Oct 11, 2012 - 2:52 pm
Just dropping in to say hello and update where I'm at. Checking up on where everyone is in treatment. Very sorry to be reading about some setbacks and sad news.
I just finished round 8 of oxilaplatin and have 3 more days of xeloda. Then I get a two week break and I start radiation with just xeloda. So glad to be rid of the oxilaplatin. The 3-4 days after it are so unpleasant. I stopped working Friday before last because I wasn't finding balance with home and work, work was taking over. I'm now on disability (finally earned enough weeks) which means no more missed pay thankfully. I slept 16 hours my first Saturday home. I had no idea I was that tired. I guess I am just so used to working, I really was on autopilot. Slept 12 hours on Sunday. 12 on Monday. It's tapering off to regular sleep and a one to two hour nap every day. I've had tolerable side effects. Hurts when I chew for about two minutes, feels like my hand is stuck to a flagpole when I pick up something in the freezer, tingling in the legs especially bare legs under a blanket and some cramping in the hands and feet which bananas are helping with but not completely eliminating. Found out your cheek can turn into playdough=) I have two lines in the inside of my cheek where my teeth come together. I'm using biotine to help with that and to keep sores at bay. Short of raking the yard (got peeling skin and blisters even with gloves), my hands haven't dried much and I've been aquaforing my feet because I wear flipflops a lot and they're drying out.
I get a six week break after the radiation. Looking forward to it although doctor warns, it's actually a harder period than the radiation because your body is now trying to bounce back. According to the general oncologist and the radiologist, they've found that the radiation keeps working for 6-8 weeks after treatment and you stand a better chance in surgery by waiting. Got the impression that everything they're trying on me is a newer concept. Because I did the chemo upfront, they're saying I won't need it after surgery. I might just do it anyway, better safe than sorry. Haven't researched it yet. Will do that today. My surgery is now pushed back to February. Good news for me because now I won't be in the hospital or stuck in bed for Christmas. Very excited about that. Have my two front teeth so I'll be asking Santa for a cure. Hope everyone is doing well. Reading more posts now to catch up some more.