Oct 16, 2012 - 6:28 pm
Hi all my wonderful peeps,
I have not been on this board for a long time. One of those people who just disappears. But I do follow all of you and care about you all. Most of all I am very worried about Denise. And I want to help. I just left a voice mail message with the BMT Patient Co-Ordinator, Pamel Bunner, (304) 598-4511. I told her about Denise, Kim and that there probably is 1000 people who care and are worried about her here on the CSN. Maybe she will take pity on me and call back, I sure hope so. I let her know that I was calling from the West Coast also. My message was so long I had to do it in 2 phone calls so lets hope that doesn't get her mad.
If this doesn't work the name of the doctor who's trial it is Mehdj. Denise was participating in a Phase 2 trial #BMTCTN-0701 I believe.
I sure hope this helps. It's truely inspirational how all of you can so love someone you don't even know. Cancer is a really bonder isn't it?
As for me I am still in remission, yeah. It will be 3 years since I finished RCHOP this coming March. My last PET in July was clear. My Onc says 2 more years and they will consider me cured. Sure hope that is true.
Thanks everyone, you do good work.