site and sent me home.

It was pretty anticlimactic.

Rush

phrannie51's picture
phrannie51
Posts: 3618
Joined: Mar 2012

I'm still smiling.

I think I lost the ability to wear a bikini back in my forties, so no worry about my wardrobe changing much. I'll just be glad not having to tuck it into places, or worrying that the puppy is going to grab it on those occasions when it slips out....generally when I'm trying to get dressed around a very curious dog. More than a few times she has tried to be the one who gets to yank it out.

p

D Lewis's picture
D Lewis
Posts: 1521
Joined: Jan 2010

Since I haven't seen it elsewhere on this thread...
WELCOME TO THE SECOND BELLYBUTTON CLUB! <3

Deb

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

My PEG removal was almost identical to hers. I'm not going to lie, I was nervous that it was really going to hurt but I was surprised (and happy) that it wasn't near as bad as I was expecting it to be. It was tender for a few days, much like when it was placed but after all we've been thru, piece of cake!
Try not to stress about it, it's much easier than you are imagining.
Best of all, you will feel so much more normal after it is out. I swear, I literally felt normal for the first time in a long time after that thing was removed. It was instantly for me.
billie

tuffenuff's picture
tuffenuff
Posts: 273
Joined: May 2012

Mine was the kind with the mushroom on the end. I was hoping for the plain tube but it was not so. Anyway, it hurt like hell for about 35 seconds then I was fine. Being groggy from the anesthesia is way worse.

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

Phrannie- not that big of a deal. I got no anesthetics, or anything. Doc just had me lay on the table, spun it around lightly for some 30-seconds to free-up, then YANKED it out. You know what mine looked like if you check-out my Expressions page pictures, so I also had the G-tube mushroom variety. Only felt it the seconds it took him to get it out- AND WHAT I FELT IS NOTHING IN THE BIG SCOPE OF THINGS. Just a little discomfort, Phrannie, and all you gotta do is think about how glad you are to get rid of it. Just one more little itty-bitty pebble in the road.

Oh, and by the way- CONGRATULATIONS, girl.

kcass

yensid683
Posts: 224
Joined: Apr 2012

considering everything involved, I was prepared for some pretty good pain, but I was amazed to find that it hardly hurt at all! The dr did his prep with some chux pads and some gauze, he simply put his fingers around the base of the tube, and a quick pull had it pop right out! I made a pretty good pop too, and there was some minor bleeding, but it soon stopped. I had mine out three weeks ago today and the stoma has completely closed, has no pain, though it looks a bit nasty. My wife does not like to see it so I've taken to wearing a band-aid over it until the scar tissue fades and the hair grows back in.

On the one hand, I now have two navels, on the other I can almost claim to have been shot in the gut by a .22!

It's a breeze, take a Tylenol before hand if you like, but you really won't need it.

Peter

Tim6003's picture
Tim6003
Posts: 1490
Joined: Nov 2011

No big deal Phrannie ...bee sting is about correct, if that! They pulled mine out in 2 secnonds, a little sting and bandage and I was off. My tube got infected two times and that was worse than the "yanking out" ... :)

Love Rush's story!! Too funny.

Best,

Tim

Mikemetz's picture
Mikemetz
Posts: 333
Joined: Nov 2011

My wife calls my PEG scar my "Belly button North." And yes, Phrannie, I can no longer wear a bikini in public without being totally self-conscious ;)

Given what you've gone through to get to the point of having your tube removed, the removal itself will be a non-event.

mike

AJW1966
Posts: 69
Joined: Nov 2012

Sorry i can't relate but you're in prayer.
I did have a JP drain from my surgery put in and when they pulled it, it stung for about 15-20 sec and that was it. It looked like a foot long tape worm.
If it's anything like that?....you should be fine. Like another member said, so much that you have been through, this should be a walk in the park : )

phrannie51's picture
phrannie51
Posts: 3618
Joined: Mar 2012

after reading about what it was going to be like, I was pretty scared...but I made it thru that, and now just remember that it wasn't fun...tho the particulars are a tad blurry. So this will be wish-bang-over...and by the next day the memory of that will be blurry too. Mother Nature is good at burying the details of unpleasant things.

p

phrannie51's picture
phrannie51
Posts: 3618
Joined: Mar 2012

So not too bad, I didn't even cuss or anything. You guys were right...about 30 seconds that brought a tear to my eye, 5 minutes with cramping...and voila! It was over and done with, and I don't have to figure out where to keep it for the day. No more of it getting loose and hubby laying on it...and no more puppy always wrangling to get a hold of it...I am free! :)

p

luvofmylif
Posts: 344
Joined: Sep 2012

Yay, so happy for you. My god, that has to feel awesome knowing how far you've come. What a feeling of freedom to be tubeless

Joan

boardwalkgirl
Posts: 261
Joined: Jun 2012

So happy for you Phrannie, it is such a good feeling.

D Lewis's picture
D Lewis
Posts: 1521
Joined: Jan 2010

Congratulations! Phrannie's a member of the Club now! The Second Bellybutton Club! Yay!

Deb

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

I'm so happy for you! I swear I instantly felt normal again after i was free of that dang thing. Now don't be alarmed if tomorrow and the next day it's a bit tender, it's very common for that to happen.
So thrilled for you!
Billie

Laralyn's picture
Laralyn
Posts: 433
Joined: Apr 2012

It's great to have it over with, isn't it? You'll be surprised at how quickly and easily it closes up too. :-)

Hard12Find
Posts: 200
Joined: Sep 2012

Been down a harder road than that you have....keep the strength.
Jim

mikeev
Posts: 19
Joined: Jun 2012

had mine out this morning, just felt like someone taking a stitch out, this was my third tube had the others replaced every 2 months so it wasn't a surprise regarding how it felt, but for the past two days have had a really sore stomach where tube exited body may have slight infection but nothing to worry about, starting to feel normal now my "tail" has gone I feel that I am now well on the way to recovery including eating normally.

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