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2nd opinion questions ?

KatMat
Posts: 62
Joined: Jul 2012

I'm sending MD Anderson and John Hopkins requests for 2nd opinions on my husbands Large Diffuse BCell which seems reluctatant to go away or be under control after 3 R-ICE treatments.

My mind is fried lately so other than asking if there are any additional chemotherapies or radiation options (he did not get radiation) are there any other questions I should ask?

I appreciate your response.

Katie

jimwins's picture
jimwins
Posts: 1545
Joined: Aug 2011

Hi Katie,

I'm sorry your husband is not responding to chemo.
I can't think of much more you should ask other than
what options are available and if there are any clinical
trials worth considering, etc. Stem Cell Transplant might
be a consideration. There might be options with "alternative"
or eastern medicine but I have very little knowledge of those.

I don't recall where your husband's primary cancer is.
I read from your profile that it was CLL that transformed into
DLBL.

I'm sorry I couldn't be of much more help. I hope you find
options and things turn around for you guys. You're in my thoughts.

Big hugs,

Jim

KatMat
Posts: 62
Joined: Jul 2012

My hubby was one day away from a stem cell transplant when his PET scan results came back not good. His primary cancer was the CLL but that changed to the lymphoma which is the problem right now. Sloan Kettering will review his records informally for me and get back to me this week so that is good.

I have MD Anderson and Johns Hopkins ready to go. Just waiting for his Doc's signature and his Doc is out of the office. Hmph.

I inquired about alternative chemo's, radiation, clinical trials. I have to believe someone has another idea!