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My breast is incredibly sore - still waiting for my biopsy result - meet with surgeon tomorrow -

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

Since my biopsy - my breast is getting incredibly sore and hard - hurts most of the time - even when I am sleeping it is waking me up - is this normal? It's all black and blue from the bleeding when they did the biopsy.

still waiting for my results which I get back tomorrow - but my other doctor says she got back some comments from doctor that did biopsy saying extemely suspicious - so I have gone from suspicious to extremely suspicious - still praying its just an infection or cyst. Has anyone had an infection or cyst like this?

I am supposed to be flying to Florida for 10 days in a few days time with my girlfriends - I am thinking positive - but if it isn't how long does it take before they schedule you for a lumpectomy or similar surgery? hate to bail on my girlfriends as it was my idea to go on vacation - this was all well before this.

thanks for all your support!!

gagee
Posts: 327
Joined: Sep 2010

Can't offer any explanation but know I am praying for good results for you. Coming to this site has helped me a lot. I had lumpectomy in Aug. 2010. Doing okay so far. Try to keep busy until you see the doctor. Worry isn't going to help much. Wish I could help you more.

Hugs and Prayers to You,
Diana

Lynn Smith
Posts: 1265
Joined: Mar 2011

I have no idea what happened.My needle biopsy was simple.I didn't feel a thing and I believe 4 samples were taken.The only time I was told to expect something was when he took the biopsy.I might feel something but Felt nothing. I heard a slight noise like a click when the biopsy was taken.

I hope the results are good.Wish they could've got more samples.

Lynn Smith

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

yes it was the worst pain I have ever had - and I have had 2 C-Sections so wasn't expecting this from a biopsy - just wondered if anyone had had the same reaction - even doctor said he'd been doing it for over 20 years and was extremely rare - didn't offer much except saying I was extremely inflamed. Friday I find out results so the waiting continues. Im book to go on vacation on Monday so am not trying to think of much else - but its hard

Unhappy
Posts: 88
Joined: Dec 2012

I had what they called a needle biopsy it was painful and my breast turn black and blue.And got hard.

survivorbc09
Posts: 4378
Joined: Jun 2009

Praying for good results.

Hugs, Jan

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

thanks so much Diana for your good words - its been the hardest week of my life - my breast is black and blue and still hurts like crazy - meet with the surgeon on friday for results - scared but trying to think positive - I bought the book The Secret and it is helping to get me through this week

thanks again

Unhappy
Posts: 88
Joined: Dec 2012

Hoping and praying for you.

disneyfan2008
Posts: 5514
Joined: Oct 2010

so sorry you had to go through that...I have to have biospy next week (I am hoping to get it over with asap but must be off asprin 5 days)

I HOPE you are feeling better..

Do you know what kind of biopsy? I have been told their are two..but I am clue less.

Denise

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missrenee
Posts: 2137
Joined: Apr 2010

I had a wire-guided MRI biopsy because mine was so deep and close to the chest wall. Everyone said, once it's numb you won't feel a thing. Wrong. I guess because of my location, I have to admit, it hurt like holy hell. I had some bleeding as well. I had two nurses holding my hands, telling me to squeeze them. I squeezed so hard I thought I was going to break one's hand! I think everyone is different, but it's scary when you have something out of the "norm" happen. Anyway, I got through it.

Good luck to you and keep us posted.

Hugs, Renee

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

Mine isn't even that deep - as I can feel the large lump - so I was pretty surprised when it hurt so bad - I must have shook for an hour - breast still very sore and completely purple. Was your's benign?

My diabetes specialist just called me and I asked if they had my result back - as I meet with the surgeon on Friday to go over pathology report - but she said all she had was a report from the doctor who did the guided biopsy saying - extremely suspicious and that I hemoraged so he couldn't take anymore samples - soooo worried. pathology report still not in yet.

waiting is so hard - and keep positive even harder

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

no it was was a guided biopsy via ultrasound - although the ultrasound was pretty blurry at the hospital - I don't know how the doctor found the lump except by feeling it with his hand - waiting seems to be the hardest thing - as your mind goes through everthing - I rushed off this week and did my will, met with my accountant to sort out stuff - amazing how many loose ends you have - but figure I had to do all that anyway -

the biopsy snapped my lump so really don't have any idea what type it was - this is still all new to me

I'm still booked to fly out on monday morning for 10 days in florida - so trying to keep positive!

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Hoping that you will get good results Lola!

Hugs, Lex

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

malignant - mascetomy planned for Nov 19th - it has gone from 2 cm to 3cm in 2 weeks - its the lobule cancer - I am so upset - I kept thinking positive and I suppose I just wasn't expecting this - doctor did not sound optimistic - he just said it was the rare cancer - he said depends on whether lymph nodes are infected to know how bad it is he told me to go away and enjoy my vacation as it will be a long road ahead - worse part is telling my 3 kids, I have had health issues my whole life and always took it in stride - but never thought I would get this too - doesn't seem to matter how healthy you eat or exercise - things just happen - I am trying to stay positive - but this has knocked me right back - I hve to get positive soon - but I suppose the first day you are told you hve agressive breast cancer is the hardest - anyone out there that has had lobule cancer 3cm - any advice would be much appreciated! I have been have low back pain for 2 weeks and burning down my spine - did anyone experience this - or is it my mind playing tricks???

helps me please to understand how to take control of my body again - and oh by the way can I drink alcohol on vacation? as I was certainly planning on getting drunk at least one nite to forget this

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

I'm sorry that you got bad news Lola. Keep thinking positive and keep coming here for support.

Hugs, Lex

Unhappy
Posts: 88
Joined: Dec 2012

Give it to God he can help.I was crying every night until I turn it over to God.

disneyfan2008
Posts: 5514
Joined: Oct 2010

I just had my biopsy few hours ago..I am expecting to be black and blue..

I would go on trip no matter what...! IF I were you...I am sure week or two later wouldn't be big deal IF NEED surgery. I think more then ever need a vacation...!

I'll check back to see how you are doing.

Denise

roseann4
Posts: 994
Joined: Sep 2009

It's been almost 4 years since my diagnosis but I'll never forget the fear I had. Until they remove the tumor and check the nodes, they won't know everything. My surgeon was very non committal until the surgery. She said there was part od the tumor that looked aggressive in the biopsy. My tumor was 1.8 cm, estrogen receptive. Did they tell you about what your tumor is? Estrogen receptive, progesterone receptive, Her2 receptive, or triple negative. As it turned out, my nodes were negative. Still here!

Lots of survivors and thrives out there. Hugs and hope.

Roseann

roseann4
Posts: 994
Joined: Sep 2009

I love my wine but regular alcohol consumption is believed to increase recurrence for those of us with estrogen receptive bc. The liver processes toxins like alcohol first. So if it is kept busy eliminating alcohol, estrogen may not be removed from our blood stream effectively. My cancer needs estrogen to grow so it is not a good idea. Please ask your doctor about your situation.

Roseann

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

It seems to be growing quickly 3 cm and my surgeon responded very not committal too - my breast is very inflamed and very sore to touch - under my arm I am experiencing sharp pains, and my back is burning all the time right down my spine - I am so worried it is spreading - couldn't sleep at all last nite - so scared. The surgery is Nov 19th - seems a long way off - I wish it was next week - my husband is going to go to the doctors office monday to see if they can speed it up - I am ready to fly back in a heartbeat as I will have a hard time enjoying a vacation when you are thinking time is of the essence. I kind of think I have had this since March - my glands were swollen on my neck and I asked my doctor what was wrong with me - she said it was nothing to worry about as it is just my glands fighting an infection - back pain on and off for the last 2 months - but last 2 weeks its all the time - your words are a great help - thank you so much for responding to me as this is all new territory and very scary - I am not a chicken by no means - but this has really done a number on me - and I am so afraid. I won't dink while I am away - don't need to aggravate it more.

thanks so much!

lynn1950's picture
lynn1950
Posts: 2573
Joined: Jun 2008

Lola, It is hard not to feel panicky and let our minds go to the worst when so much is unknown. It is good that you are going on a trip while you wait for your surgery and more information. I say ask your doctor about the drinking. He or she may give you the go ahead for some drinks in moderation. You need to enjoy yourself...gather fuel for the fight ahead.

I was diagnosed with stage III lobular cancer 4 1/2 years ago. My tumor was 2.2 centimeters and some cancer was in my lymph nodes. I am doing fine today! xoxoxox Lynn

roseann4
Posts: 994
Joined: Sep 2009

He/she must not feel it is terribly aggressive. I have known women who had surgery right away because the doctor was concerned. Others started radiation or chemo to reduce the size prior to surgery. I would take the date of the surgery as a good sign. I also recommend getting a second opinion if you don't feel confident with what your doc is saying, doing, or how he/she communicates with you.

Try to enjoy today and not to let you imagination get control. Easier said than done. If you need something for anxiety, ask for it. There's not much more stressful than a cancer diagnosis!

Stay hopeful. Hugs.

Roseann

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

Unfortunately my husband piped up to the surgeon before they told me their plans on surgery that I was booked to fly to florida on the 29th and did I need to cancel - the doctor hesitated for a moment and said that by the time he does the blood work, booking mri and prepartory work - he wouldn't get a surgery date that fast - I would be fine to go away for 10 days as he would have to see when surgery could be booked - apparently these doctors only get 1 or 2 days a week surgery time - I am worried that his ratings on the net don't really specify him as a breast surgeon - but rather colonoscopy, comsmetic surgery and stomach reduction - banding - he seemed to know his stuff but was reluctant to take the whole breast but rather do a partial mascetomy - he said there is no difference in the outcome of a complete mascetomy and partial and I would heal faster from a partial. I have heard that this type of cancer often occurs in the other breast - and some say a bi laterial masectomy is a safer bet. When I am in Florida I plan on getting a second opinion - although I got no paperwork from the doctor here in Canada - not even a specific diagnosis - just wrote breast cancer left breast on pre surgery documents.

The two doctors I met for my assessment seemed very competant - but this is my life - and I suppose I need to get as much info as possible. I am going to try to get a copy of my cd ultrasound and mammogram from the hospital tomorrow - but it is sunday and the records office may be closed - but I shall try - don't have a copy of the biopsy results either.

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Thank you for all of your updates. You've had so much, way too much to deal with. Praying and hoping that you will soon be rid of your infection.

Hugs, Leeza

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Thank you for all of your updates. You've had so much, way too much to deal with. Praying and hoping that you will soon be rid of your infection.

Hugs, Leeza

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

I cried most of the morning - couldn't sleep a wink last nite - my husband who is a firefighter was working - while the guys were sleeping he was doing the same as me sitting on the net trying to find info - we were both doing the same thing at 3:30 am in the morning - as much as I know he is trying to keep strong he is afraid too - he lost is mother to breast cancer and his sister just recovered 2 years ago but her cancer was caught early - as she we worked in a hospital she got her mammogram, biopsy and results in 3 days - a far cry from waiting over a month to get to the stage I am at - very frustrating. Lynn did you have burning back pain? - it wakes me up at nite - I have low back pain and burning that goes up my spine - often just get sharp pains in the breast too - that takes your breath away? Is this normal. Did they do radiation and chemo after surgery or just radiation? Your words really help as you hve been there - I looked at the stats for survival and its seems lower than duct cancer? I just took the first surgeon that was available to do the surgery - as I didn't want to wait - is this a mistake? he is a general surgeon - but doesn't seem at the hospital I am going to that they are breast specialists - just all seem to be general surgeons? thanks so much for your support

Busymom0413
Posts: 8
Joined: Sep 2012

Hey Lola7 sorry you are having to deal with this. I had bilaateral mastectomy November 17th last year with TE. I just had those taken out 3 weeks ago and doing great. I had no lymph node involvement. I only had a grade 1 stage 1 but it is still scary. I was lucky and did not need chemo. I take arimidex for the next 5 years. I too had alot of back pain and burning. I recently had a bone scan because I have been in pain all over my body and it was negative so please try to stay calm, I know it is difficult. I had the onco dx test also. There are many survivors with lobul. Is is LCIS? Try not to worry you will be fine. I cried for 2 days and threw up for those 2 days also. I realized that I would not be able to fight if my body was weak and not did not take care of myself. Hugs to you

jnl's picture
jnl
Posts: 3873
Joined: May 2009

I am so very sorry Lola that you're feeling like this and that you even have good reason to. Cancer sucks! I wish you the best and am sending you a really big hug!

Leeza

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

I'm so sorry Lola to read this news. I am glad that you will be able to still get away. Try to relax and have a good time. I know, easy to say, but, please try.

Prayers and hugs,

Noel

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Kylez
Posts: 3765
Joined: May 2009

Lots of hugs and prayers for you Lola, today and always!

disneyfan2008
Posts: 5514
Joined: Oct 2010

I had my biopsy friday am...Friday night i had to lay on my back..felt like someone used my chest (ONE SIDE) as punching bag..still achy but NOT painful 5 days later. I had multilpe mammos afterwards...since they couldnt' see the CHIP they put in-but it could be seen on ultra sound..

I HOPE you are feeling better now...

Just the waiting game to hear..as you know all too well

Denise

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Angie2U
Posts: 2993
Joined: Sep 2009

You're in my thoughts and prayers Lola.

Hugs, Angie

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VickiSam
Posts: 8501
Joined: Aug 2009

Sorry Lola for coming on the journey that none of us wanted to be on. Allow yourself time to absorb the information that is being given to you; take someone with you if possible to hear when you can't possibly absorb it all.

You will find many wonderful, caring, uplifting, funny, amazing people along the way. Put your seat belt on, raise your arms up, scream and go!!!!

But you will get through it. The waiting is really one of the hardest parts. Once you have a treatment plan in place, things will start to go a lot faster. We on this board know about the waiting and the myriad of emotions one goes through -- so let us wait with you. Post whenever you feel the urge and we'll keep you company.

I think at this point it is easy to get overwhelmed with all the new things happening in your life. It might help to take things one step and one day (sometimes even one hour) at a time. Get your results, talk to your doctor, give yourself some time to digest, etc. Please let us know later today if you feel up to it. We are here to support you.

I'm glad you have a plan of what to do next. It seems as if your doctors are on the ball. Usually getting the surgery done as soon as possible is a good idea. Invasive lobular carcinoma is a type of breast cancer that begins in the milk-producing glands (lobules) and then invades surrounding tissues. It accounts for 15-20 of all breast cancers. Most breast cancers are invasive ductal carcinomas. ILC tends to be larger at diagnosis (because it is less likely to show up on a mammogram), just facts that I have gathered
I am NOT a doctor! Please ask for literature, information, clinical trails pertaining
to your particular breast cancer...

If you are hesitant about anything, get a second opinion as soon as possible. I felt confident with my surgeon and knew I wanted the cancer out immediately, so I went ahead with surgery. I did get a second opinion when it came to chemotherapy. There is time for that later.

Anyway, you are well on your way, and I know it will be fine. We will be there for you every step of the way.

Strength, Courage and HOPE for a Cure.

Vicki Sam

survivorbc09
Posts: 4378
Joined: Jun 2009

Prayers, positive thoughts and hugs!

Jan

Silver_Mama's picture
Silver_Mama
Posts: 7
Joined: Nov 2012

I am new to CSN and to breast cancer. I have surgery scheduled for Friday 11/16/12 for "in situ" CA with immediate reconstruction after a total mastectomy, preserving all the skin and hopefully the nipple. The doctor said if I have a mastectomy rather than a lumpectomy, I will not need radiation or drug treatment and will have a much lower incidence of recurrence than I would have with the lumpectomy even WITH radiation. This seems like a no-brainer to me. I have chosen getting a DEIT flap rather than implant. What concerns me is not that he plans to further adjust the reconstruction about 3 months later but he also plans to move the nipple on the normal breast higher to match the reconstructed breast. I think this is what is called a breast lift. I think it is supposed to make you look younger, which is nice, but it will probably take away sensation in the normal breast which seems like yet another loss. Does anyone know what this will do, how it will feel after it heals? Maybe this is necessary to make the breasts match. Maybe you can't shape a flap to match a saggy, middle aged breast. Has anyone here had this done?

Pink Rose
Posts: 495
Joined: Nov 2012

I'm sending prayers for you Lola and for Silver Mama.

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

I always envied the Canadians for the free health care, but after reading what has happened to you, I don't anymore. I'm very sorry for this. You've put up with more than anyone should ever have to. I will keep you in my prayers and keep updating us.

Hugs, Diane

RozHopkins
Posts: 477
Joined: Dec 2010

I had infiltrating Lobular. Cancer both sides at different stages. Bilateral mastectomy. One one month and one the next. Yes this does TEND to appear in both afraid eventually. My tumor just seemed to pop up ours being cylinderical in shape and not picked up by mamos until formed.

We don't like to recommend as all different but I am very pleased I went with the double mastectomy. If I knew then what I know now even if cancer is not traceable in one side I would have had both done.

I am sticking my neck out and not sounding confident about you surgeon. Breast surgeons are the best but some general surgeons though good and perhaps do these ops many times, feel certain of his experience in this field. Tumor was around 2 cms I think and didn't have time to grow as operation sorted quickly. Estrogen positive. Chemo no radiation. I do not like the sound of all your pain and it should be looked at straight away if only to put your mind at rest.

Good idea to have a vacation before treatment however your results sound like they are taking a long time to come throgh and treatment too long to come. I should request another session with professionals to clarify things better.

Good luck and please let us know how you get on.

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

Thanks so much for your good words. It gives me peace of mind definitely!

Well it just doesn't seem to get better - I am trying to stay positive - I asked my surgeon if I could still fly as I was in so much pain breast and back pain - he said it was safe for me to go - if I was going for 3 months he would be worried but as it was just 10 days - he said I would be fine as it would take time to set up the surgery, pre surgery, mri and other tests. I asked him what my back pain was and he said it was nothing to worry about - most probably just stress. What a mistake that was - I ended up going to emergency on the Sunday evening just before my flight as my back pain was worse - the doctor in emerg ran a ct scan and chest x-ray all showed fine - he said the same think stress and nerves because of my recent diagnoses. He prescribed oxi for the pain.

So off I fly with my girlfriends on the monday morning - was in a lot of discomfort - so my girlfriend in Florida got me in to see a top cancer specialists - the following day! could not believe the service I got at the clinic - he examined me and said we needed to do an mri right away - so next day I got the mri done. Radiologist tells me it is very serious and I should not fly home - they will get the results to my florida doctor asap. Next day I call for the results - mri clinic won't release the results as they don't hve an original mamammogram and ultrasound to compare it to - so they call Canada to get them to courier the disk -

Pain got so bad I went to emergency in Cape Coral, Florida - they did tests immediately and tested my urine too - no Doctor in Canada did any testing. But I had to wait for results.

Canada is slow so by the time the disk is received I was in so much pain I decided to catch a flight back to Canada this past Monday - as I have no medical insurance in U.S.

The Doctor in florida called me on the Tuesday to advise me that I have a 9.3 x 3.3 x 4.5 cm tumor. The good news no enlarged lymph nodes are identified at that time. He told me that if I wished a double masectomy it would give me peace of mind and they would do it, but surgery should be done asap. Florida hospital also called me to tell me to get my urine tested again and something showed up.

I went to see my doctor in Canada without an appt - he didn't seem happy with me that I had had tests performed in the U.S. he said Doctors in the U.S. were all about the money and they just wanted me to spend more money on tests I didn't need - well I was scheduled for an mri in Canada Nov 6th ! - I just speeded the process up and good job I did as my surgery has now been bumped up to Nov 12th. My surgeon in Canada is refusing to do a full mastectomy he has changed the surgery to a full masectomy instead of a partial - duh! I knew I needed a full masectomy all along because of the pain and the lump was getting so big - he advised me cancer does not grow that fast. I have talked to 2 other doctors here in Canada but as I need immediate surgery they said do it now - don't lose my date of surgery - and later on they will remove the other breast to give me peace of mind - and to concentrate on getting better and hope the biopsy of the lymph nodes is good. Also I did get my urine tested in Canada when I got back and yes I have had a untreated kidney infection for the last 2 weeks which explains all the severe back pain I have had - no doctor in Canada ever tested my urine - they were focused on my state of mind and the cancer - and thought I was imagining the pain! All they wanted to do was prescribe pain killers - rather than trying to figure out what was causing the pain! Doesn't say much for the doctors up here.

Oh yes and I always thought Obama care would be good for the U.S. - but seriously if you are quite ill - its take a number and we shall get to you in Canada - you have to scream to be seen and you are treated like a second class citizen - no emphasis is put on degree of health issue. You can't put a value on your health.

Please keep me all in your prayers - it seems like a bad dream and I just want to wake up from it and it will all go away. No breast cancer runs in my family - but this is a sign of the times.

You are so lucky in the U.S. to have such amazing hospitals and doctors.

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Yes, I will be praying for you Lola. Unbelievable what happened to you! I think Obama care sucks, but, I have health insurance thru my husband's work and it is good!

Take care and keep us posted.

Leeza

lynn1950's picture
lynn1950
Posts: 2573
Joined: Jun 2008

to hear about all you have been through. I had a double mastectomy followed by chemo and radiation. I had cancer in 7 of 14 nodes. I know it does feel like a bad dream. Just take things one day at a time. You can do this.

survivorbc09
Posts: 4378
Joined: Jun 2009

I'm so sorry too Lola. You're in my thoughts and prayers.

Jan

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dthompson
Posts: 149
Joined: Nov 2012

Lola,
I am so sorry you had to go through this terrible thing. The most important thing is to get your treatment started. I know it seems like a bad dream, but I assure you things will begin to settle down in time. Have faith in god, and lean on those who love and support you and you will get through this. Have your doctors mentioned chemo after treatment? God bless !!

Dennis

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Everyone here is praying for you Lola. I know this isn't easy, but, you can do this!

Hugs, Kylez

Lola7's picture
Lola7
Posts: 18
Joined: Oct 2012

Surgery was an hour late - noon Monday Nov 12th - Operation went well considering the morphine didn't work after the surgery - it took the nurses about 45 minutes to put in a new iv line of morphine - felt like I had been kicked in the chest - extreme pain - it is absolutely the worst hospital to be in - my surgeon walked by twice in recovery room but never stopped by my bed to let me know how surgery went. Took 6 hours to recover in post op as I had been given too much morphine and my oxygen levels were too low. By the time I left recovery room it was 8pm - then they told me to get dressed and go home - couldn't believe it was day surgery for a full masectomy - boy these hospitals have cut down on services. I am a juvenille diabetic on an insulin pump so figured for safety they would keep me overnite - no such luck. I was told by the nurse that they would send a nurse to my home the following day to check on me - well seems that was incorrect too - we had to drive to a clinic to have the dressing changed at 7pm at nite - and then a rookie nurse did it - so it wasn't a treat for sure! She poked and prodded me unbelievable. As you can see I am no longer a fan of the Canadian medical system!

Next day had aches and pains in my legs and shortness of breath so I call the clinic - they tell me to go back to the hospital - so I had to sit for 8 hours in Emergency waiting to be seen by doctors - my dappler test showed 950 - so they were concerned as anything over 500 indicates possible blood clot - - so they tell me they will test me at 5:30 am in the morning - they tell me this after 8 hours of sitting in an Emergency Room - it was 2am and I was exhausted and sore - the nurse told me I could sit in a chair in the waiting room and sleep until they would send me for a CT Scan - very kind of them - they had 6 empty beds in Emerg but they wouldn't let me have a bed - just in case someone came in that needed it. Well I had had enough I left - was told if I left I would have to go through the whole process all over again and sit for another 7 to 8 hours. Free medical system for you! I couldn't care less went home - and in the morning the hospital calls me - they were looking for me for my tests - - lol - so my husband drives me back and they do the tests all ok - another 5 hours! - but I need to be watched in case of blood clots. Told to go to my GP on Friday to be followed in case of blood clots.

While I was waiting in the hospital for tests to be done - my husband spots my surgeon in the lobby - so he asks him how many lymph nodes did the surgeon remove - well the surgeon doesn't remember - I had the surgery on Monday afternoon and by Wednesday morning he can barely remember who I am! Doctor told me not to worry and he will have results Dec 5th - well that's 3 1/2 weeks from surgery - I told him that was too long to wait as it is very worriesome - so he said to go to his clerk in the Assessment Dept to try to move it up a week - but he only meets patients on Wednesday's and if my results of the lymph node biopsy are not in - in time - I will have to wait till Dec 5th - waiting again - I asked for a referral to an Oncologist to save time - but I can't get one until I have biopsy results of lymph nodes - that will be a few more weeks waiting! I asked the surgeon if he will let me know what stage the cancer is at and the next steps - and he said no - they no longer rate cancer in stages - they will just tell me the next step - talk about being left in the dark. I spent today trying to get referred to an Oncologist but no one will book an appt without pathology report of lymph nodes - at this rate I won't get chemo till February! Very frustrating! How long do you wait in the U.S. for chemo treatment after receiving the pathology results ????(they take minimum 2 weeks to get pathology report here - if you are lucky). Not only am I fighting cancer - I am fighting the beaurocratic Canadian medical system here! - A fight I just don't need right now!

PS - I am keeping positive and feel much better after having my breast removed - no more painful breast - doesn't bother me to see no breast - I think I am just relieved to have had the surgery - I think it bothers my husband though to see my breast like this - I didn't really want reconstructive surgery and the medical system sucks here I just don't trust the surgeons here.

survivorbc09
Posts: 4378
Joined: Jun 2009

I am speechless. I can't believe you went and still are going through all of this. This is awful Lola! I got my pathology report the next day after my lumpectomy. I didn't have chemo, so, I don't know how soon some of them started it. I started rads about 6 weeks after my lumpectomy.

I am so glad that we don't have the medical care you have there, no offense.

Just so sorry,

Jan

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Sending more prayers to you! And, I think you need a huge hug!

Hugs!

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

After reading all of this, I am speechless too. I do want to say that that I am wishing you good luck and that you will be in my prayers too.

Kylez

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Lola7
Posts: 18
Joined: Oct 2012

Suppose to have my staples removed today and drain taken out at the Clinic as no home care was ever provided - love the day surgery too! Well they can't remove the staples as it is infected - blistering - dark purple spots and swelling under my arm pit and down my side. Nurse tells me I am still draining too much liquid to remove and that I need to go on an IV drip asap with antibiotics - she faxes an order to my surgeon and tells me to go and see him right away. Well we drive over there and his secretary tells me that the first available appt is in December - she tells me to go to my GP - can't get an appt there so I go to a walk in clinic to see a Doctor. Wait an hour and a half - he looks and says its serious and I need to go to the hospital - which I hate to do as my last visit was 8 hours in a waiting room - but I go - I tell him I hate Emergency as they make you wait forever he agrees - but says that if he prescribes pills - antibiotics it will take 24-48 hours to start to work and that is too long in my condition as the infection can start to back up into my incision - he says I need an IV drip and he will write a note to Emergency that I need to be seen as a priority - I go to Emerg and I sit for 4 hours - by then the pain is so bad in my side and the swelling is getting worse - meanwhile they take sprains, cut fingers etc ahead of me - I eventually went to the nurse at the counter and rip off my bandage on my breast so she could see how bad it is - they send me in finally!! - Only 2 doctors in Emergency - he looks and says I need antibiotics but it isn't serious. I am swollen down to my waist - I can't put my left arm down - it is all puffy and numb - my arm is numb and fingers too - he asks me on a scale of one to ten if I can feel my fingers - I tell him its a 7 - he says its nothing to worry about then. I get a prescription and leave disgusted - I should have lied but I don't. I doubled up the dose as I am in so much pain and took some oxi to kill the pain. Needless to say I am going to see my surgeon first thing tomorrow morning.

Has anyone had an infection after surgery - I don't know what to do - Walk In Clinic Doc says its very serious and so did Clinical Nurse but Emergency says its nothing to worry about - who do I believe ? All I know is that my breast wall is painful and my side is all swollen, arm numb - just doesn't seem right.

I hate the Canadian medical system!!

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

An infection can be very serious Lola, so, please make sure you get medical care for it. If one doctor or ER doesn't help you, please go somewhere else. You need to be treated for this. Keep us updated.

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Let us know what your surgeon says this morning. Good luck!

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