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mjohn811
Posts: 2
Joined: Oct 2012

Hello everyone I am new to this website. I was diagnosed with stage 2 to 3 breast cancer in April since then I have 8 rounds of Chemo then on 9/28/12 I had a Bilatteral double mascetomy with reconstructive surgery. I have expanders in right now then after radiation they will fill them and stretch my skin then after that they will take those out and put in my implants then hopefully will be all finished. The only thing now that has me worried is before surgery they told me that I only had cancer in my left breast so they took out 7 lymphnoids and they all came back negative. But I ended up having cancer in my right breast as well and now they might want to go back in and take some lymphnoids from my right side all my tests that I had done before surgery showed no cancer in my right breast even my pet scan has this happened to anyone else? And if so what did you end up doing?

Thank-you
MJ

rallendorfer
Posts: 245
Joined: May 2012

the thread about triple negative breast cancer that sounded similar to what you experienced with the lymph nodes, but I am not sure. Just wanted to help you out. Wish I could help more. How frustrating for them to come back at you with the other side after the tests showed nothing. It sounds like you have come through a lot already!

I hope someone else can give you some insight. You deserve some rest.
Kay

mjohn811
Posts: 2
Joined: Oct 2012

Thank-You for your replys. I go to my Oncologist today so hopefully she will be able to give me some insight on what we need to do next. I'm just trying to stay strong and get through all of this. I will keep you updated.

MJ

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Welcoming you to the board too. When do you see your onco? I really don't know what to tell you, but, your doctor will be able to answer your questions. Write down what you want to know, so, you don't forget to ask anything. Come back and let us know.

hugs, angie

mom62
Posts: 600
Joined: Mar 2004

MJ,

I haven't had this experience but wanted to welcome you to the boards. I'm sure there has to be someone out there who has had this experience. I hope the rest of your treatment goes well.

Terry

Kat11's picture
Kat11
Posts: 1931
Joined: May 2009

Just wanted to welcome you !

disneyfan2008
Posts: 5385
Joined: Oct 2010

MJ:

welcome...

Denise

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

Welcome. This is not where any of us want to be, but you will find this to be a wonderful group. I get so much support and love here, I hope you find it to be the same.

We're all different, so your docs may recommend a completely different treatment even if your dx and story is the same as someone else...I would consider/ask for an ultrasound and/or biopsy of those right lypmh nodes if your doc hasn't already done it. BTW, my doc doesn't do PET scans (except in conjunction with other tests) because they are so notoriously inaccurate...false positives, etc.

I also think it's better to know if anything is going on with those right lymph nodes...it will allow you and your docs to put together a treatment plan that will better allow you to beat this nasty disease. And you can always get a second opinion too.

Best wishes with this decision, and I hope there is nothing in those right nodes!

Hugs,

Linda

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