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Sirod

camul's picture
camul
Posts: 2034
Joined: Dec 2010

Thank you for the information. Actually, I do read all of your posts and have learned a lot from you. I realize thatbafter so many years of going through this you are very informed and you have been very helpful. I hope you keep posting, as your knowledge is helpfulnfor all of us.

Thanks again for the info.
Carol

New Flower
Posts: 3980
Joined: Aug 2009

Doris
I know it has been long hard jorney for you.
Often we do not want to know the truth being on denial is easy and should allowed and respected. It is a personal choice and coping tool.
Yes in fact your knowledge has helped many.
Thank you

heart-in-hand
Posts: 92
Joined: Sep 2012

Don't go away. This is too hard to do without encouragement. We are just imperfect people trying to help when our hearts are strong enough and reaching out for help when our strength is gone. I hope that you will post again real soon.

Hugs,
Kay

VickiSam's picture
VickiSam
Posts: 8250
Joined: Aug 2009

We miss you .. and value your input --- We are family, and miss you, your posting
and valuable input.

Strong WARRIOR .. please come back to us.

Vicki Sam

CypressCynthia's picture
CypressCynthia
Posts: 3954
Joined: Oct 2009

Doris, you must come back! I can't be the only "old timer" on this board. You have a unique voice and, although we don't always agree, I respect your opinions and you have me exploring new avenues of thought.

Attygirl's picture
Attygirl
Posts: 121
Joined: Jun 2012

but please don't go. We value you and care about you.

Bella Luna's picture
Bella Luna
Posts: 1571
Joined: Aug 2009

SIROD... I do hope you stay on as your presence and knowledge are needed and wanted. Please stay and continue to walk( journey) with us.

tufi000's picture
tufi000
Posts: 437
Joined: Jun 2005

Perhaps you do not realize how much your depth and knowledge and perspective and priorities are so helpful to us here. For me, and you know my crappy attitude, I have a tremendous amount of respect for your posts because they clarify and inform us for the real world without emotional embellishments that can keep us in the dark dark holes we fall in to.

YOU are so need here, and that is a selfish, pure and sincere statement girl! Like Cynthia, we have reaped the rewards of you for years and do not want to lose it.

You are a very special woman. I understand that you must do what is good for you, but I can try to make it difficult!

Take care,
Sherry

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

I don't know what happened, but we loose so many to complications of this nasty disease or to the cancer itself. I just cant stand it if we loose someone to a little tension and disagreement. Especially when that someone has so much to share and give to the rest of us. Please stay with us Doris.

Hugs,

Linda

tufi000's picture
tufi000
Posts: 437
Joined: Jun 2005

The post about BC awareness month
Doris got blasted for her thoroughness, intelligence, and clarity. When faced with a wall of ignorance all the hugs and sweetie-pie BS does not help the discouragement she must feel.
I read what some of the peeps here said to her and I do not blame her for retreating. Having taken a hiatus from this site myself and a partial one right now as a matter of fact, I totally understand why she feels she has better things to do with her time.
Doris is in the horrible place we all dread and did not need the attacks thrown at her for her desire to inform and educate the rest of us.
Cancer doesn't only happen to good people. Cancer doesn't always make you stronger. cancer often leaves a person without resources, treatment, support, and comfort of loved ones.
If your life is a mess, it wasn't cancer that did it and no one here can fix your life.
If you choose to be ignorant, that's your business, but to attack someone whose only desire is to help, so that you can continue to be in denial about your life...
Let her go. Been there, done that.

SIROD's picture
SIROD
Posts: 2124
Joined: Jun 2010

Thank you Sherry for your kindness.

For the person who flagged this post.

I don't knock the good work that Nancy Brinker has done for breast cancer. She did take it out of the closet and tied a big pink bow on it. She gave awareness to the disease that was only whispered about in the back kitchen with only female relatives. She made women and men feel good about their disease instead of hiding it as though it was something to be ashamed of having and called them appropriately "Survivors". Her foundation given a lot back to the community in forms of paying for tests and mammograms. I applaud her.

However, the Komen's Foundation gives more money to awareness than research. Awareness we have, and it won't give us a cure. Research on the only stage that kills is what is needed now. Instead of flagging, why not join the effort for the funds to go towards stage IV research.

Doris

SIROD's picture
SIROD
Posts: 2124
Joined: Jun 2010

I wish to thank you all for caring about me and I guess I'm back.

Best to you all,

Doris

tufi000's picture
tufi000
Posts: 437
Joined: Jun 2005

I appreciate your comments and regret I have been flagged for not being the pussycat we are supposed to be here.
I continue to respect the *&^%$# out of you! Defending truth, the best intentions, and being seen as flaggable is scary.
Hasn't this disease been enough of a challenge in our lives that our priorities have been adjusted to eliminate the trivial and allow us to let people be?!?!?!?!?

Sherry

SIROD's picture
SIROD
Posts: 2124
Joined: Jun 2010

with this disease.

Breast cancer had it start as "active" when women such as Shirley Temple, Betty Ford, Happy Rockefeller, Nancy Reagan began to talk about publicly. There wasn't enough women at the time to talk about Stage IV. Now there are a lot of women alive, living with that stage. I would think that is something to be very, very proud about. We haven't cured breast cancer but we have taken some steps to allow many women to live a long time with this awful disease.

Being afraid of stage IV is as bad as when people would not talk about breast cancer. Do we always have to start inventing the wheel.

Doris

Lynn Smith
Posts: 1265
Joined: Mar 2011

As I read the posts I thought I was going to ask Doris to come back but she is.Good news.We need you.

I don't know what happened I missed the post.Haven't been on here for a couple days or I could have missed it.We all have different opinions.I've been through alot and my journey has been easy Stage 0 but I have depression like others.And when someone adds to it I have to lay back and bite the bullet.Sometimes even if a friend I back off from them.Going through some rough times now and worries me to be Depressed/ Stressed. I've been irratible and never that way.My husband asked me what's wrong??? It's just alot of things like I'm sure the way you feel Doris.

Welcome Back Doris

Lynn Smith

debsweb18
Posts: 190
Joined: Jun 2012

First of all, don't misunderstand me, I'm not disagreeing with anyone or taking any sides. These are just my thoughts. And I'm in the mood tonight to express my opinion :) I do think research is more important than awareness, although I think awareness is important. But forget about stages- I wish research would find a cure so that NONE of us would have to be considered ANY stage once treated. I'm not stage iv, at least that I know of, but do any of us know for sure since we're not "cured"? Although my risk of mets is supposedly low, you never know and I would like to not be scared about it returning. I wish none of us had to have this disease and I hate even more that there's no treatment that's not a cure- for ANY of us! I wish this board could be "Former Breast Cancer Patients-cured survivors"!

Lynn- are you taking an IA (ie Arimidex)or any other meds? After being on it for 8-9 months I became VERY irritable. So much I noticed it myself, no one had to tell me:). I noticed an immediate improvement after changing to Femara. Have you talked to your Dr? Hope you feel better!

Deb

camul's picture
camul
Posts: 2034
Joined: Dec 2010

of the above mentioned posts, but as a stage IV bc, it is very disheartening knowing that only 2% of all monies collected go towards advanced bc research which is amazing when we have over 70,000 new stage IV every year adding to the ranks. 30% of those diagnosed with bc will advance to stage IV, and we lose approximately 41,000 men and women annually. This has been an issue with everything pink for me. We have the awareness now lets do more research!!

As a stage IV, I am a METAvivor, and for anyone wanting more info you can google METAvivor. The goal is to try and get 30% of the funds to go to advanced research as 30% is the number of those diagnosed with bc that will end up stage IV, and there is no cure YET for stage IV, hoever if we could get more adv research funding maybe we could find a cure in some of our lifetimes.

SIROD's picture
SIROD
Posts: 2124
Joined: Jun 2010

Carol,

I believe METAvivor is the best "hope" we have. Komen has more money. If only they could refocus on research instead of giving all the other areas so much of their money.

How are you doing on Afinitor?

Thinking positive thoughts for you,

Doris

SIROD's picture
SIROD
Posts: 2124
Joined: Jun 2010

I don't appreciate people who sign up as someone else and post. On that post of Robert's a person name "Shack" who signed on for one night, "does not accept private messages" and only posted that one time. Is she real? A coward who won't post her name? Easy enough to sign on with another name, email address and etc. and make an accusation or harass.

Last February when Ilona aka Muschie posted on her questions about "Herceptin", two impostors came on, one named "meysembourgh265" and the other named "bonitowely282". They joined that day, only posted once a piece and never to be heard from again. If you wanted to send them an email "they also don't accept private messages"

You can read it here: http://csn.cancer.org/node/235270

Ilona felt harassed with how the discussion was being manipulated for information other than herceptin. Some one did post with good information afterwards. I had private message her initially mentioning that the Her2 discussion board more than likely would answer her question.

I don't believe people who have never posted would suddenly decide to join only in a post which members were griping. Then never returning with their own questions or opinions ever again. To me as with the flagging, someone is a coward. Bold only hiding behind a shield of anonymity. Time to come out or to stop.

Has anyone else notice this besides me?

Doris

RE's picture
RE
Posts: 4606
Joined: Feb 2004

Let me just state that as a member since 2004 this is the most benign comment I have ever seen flagged and I personally find no offense in it whatsoever since you were simply stating what had occurred as others had no clue! We occasionally rant and rave at each other kind of like siblingS do but we also support each other to the hilt. I freely admit that I have flagged posts before but they were selling stuff like purses and such. Tufi love ya gal and am proud to be associated with you!

GINORMOUS HUGS,

RE

LoveBabyJesus's picture
LoveBabyJesus
Posts: 1650
Joined: Jan 2011

Doris, welcome back! I enjoy reading your posts on education for this illness. I've learned from you.

ManWithaMission's picture
ManWithaMission
Posts: 497
Joined: Sep 2008

Let me state that I am very upset that someone here would "flag" anyone eles's post here as offensive because they don't agree with your own feelings or ideas. tufi000/Sherry spoke up for SIROD/Doris comments in another post and now SHE is being "FLAGED"? Shame on you!

I do agree with some that Doris could have started her own discussion post to get her point across,but I also belive that some came down waayyy too hard on her for her position for Stage IV metastic breast cancer and it's organizations. Don't kill the messenger. She was also right about Breast Cancer foundations that send no money to research. We have a whole month of "awearness",now lets get a whole month of money for that research!

Doris and Sherry, I'm so glad you are here to keep this ship on an "even keal" with your points of view. I once got "dumped on" by this board for my point of view on a subject. Their was so much "hatered' coming at me I thought I was in mortal danger here. Needless to say that I did not post for the next couple of years after that. I'm glad you came back sooner,Doris.

Let's try to stop the "petty' bickering and start pulling together helping the Pinks of any stage stand up and fight this beast. Lets have some fun doing it,too!

A Pink Brother
Robert

VickiSam's picture
VickiSam
Posts: 8250
Joined: Aug 2009

We are family -- and I VALUE each and every one of you Sisters and Brothers in
PINK. I also value your insight, voice, right to vent, and right to present
research, offer advice, and share in your joy as well as, your sorrow.

I come back after each and every passing of a beloved Sister -- so I can play
it forward. My heart aches, my body and mind become numb at the thought that
here we are in the 21st Century - and there is still NO cure for Cancer. I have
HOPE that one day, there will be a cure.

When I think of taking a break from our board, I can't .. I feel empty, and selfish.
The love, and support that was provided to me during my breast cancer journey - was unbelievable. Some of the Research, and Stats provided on this board -- scared me, but made me more cognitive of what the beast is all about -- as well as what options were
available to me.

Each and every Warrior has brought light, and joy to my soul.

Thank you all so much.

Vicki Sam

tufi000's picture
tufi000
Posts: 437
Joined: Jun 2005

Local news station, for pink month, selling crap where ALL donations go to Breast Cancer RESEARCH!!!!!! Specifically, the group collects only for research!!! YAY!!!!

SIROD's picture
SIROD
Posts: 2124
Joined: Jun 2010

Sherry,

One of the student's had a pink bracelet with "I love boobies". I said, "nice bracelet". Her reply was my boyfriend gave it to me with a big smile on her face. We are not talking breast cancer here, are we? I didn't say a word. I have no doubt that her boyfriend loves her boobies. The Keep A Breast Foundation responsible for the bracelet states on their web page

"We want to remove the shame associated with breasts and breast health, and this message represents our positive approach to breast cancer dialogue. The program resonates with young people, and encourages them to be open and active about breast cancer prevention."

They join with your local news station. Put an iconic pink ribbon on any package and make everyone feel as though they are helping in the research for a cure. I believe the boyfriend who loves the boobies, now he is telling the truth.

SIROD's picture
SIROD
Posts: 2124
Joined: Jun 2010

Dear Robert,

First I want to apologize again for stealing your post with the valuable remarks. I believe that your a Man with a Mission very much. Few people even realize that men do have breast cancer. I hope you will repost again and set that ball rolling. I sent METAvivor an email asking that they begin to include men on their page and in their store (items to buy - hmmm a bigger market, like Komen taking Ads on women with Stage IV now).

The other night I attended a local breast cancer seminar since I was at the hospital anyway. I was happy to hear the medical oncologist opening remarks that included "men have breast cancer too". I was prepared to say it if they didn't but, he did. Both men and women did attend and most didn't say anything. I actually wondered why I was going as I figured most of it would not be new information. I was right to a point, most of it wasn't. This medical oncologist talked about a seminar recently attended about the mouse who will have our own tumor embedded in them to see what drug will work. I was really taken with his enthusiasm and want to learn more about it. I live near a large genetic research laboratory. In the summer they often have seminars open to the public. I use to go when it had something to do with bc but do admit a lot of it was over my head.

There are people who are trying to spread the word about men with BC on Facebook. I found a few online a while back. Time for men to join the women in this awful disease we both have to conquer.

Best to you,

Doris

laughs_a_lot's picture
laughs_a_lot
Posts: 1368
Joined: Mar 2011

There will always be differing viewpoints. Some express themselves beter verbally (not me- I am open mouth and insert foot), while others are better with writing how they feel. So occasionally we unwittingly rub each other the wrong way. But we need to think about whether we are throwing the baby out with the bath water sometimes. The fact that many have called for Doris to come back is a good sign. It means she is valued as well she should be. Nuff said (by me anyway).

SIROD's picture
SIROD
Posts: 2124
Joined: Jun 2010

You do well with words. I always enjoy reading your posts. I don't know if it's the avatar you have but they are always good.

All Discussion Boards and Forums like these have occasional tiffs. I usally am not the subject matter and I have been on them since 1997.

Best,

Doris

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