I'm a 45 year old female, recently diagnosed (Sept 19, 2012) with squamous cell carcinoma, anal cancer. I, like many others apparently was told by my family doctor my pain and discomfort were likely a hemmoroid. After a bleeding spell, I insisted on a colonscopy which revealed the tumor. 3 cms or T2. My PET shows no spread, totally localized. My treatment plan in 2-96 hours chemo and 30 radiation treatments (M-F, 6 weeks). The chemo is MIT and pump of 5FU for 96 hours, first week and last.
The radiation burns is where my fear lies and the scarring afterwards I suppose. I'm reading some of these posts about the process, the pain and the oozing of fluids then I read people who work the whole time and call it a "sunburn". I'm totally trusting in the Lord for the mildest route. I'm praying for others listed here that are currently experiencing this horrible things.
A couple of questions:
* What is the recommended lotion/cream/ointment to use to keep my skin hydrated? Someone said if I start early on during treatment that it will help as I near the end.
* So, the worst is after treatment ends? The next week maybe? Should I expect to need help during that time? My husband works but can take off if needed. I'm taking FMLA just so I can totally focus on healing and recovery.
* I'm also concerned about the pain meds. I've never been one to take meds unless I absolutely had too. I don't want to end up addicted to anything either (never have been, never want to be).
I have a good support system around me. My husband is the greatest though we've never faced anything like this before. I'm not a good patient normally and he has a weak stomach. So this might get interesting. My mom is nearby and she is a nurse but I really don't want to lean on her because of the stress it would add to her. I'm very independent and the thought so "helplessnesS" or being "out of control" of this, freaks me out. Not to mention, this is just a horrible area to be dealing with. I'm like someone said in another post. I will probably avoid eating just so I don't have to pass it.
Ok..well, thanks for any feedback and prayers too. My name is Genevia from TN. God bless..