I havent been on here as much lately and wanted to reaquaint myself. I see so many new members and I want to update the sisters I know.
For the newbies let me share my story.
After 14 months of abdominal pain and severe constipation I was diagnosed just over 2 years ago with 3c Primary Peritoneal Cancer which came from an ovarian cell and is treated just like Ovarian cancer. I had 4 treatments of Carbo and then robotic surgery where the cancer seemed to be only on the bowel although the omentum was gone. The chemo had killed most of it. Then I had 6 more treatments of carbo/taxol. During my 9 month remission I took part in the CVAC vaccine trial but 7 injections out of 10 into it my cancer returned. I also had tested positive for BRCA 2 and had bilateral mastectomies.
I started on Doxil to keep the cancer at bay but 4-5 months into it the cancer seemed to be growing. We determined CT scans were not helpful in my diagnosis. They kept telling me it was an ileus. My Ca-125 was going slowly up though. And my symptoms of abdominal pain, severe constipation and weight loss were back. That was this summer (after vacation in Hawaii!)
I have now had 2 treatments of Carbo which I have to have in the hospital over 24 hours as I am allergic to it. My Ca-125 is back to 17!!!!!! Now the Dr says I only have to have 3 more carbo treatments. I am elated as he first eluded to "carbo for a very long time"!
I am finally starting to see that I can live my life in spite of the hiccups that come.
Good luck to all of you and feel free to ask me questions anytime.