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Teeth

Kent Cass's picture
Kent Cass
Posts: 1748
Joined: Nov 2009

I went to the Dentist today for a cleaning, and mentioned that I'd noticed part of a problem tooth appeared to be gone. Yep- another Crown at $957 is in the works! And they're talking about the need for 3 more Crowns! Yikes! I did some figuring awhile back, and by my count this next Crown is gonna put me up to the $8-9K area, out of pocket since diagnosoed, and that hurts.

IT TRULY DOES HAVE ME WONDERING IF I SHOULD GET MY TEETH PULLED, and need some help with suggestions. I already have 6 Crowns and a Bridge, and below the Crowns are stubs the Crowns fit over. Crown is supposed to happen on 11/7, so I got a little time.

Should I consult with an Oral Surgeon? .

Think another new issue came out with the cleaning, and sensitivity under a different Crown when it was being scraped. Being 3 1/2-years out, any known complications still in play with an Op getting them all yanked? NPC, loss of gum tissue is still evident.

Of note, this was the turf Delnative woulda been able to help with in a major way, God rest his Soul. Gone, but not forgotten...Any suggestions for me?

kcass

Greend's picture
Greend
Posts: 679
Joined: Feb 2010

Doc told me "no way" do I want to pull teeth unless I want to risk losing my jaw following rads. I know it is frustrating and expensive.

Good luck.

Denny

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

my .....Doc told me "no way" do I want to pull teeth unless I want to risk losing my jaw following rads. I know it is frustrating and expensive.

this was the oral surgeon, the meeting with dentist prior to this was same but not in exact words

i know for me, when i added the waterpic two years ago with as hot of water than i can handle has made a night and day difference. i did this it was not suggested by anyone nor by dentist or hygienist. the last two both have said they have seen a huge positive effect.

i to waterpic, floss, brush with sonicare tooth brush with bioteen gel toothpaste and fluoride treatments 3 times a day,

waterpic also has soothed the gums beyond discription

out of pocket i have 60-70,000 $ in oral care

katenorwood
Posts: 1863
Joined: May 2012

Kent,
I would check with an oral surgeon that is knowlegable. Weigh your options and costs. Tooth extraction isn't cheap (depending on how many) and dentures ran me around 3000 out of pocket. Good luck, and remember to ask about HBO if needed for healing if this is still an issue. Katie

pascotty's picture
pascotty
Posts: 166
Joined: Aug 2010

I've just had 6 front top teeth had porcelains put over them cause my teeth have gone dark gappy and they all ache since treatment. The out of pocket so far for teeth has been $7500 and not happy. Out of pocket for tx was $12000. Cancer is not only devastating but expensive :(.

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

"priceless"

:-)

john

pascotty's picture
pascotty
Posts: 166
Joined: Aug 2010

I've just had 6 front top teeth had porcelains put over them cause my teeth have gone dark gappy and they all ache since treatment. The out of pocket so far for teeth has been $7500 and not happy. Out of pocket for tx was $12000. Cancer is not only devastating but expensive :(.

D Lewis's picture
D Lewis
Posts: 1547
Joined: Jan 2010

Kent

My dentist is pretty insistent that its always better to keep what you have in the way of teeth. I figure the effects of radiation on the jawbone and the impaired circulation don't much improve over time. You may be getting yourself into an even bigger and more expensive problem by trying to do multiple extractions.

Here's hoping for a good resolution to this problem. At this point, I believe I have more crowns than intact teeth.

Deb

jtl's picture
jtl
Posts: 422
Joined: Sep 2011

One of these days I plan to get some crowns replaced and a bridge. When I do I am going to go either to Mexico or Costa Rica, the later being more desirable but also more expensive. When I last checked crowns were $350 in Costa Rica and $175 in Mexico. For the Mexico clinic you stay in El Paso and they send a car to pick you up and take you across the border. They have a real assembly line going. I was told they can easily do 8-10 crowns in one day, have the crown ready the next day for a fitting and the third day is to do the finishing touches and permanently install them. I know people who have been to both places and they were completely satisfied with the end results.
John

alligatorpointer's picture
alligatorpointer
Posts: 131
Joined: Jul 2012

Went there in June. Very pleased with quality and prices. Algodones is a very safe border town just 7 miles west of Yuma, AZ which exists primarily to provide affordable, high quality medical services to American retirees...dental, eyeglasses, hearing aids, pharmacies.  There is lovely, clean lodging available at Hacienda Algodones which is only a couple of blocks away from the dental clinic. Google Algodenes and you can find out more about the town and even see it via Google Maps streetview. You can look at the website for Tracey's Dental at: www.traceysdental.com

 

titalie
Posts: 3
Joined: Nov 2012

I'm confused on this thread? If you have had cancer and used radiation of the mouth for treatment you have damaged much of the jawbone and teeth and gums. What this means is that if you have any teeth extraction or implants you are risking getting osteonecrosis which is a horrible condition (google it) and has no guaranteed cure and can result in losing your lower jawbone and needing a transplant. Bottom line DO NOT EXTRACT TEETH, HAVE GUM OR BONE SURGERY OR GET AN IMPLANT UNLESS YOU DISCUSS WITH DENTAL ONCOLOGIST, A RADIOLOGIST, MAXILLOFACIAL SURGEON,PERIODONTIST AND DENTIST! THIS IS VERY SERIOUS!!!!! And for God sakes if you decide to do any of this work don't go overseas to save a buck because it may cost you your life not to mention pain and suffering.

fairydust
Posts: 2
Joined: Nov 2012

I totally agree I have spoken to my dentist about implants ect., I had tongue cancer and 22 radiation treatments. I was told before any type of surgery for gums, teeth ect., you should go get treatments like the divers do before taking a dive in the ocean. It causes a regeneration of your cells in your gums which have been damaged from radiation/chemo. Without such treatments you would be putting your gums into grave danger of 0teonecrosis which would be life threatening and a horribly painful. I hope I have helped someone those treatments can be sought through hospitals and other resources.

fairydust
Posts: 2
Joined: Nov 2012

I totally agree I have spoken to my dentist about implants ect., I had tongue cancer and 22 radiation treatments. I was told before any type of surgery for gums, teeth ect., you should go get treatments like the divers do before taking a dive in the ocean. It causes a regeneration of your cells in your gums which have been damaged from radiation/chemo. Without such treatments you would be putting your gums into grave danger of 0teonecrosis which would be life threatening and a horribly painful. I hope I have helped someone those treatments can be sought through hospitals and other resources.

George_Baltimore's picture
George_Baltimore
Posts: 303
Joined: Jun 2009

I had 120 dives in HBO and I still ended up with osteoradionecrosis. And, I had no oral surgery. My gum just started opening one day and that was it so don't feel that if you do the HBO dives that that will keep you from ORN.

couldbeworse
Posts: 1
Joined: Mar 2013

I'm trying to help my husband.  He had a tumor removed from under his tongue 41/2 years ago followed by radiation.  His teeth were in terrible shape before the cancer and now they are falling out.  He's been using floride treatments and biotene but one by one, they fall out.  He's lost almost all of the teeth on one side of his lower jaw and a few more are getting ready to go.  His oral surgeon is not an oncologist and I don't think he can recommend one.  To top it off, we don't have health or dental insurance and I'm out of work now.  Feeling overwhelmed and would appreciate some level headed advice about next steps.  Thanks so much in advance. 

donfoo's picture
donfoo
Posts: 1329
Joined: Dec 2012

Hi,

Without health or dental insurance current, there is no help or solution along that path. Since your income is quite low now, try your county public heatlh department. Maybe they have a program to get you some coverage, at least on the health side. Dental coverage for even those with insurance is a bit dodgy when it comes to claims associated with prior cancer treatment. 

It seems like he has lost quite a few teeth already and a few more ready to go. If most are gone, then you are looking at dentures or implants. Again, insurance typically will only offer dentures and not cover implants, if this even medically feasible. Getting the remainig teeth pulled does not sound like a major cost, given the weakened state of them but I do not this for fact at all. Maybe you can find dental providers who work on slide or will take payments to get the extractions and dentures made and fitted.

 

Good lick,

don

corleone's picture
corleone
Posts: 173
Joined: Jul 2012

You should check first with a knowledgeable oral surgeon, because the risk of osteoradionecrosis (of the mandible) after radiation treatment, seems to be increased for the rest of our lives.

hwt's picture
hwt
Posts: 2008
Joined: Jun 2012

I have met with a reconstructive dental surgeon at the hospital and I think their decision is to pull the remaining teeth on the bottom and do total implants, however, none of this can be done until I spend a month doing daily tx in the hyperbaric pressure chamber. That can't begin until 6 mos. from my last rad/chemo tx. I'm looking at Mid-Nov to get started. Because the teeth were extracted to reconstruct my jaw (cancer of the mandible) I am praying my health insurance is going to pick up the bill...to-date, they have paid the dental surgeon so I am optimistic. I think the purpose of the HBOT is to get a good blood flow and make certain dental procedures are successful. Would hate to spend so much and have something fail. I was always a believer in trying to keep what God gave me. I guess we need to rely on the professionals at this stage.

George_Baltimore's picture
George_Baltimore
Posts: 303
Joined: Jun 2009

When I was diagnosed in 2004 with BOT, I had 16 of my own teeth in my mouth. I was advised by both oral surgeon and cancer docs to have them pulled since they were not in great shape. The professionals were afraid I would end up with osteonecrosis from the radiation. I had them pulled and still ended up with osteonecrosis and now, I only have half a jawbone. Anything can happen. My opinion: that's an awful lot of money to spend when you might end up losing them a year or two or three from now. Good luck with whatever you decide!

Mikemetz's picture
Mikemetz
Posts: 355
Joined: Nov 2011

I've had a total of 50 HBO treatments and can honestly say that I've felt nothing that justifies my time and my insurance company's billings for them. I was tremendously fatigued by them and in the end thought they were useless.

Mike

Kent Cass's picture
Kent Cass
Posts: 1748
Joined: Nov 2009

Had my ENT appointment yesterday (CT was clean), and got into a discussion with him on the rads and mouth. He advised to get the Crown(s) and keep the teeth as long as possible- due to the effects of the rads and my age in regards to the jaws and gums. Literally said I will get more of a Kingdom in my mouth with all the Crowns! Just about the best ENT visit I've had with him, all things considered. Did not, but shoulda, pointed out to him that he agrees with a bunch of experts on this matter- YOU, who have posted on this thread. Thanks, all.

kcass

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Kent

Hey I've always heard watching the Cubbies is the same as getting your teeth pulled - kidding ya Bro' (ah, maybe not)

Greg

Crazymom's picture
Crazymom
Posts: 318
Joined: Nov 2011

Very expensive. I had crowns on 5 teeth after the rads. Now he wants to replace bridge I had put in 30 years ago. The crowns were $7,000 and now the bridge will be another $7,000. I am waiting until Jan 1 for the bridge work as my insurance will pay $2,000. There really is no choice. I am going to try the water pick. I already have the flouride tray and supposedly I should be fine after the bridge is fixed. Ann

backachedp
Posts: 124
Joined: Oct 2009

Unfortunatly my Husband had alot of work done on his Teeth and ended up with NONE....:( All that money and time and healing for nothing he was told 2 months for all to heal then Dentures we have had th Dr's send letters to the Insurance Company saying this is all Medical related aand should be covered by Medical not Dental....so he has had no teeth the last six were taken out 3 weeks ago. He went in for CT Scan last Friday a week ago and comes home and tells me he had/has some Lung Infection....next day a Pulminary Dr called and he has several Appt's comming up....he always had a spot that lit up on his Lung but they said it was Mississippi Spore...I am in the dark as to what is going on he has always been very quiet about the whole ordeal....praying it is not Lung Cancer...I wish he would just tell me what is going on instead of bit's and pieces each day and the story different a bit each day....I guess I am venting and sorry for that the whole thing just....well I feel left in the dark. He has had clean Scans since May 23 2010. I did go to the ENT with him and he said 90% chance it won't come back after 2 years. But now the worry about this Pulinary Dr issue...maay everyone have a great weekend and I will try and put this out of my mind until I know the fact's. It is hard to do that though and thank you to everyone here who I could always turn to aand knew something before it would happen. Hopefully everything will be ok for all...:)

aprilsun
Posts: 3
Joined: Nov 2012

Hi to everyone. I'm new here and eager for all info you can give as well as the opportunity to share and vent. My 26 year old son (physically disabled) was diagnosed with stage IVb SCC (base of tongue, floor of mouth and bilateral lymph nodes). He's at number 28 of 35 rads and has had 4 cisplatin chemos. The situation has improved immensely and he's coping remarkably well with the rad side effects (much better than anyone would have believed)

They've told me to keep an eye on his teeth and I've been looking for some fluoride rinses or similar but we live in Italy and I can't find anything here that can be bought over the counter.

Coulòd anyone give me a brand name or tell me if/where I can buy some online??

SASH's picture
SASH
Posts: 284
Joined: Apr 2006

Here in the States there are several mouth rinses over the counter that contain fluoride. One is ACT, there are several versions of this most are Alcohol free and there is even one version for dry mouth. Another one here is Crest Pro Health with Fluoride. I don't like this one as much as it tends to have a staining agent in the formulation. So while it helps protect with the fluoride, it can stain the teeth including between them.

Before using any over the counter product, check with doctors to make sure it isn't going to interfere in treatment or even after care.

Kent Cass's picture
Kent Cass
Posts: 1748
Joined: Nov 2009

Have four more teeth on the agenda to start dealing with on 12/12- rebuild the tops on all four of them. Cha-ching, cha-ching= all four of these teeth have needed work for some time, but only now has Christmas come into the sights of my Dentist, and the need for...cha-ching. Mouth will be better for it, though, so I am not complaining.

kcass

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