Oct 30, 2012 - 11:04 pm
I saw my MO today about persistent shoulder pain. He thinks it's may be a frozen shoulder but ordered an MRI before sending me to a PT. I last saw him 6 weeks ago and he changed me to Femara from Arimidex because of the side effects. So during the visit he asked about it. I told him they subsided at first after changing, but now they're about the same. He said he could put me on Tamoxifen. I asked about the side effects. He brought up uterine cancer, but said it was rare. He also brought up blood clots (and said Arimidex had the same). Since my grandmother had a blood clot and then bled to death from blood thinner, he's doing blood work to see my risk of blood clots. There's also Aromasin, but he said most people have more fatigue. Since I wake up exhausted all the time, he's doing additional blood work for that and taking me off Femara for a week to see if my fatigue improves.
After reading the previous post (couldn't find it tonight) about Arimidex and blood clots, makes me feel good about my MO being cautious about it.
I can deal with the discomfort side effects (joint pain, headaches, etc) of the meds if I have to because it's keeping cancer from coming back.
Finally, here's my questions:
For those that have been on 2 or more of these 4 drugs, any experiences or knowledge you can share with me about the differences? I know everyone reacts differently, but I'd like a compilation of information before going back next week comparing the drugs.
Does anyone know if the joint pain is temporary, or is it actually causing damage to the joints?
Has anyone had excruciating pain on the TOP of their feet where heat is the only thing that helps? I've always had feet cramping problems, but this is new in the last year.
I appreciate any help!!!