Oct 11, 2012 - 2:48 pm
I had my first week checkup with my radiation onc yesterday. I finally got the opportunity to ask him how much bigger it was compared to my scan in June. He said 50%! I have a hard time believing this is slow growing. I am tempted to ask the transplant doc to do a second review of the biopsy to make sure it IS still indolent.
I doubt at this point with the rads I've had that they could do another biopsy to confirm. I am getting tired, but other than that I seem to be doing well. He seemed happy anyway.
I really deep down in my heart feel Denise is gone. I don't remember how old her oldest daughter is, but I can imagine she's extremely overwhelmed with all the details and processes ahead for her family and younger sister. I hope I am wrong. This feeling just keeps getting stronger and stronger the longer it goes with no news. I know how scared she was before coming to terms with the fear of transplant. I don't think the odds of coming out of pneumonia after transplant are good. I know of too many who got infections and died from that. It really makes me sad. Like I said, I hope I am wrong.
Not much else going on at the moment. I hope everyone is doing well and enjoying the nice fall days. It's actually gotten to the point where I got my winter coat out.
Take care everyone and I hope to keep in better contact, but by the time I get home from work I am completely wiped out.