Oct 20, 2012 - 11:30 am
Well, the news wasn't good, and I have failed R-CHOP and the cancer has still grown despite treatment. Though, it is still much smaller than my first PET scan! I'm going to take that as a great sign!
Problems. Problems... I have to make a choice now, and it's a bit confounded. Of course, we have to act fast... but there's a problem in the data that bothers me. Let me explain:
Doctor doesn't know what stage I was in to begin with - On my initial PET scan, my liver was gigantic and I had a spot in my lungs. Add in B symptoms, and I was stage IIIB-E.(Extranodal) Fast forward to now, and the spot in the lung is gone.. he thinks I could have been stage IB-E. He is unsure what stage I am.. now isn't that weird?
Because of this, he thinks that instead of doing a stem cell transplant, we might be able to get away with radiation and being done with it. I'm torn, because it sounds like an easier route.. but I'm not convinced that I was a stage one. I'm worried that the localized radiotherapy will only kill that spot on the liver, and other areas will grow right back. Then, at that point, my health might have deteriorated too much for an SCT?
I'm keeping an open mind.. and seeing a radiotherapist on Monday for a consult. I'm also going to call around and see if I can also find another opinion. Things have to happen fast.. as I'm supposed to be doing something.. chemo or radiation within a week due to the pace of growth.
Any opinions of this fine cancer family would be welcome. Has anyone else experienced such a strange reconfiguration of their staging?