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Scared

KatMat
Posts: 62
Joined: Jul 2012

My husband and I are going up to Mayo tomorrow and meet with the doctor on Thursday to see how the Medrol/Rituxan is working. He is having night sweats which obviously is not a good thing and is not feeling good. I am truly afraid of what's next.

I am trying to stay positive knowing I have Sloan Kettering's 2nd opinion coming but staying positive is getting harder. :(

Send The Force that Sloan has an option for him!!!

Hugs - Katie

allmost60's picture
allmost60
Posts: 3147
Joined: Jul 2010

Hi Katie,
I will be keeping positive thoughts for an option from Sloan and saying prayers for you to find some measure of peace through all of this. You are doing everything possible to get the best care for your hubby, so please be kind to yourself and try to relax a bit. I know it's hard to do, but take each day one at a time. Hang in there Katie, and let us know how things go. Much love...Sue (FNHL-2-3a-6/10)

KatMat
Posts: 62
Joined: Jul 2012

Thanks Sue :)

jimwins's picture
jimwins
Posts: 1971
Joined: Aug 2011

Hi Katie,

I too am sending positive energy that Sloan has options and
good news for you.

Jim

hiccup (not verified)

Katie,

Sending my positive thoughts your way. It is disconcerting for night sweats to come back, and mine have too. Has he also been running a low grade temperature? Sometimes they go hand-in-hand.

Thanks for keeping us up to date!

Take care-Nathan

tall floridian's picture
tall floridian
Posts: 86
Joined: Dec 2011

Katie: I too experienced night sweats - my poor wife had to change my bed every morning-it was devastating but you know as I look back on it - it was part of the healing process we all have to go through toward recovery. I went thru 6 rounds of regular chemo and then two more aftercare chemo and after 7 months off chemo am in remission thank God. Read my story in my post and you will see how my faith pulled me through a very difficult 15 months. God bless you and husband - remember God's in control even though at times we are not. Know that He loves you!!!! Hugs and prayers - Steve

KatMat
Posts: 62
Joined: Jul 2012

Well after a very long week and half we are home from Mayo. It seems that all my husband's issues - chills/sweating, night sweats were associated with an infection in his central line. After an intense one night stay in the ICU at Mayo he is doing good now and no more night sweats! 14 days of antibotics and he will be good to go.

The doctor started him in OFAR chemo which is not normally used for lymphoma but has been used and doc said it was a good enough chance it can work to give it a try. He had half the chemo before the infection was discovered. We go back next week to resume the chemo. He is feeling good now that the infection is under control. Thanksgiving at the Mayo Clinic is not what I envisioned but it really doesn't matter in the grand scheme of things.

Thanks for all your support! You guys are the best! :)

jimwins's picture
jimwins
Posts: 1971
Joined: Aug 2011

Hi Katie,

That's great news and thanks for sharing!
Well, maybe the jello will be cranberry flavored at the hospital - LOL.

Hugs,

Jim

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