CSN Login
Members Online: 11

Is this a break or not

birdiequeen's picture
birdiequeen
Posts: 329
Joined: Mar 2011

Short history since I haven't posted in awhile. My husband had esophageal cancer and then a year later found a mass on each of his kidneys. The doctor said, at the time, it was likely cancer and likely a re-occurrence of the EC cancer, but what is in one will be in the other. They did a partial on the larger of the two masses and found it was “kidney” cancer and not EC. He had his follow-up three month appointment and the doctor is now saying the mass that is still there has not changed and may not even be cancer. I’m skeptical (probably a side effect of a spouse with cancer). Do you think that the Dr. is just giving him a mental break before they talk about another surgery? Of course I have said nothing to my husband about my skepticism.

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

BQ, just an uneducated guess, really, but I would be inclined to take the doctor's comment at face value. 2 different cancers is unusual and RCC on both kidneys likewise. To have both is pretty improbable, I would think. Do you have any family history grounds for thinking his susceptibility to RCC may be inherited?

birdiequeen's picture
birdiequeen
Posts: 329
Joined: Mar 2011

He does have several family members who have had cancer not RCC. But there was talk in the beginning of having test done to see if (since he had it in both) our children could be at greater risk.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi BQ,

I have to agree with Tex, and would only add that since they are keeping a close eye on the other mass and have seen no change, I doubt there would be talk of surgery until/unless it does change, especially if it is small. Skepticism comes with the territory, you might find that deep down your husband feels the same way, in any event a side bar with the doc, if only for peace of mind, isn't a bad idea.

Godspeed,

Gary

icemantoo's picture
icemantoo
Posts: 1628
Joined: Jan 2010

bq,

Wouldn't it be nice after a partial in one kidney that the other is not malignant. If it were not for the partial it would be easy to want the other one taken care of. While it is still small can they freeze or do RFA on the other to get rid of the problem. in the end your husband and you have to make the best decision with your doctor as to what he thinks. It does not matter what we think,

Icemantoo

birdiequeen's picture
birdiequeen
Posts: 329
Joined: Mar 2011

Icemantoo,

It would be a gift for the other side to not be malignant. You have given me some more areas to research. But, I think...in the end it's my husband's decision. His doctors and I can give input, I have to let go and support his decisions and hope it is an informed decision. Thanks to this board for being my sounding board when I need one!

birdiequeen's picture
birdiequeen
Posts: 329
Joined: Mar 2011

Tried that once, years ago, when my husband had another health issue. It was very clear then that I should not be the one asking questions about his health, to his doctors. I can appreciate his point. So I research on line now. He doesn't mind me going to the Dr appointments with him and asking questions but it is hard sometimes to ask the questions without sounding negative. I prefer to ask a lot of questions, he prefers not to. So like all things it’s a balancing act.

Limelife50's picture
Limelife50
Posts: 419
Joined: Nov 2011

I have no family history of RCC and i got it in both my kidneys,it is not unusual for RCC to grow at a small pace,this is just my thought Birdie your husband has been through alot but at the same time he is almost there so maybe take a short break then have your Doctor order some tests to verify weather or not it is or is not RCC in his other kidney and if it is there are some less invasive procedures to consider in order to eliminate a smaller RCC tumor.

birdiequeen's picture
birdiequeen
Posts: 329
Joined: Mar 2011

He is due for more scans/test in December. I'm just holding tight till then, at which point I may talk to him about asking more questions. Have you had surgery on both your kidneys? Thank you for your input. Sometimes it does seem like he is on an island no one else has been.

Limelife50's picture
Limelife50
Posts: 419
Joined: Nov 2011

Had a full right Nephrectomy on my right kidney due to size and location of tumor which measured 5cm by 4 cm by 3 cm now six months later a 1.4 cm tumor was found in my left kidney,i elected to go with a procedure called Radio frequency Ablation for 3 reasons 1st one being it preserved more of my remaining kidney tissue verses doing a partial also 2nd reason was that it was not very invasive so i was back at work in a week and the third reason was that i would have prefered to have had a procedure refered to as cryoablation done since i feel it has a higher success rate over RFA but the hospital that was treating me did not offer this option. Good luck Birdie and stay in touch i know how you and your husband feel in that you want this to end since i have had the same feelings,there is a chance i could be wrong but i think your husband has a good chance of getting past all of this.

birdiequeen's picture
birdiequeen
Posts: 329
Joined: Mar 2011

Thank you for sharing your experiance. My husband is building up his sick leave again. Its amazing how he pushes through bad days and gets through work.

Thank you again. Happy Holloween!

Limelife50's picture
Limelife50
Posts: 419
Joined: Nov 2011

I think the desire to be normal again as in the same person we were before we were dxed helps to give us the ambition we need to get through those tough days,stay in touch with all of us here Birdie also there are people here who are much more knowledgeable than myself and i think your husband will gain more strength as time moves on.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network