Oct 24, 2012 - 7:14 pm
Hello All! Just checking in, it's been a while. I've had computer problems, ugh! Anyway just wondering if any of you out there have been effected by Lhermitte's syndrome? I'm wondering how long it lasts? For those of you that are unaware of this crazy thing it is a sort of an electrical shock that goes down your back and legs all the way down to your toes each time you bend your neck and head forward. Onc said it's another gift from radiation. The way I understand it, the muscles in the cervical area become a bit hardened and compress the nerves in that area causing the zapped numbing feeling I get each time I look down. It's not pleasant but not painful either. I just have to be careful that my legs don't give out on me. It started at about 4 months post treatment and as per my onc that is right on time. So I'm wondering if anyone else has had this.