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Tired Of Fealing Bad

Dav1965
Posts: 122
Joined: Apr 2011
Oct 23, 2012 - 10:28 am

I had stage 4 tongue cancer in 2010 They replaced about 7/8 of my tongue with my thigh and all the tissue in my mouth from the tongue down. I also had a double neck dissection with cancer in 38 lymph nodes. I had cisplatin for chemo and radiation. I had 76 grey radiation.

Now on to 2012 my jaw still hurts from radiation eating my left jaw bone. Plus radiation made a cyst in my left jaw bone. My ears ring all day every day. Radiation killed my salava gland and my thyroid gland. I only swallow now when i think about it.

I take 30 mg of morphine in the mourning and night along with 6 oxycodones a day. I have crazy pain in my feet, hands, jaw, and my knees.

Any ideas on anything i can do to feel better i am tired of hurting every single day.

Thanks David
Hard12Find
Posts: 171
 Joined: Sep 2012
Oct 23, 2012 - 12:17 pm
Dav

Can'y really offer any suggestions on pain, sounds like you really had a rough go round with the beast. I will be glad to put you on a prayer list if you would like....sounds like you could use a miricle right now. I can relate to being tired of the beast...tired of dr's appointments, ringing in my ears, nausea, fatigue , feeding myself a liquid diet through a tube. no two ways about this HN cancer really sucks. Try to keep your spirits up, and work with your medical dr on pain management options. Have you tried any naturopathic releif like accupuncture etc?? Just a thought...
Jim
Hard12Find
Posts: 171
 Joined: Sep 2012
Oct 23, 2012 - 12:17 pm
Dav

Can'y really offer any suggestions on pain, sounds like you really had a rough go round with the beast. I will be glad to put you on a prayer list if you would like....sounds like you could use a miricle right now. I can relate to being tired of the beast...tired of dr's appointments, ringing in my ears, nausea, fatigue , feeding myself a liquid diet through a tube. no two ways about this HN cancer really sucks. Try to keep your spirits up, and work with your medical dr on pain management options. Have you tried any naturopathic releif like accupuncture etc?? Just a thought...
Jim
longtermsurvivor's picture
longtermsurvivor
Posts: 1457
 Joined: Mar 2010
Oct 23, 2012 - 1:10 pm
the pain can be managed

but it needs adressed very specifically. it may require referral to a pain specialist. you also might PM Hondo. He deals with many if the same issues as you do. He is often around, but I havent seen him post for a day or two.

Pat
katenorwood
Posts: 1393
 Joined: May 2012
Oct 23, 2012 - 2:13 pm
Pain management

David,
I am so sorry you're going through all of this ! But I am an avocate of pain control period. If we don't control it, it controls us. Please check into this asap...and keep us posted on how you're doing. Katie
dales2loud's picture
dales2loud
Posts: 41
 Joined: Sep 2011
Oct 23, 2012 - 6:43 pm
Dang

You have been through the ringer and back, my heart goes out to you. If I had a Majic pill I would give it to you, but all I have is prayer to offer.
I hope you start feeling better soon.

Dale Wilkes
josh r.
Posts: 103
 Joined: Oct 2010
Oct 23, 2012 - 11:24 pm
painful

Hi Dave,
I am sorry for your terrible situation and I do not have medical answers for you, or any answers at all for your pain. I am a 20 plus year servivor of stage iv throat cancer that has never approached what you have describe and I can only pray for you and let you know that I and so many are in your "corner' through your fight. God Bless, Josh r.

Pam M's picture
Pam M
Posts: 2182
 Joined: Nov 2009
Oct 24, 2012 - 2:14 am
Wow

From time to time when I'm feeling sorry for myself, I see a post from someone like you - and it puts my minor complaints in perspective.

I would go for broke - if I could meet up with a pain specialist AND a naturopath, I'd do both. I hope you find someone/something that can help ease your burden.
Tim6003's picture
Tim6003
Posts: 1419
 Joined: Nov 2011
Oct 25, 2012 - 12:37 am
Hurts to read a post such as your David

...I have not been in a long term situation of pain such as your...on 6-7 Narco a day and 2 fentynal patches. I would assume you have tried Fentynal Patches? My pharmicist sugested I try Ultram while I was taking the Narco bc I complained about how the Narco made me feel so blah and only kept the pain at bay a short period....After taking Ultram I could get away with 1 for every 6-7 hours and not feel that crappy feeling I got with the Narco...and the Fentynal I hear ( no doctor disclaimer) is much stronger than morphine....anyway...I was hesitant to share thinking you probably have t