Oct 18, 2012 - 7:38 am
Thought I would update people on my progress. Am now a month postop from the hemipelvectomy and pelvic clearance for the recurrence of rectal cancer. Am now at the point where I am planing for discharge on Monday. Attended my discharge planning meeting today and is all coming together well. Am getting pretty mobile on crutches though sitting remains a challenge due to pain and balance. Can do an hour in the wheelchair now though which is an improvement. Managing my colostomy and urostomy okay enough to feel confident can cope with them at home. Follow up will include initially coming back by ambulance twice a week for physio as well as stoma care with nurses coming in at home to do wound dressing. Leg wound a little problematic and requiring vacuum dressing so still attached to a pump for that which is a pain but hope will only be a couple more weeks of that.
Overall considering they said I would be in hospital for between 4 and 40 weeks am pleased with progress(vagueness of plan simply reflected their never having done this and risk of complications- in denmark where they had Boone twelve of these average stay was three months but many were old patients). A little anxious about the transition but that has been eased by the high level of planning and coordination that has gone into my care- even met a hospital manager and finance person yesterday who wanted to meet the patient behind all their meetings. Stair lift and wet room almost done at home and ramp for front door being finished this weekend.
All in all going well and just hope continues in this vein. Long recovery to do yet but will be pleased to be back in own surroundings.
Thanks for all the up port and messages which have helped through this time,