Oct 27, 2012 - 11:59 pm
I went to cancer.org to find links for the information they provide on cancer in general, and specifically breastcancer. I like some parts, but overall, I don't like how it is set up. I liked it when they had the basic of cancer a part of breast cancer. I don't think it is user friendly.
AND THEY HAVE MADE IT EXTREMELY DIFFICULT TO FIND INFORMATION ON NEUROPATHY FROM SURGERY,CHEMO,AND RADS, POST MASTECTOMY PAIN SYNDROME!!!!
I was totally lost in pain, not knowing it was NOT normal to have the amount of pain I had until I talked with a wonderful lady at the other end of the ACS 1-800 number. I printed out that information. SO many of us have pain after treatments, and I think ACS did a real disservice by either omitting or burying that information. I have not found information describing the symptoms of nerve damage pain (burning,zaps, hypersensitivity, etc), scar tissue adhesions for mastectomies. That information should be provided and easy to find.
I like the how the information is presented at breastcancer.org.
Although, there are some good parts, overall, I think what they changed stinks. There is so much written under headings, I find that trying to find the info I want is buried. New people especially, are usually full of anxiety, stressed out, scatter-brained. Info should be easy to find.