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started removab in hallwang.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

It's 8 hours on the drip.
See my blog for photos
Hugs,
Pete

Nana b's picture
Nana b
Posts: 2909
Joined: May 2009

OMGosh.... I have been gone from this board for a couple months or maybe 3, what the heck happened?!?!??!

I have missed a lot of your journey since I last commented to our CEA but up at the same time.

Hope all works out for you! Big Hug Pete!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

i got some targets to knock of liver , lung and peritoneal, its on my blog.
with a history of crc sweety, wheres theirs smoke their mets! i learnt that the hard way.
the pet found them august, an agio ct august the liver suckers and now i am in germany getting the best care i can find. screw these few silly cells, they will go and i will stay.

i hope your going well. my tip if they have not found any mets yet, do an angio ct, that worked for me.

hugs,
Pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

its such a big question for example my case
new
Dear Marie and all
how do you get good chemo to peritoneal mets? direct injection.
so my removab use is offlabel, its like chemo in that it helps kill cancer cells and the side effects are supreme. it does not destroy your immune system like folfox etc, so I am playing the game of long term survival and i want acknowledge the compromise a short term high dose chemo maybe benefit some, but you see my MDR is 70%, that the multidrug resistance pathway in my tumour, so hardcore chemo well in my case why bother. being guided by the best science is all we can do and pray of course. after 6 month removab the express of my tumour biological markers can change considerably, so the suckers are slippery little devils to. I published all the greek test tumour results last december on my blog, goto blog search medical record and read the rgcc results about 4 documents.
beating cancer with nutrition by thomas someone. its a concise simple read. it covers lots of the pathways. i have had my tumour pathways analysed dec11, my mistake was hammering the tumour with well targetted naturals and not going hardcore jan feb 12 when my escalating markers with clear scans.
so now if i recover well enough from removab, then mitomycin, matiac d fraction and vit c in hyperthemia. the chemo is on a 24hour bottle, low dose to shutdown any circulating ctcs. this choice of chemo was guided by chemo sensitivity testing. why not use the most effective chemo for you tumour?
I will copy this into my removab post for any further discussion . my point is our tumours are unique but they all have different pathways, which can be targetted.
the point is our tumours all have common pathways which are uniquely expressed, just like we are unique, they exist in us, they are shaped by our environment, our ever changing environment, something as simple as deep breathing oxyganates our cellular metabolism and can encourage oxphos ADP not fermentation, but its very complex. read cancer as a metabolic disease for full details.
hugs,
pete

Lovekitties's picture
Lovekitties
Posts: 2942
Joined: Jan 2010

My mention of "off label use" in the other post was not meant to be critical. You need to do whatever you and your docs are comfortable with.

Hugs,

Marie who loves kitties

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

off label is a god send it gives innovative onc the chance to test what they believe the most effacious treatments on willing patients. with peritoneal mets my choices well are limited.
i think i have given the natural therapies a good run, but its clear if i want to get to 20000 posts here i better do something thats effective for my tumours.
hugs,
pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

strategically i can use removab again, its got a limited life span of effecivess, i have seen other stage4 back in the clinic with no response. so its almost a once off magic bullet, thats my impression. again the issue is delivery to the tumours, we goto get the mouse/rat antibodies to tag the tumour cells. i still suspect my request to do intraperitoneal as well was a valid request, that was ignored. but maybe the next series of removab shots planned for mid feb.

it costs about 100K USD for the 2 months in the clinic for 3 removabs and many other therapies. but the best results i have seen sofar.

pet and other scans coming soon, i will update this post for completeness.

excerpt in email to clinic doctors, only patients can point out the subtlies of our results.

just in case you missed it, my cea 14sep was 81, 17oct 1770, 31nov 39. i had removab 11oct. Been having about a 20 point each test month, so i expected 17oct to be 100 not 1770. A great example of your removab and infusion effectiveness and I suspect tumour die off. Note vogel was on 22oct so could not a factor in the 1770 score. But obviously vogel two treatments are included in the 39 score, and the other hallwang therapies. Its a great result so far.

the full public email on the blog
http://petertrayhurn.blogspot.com/2012/12/nestlehut-gentleman-and-two-chemo.html

hugs,
Pete

tanstaafl's picture
tanstaafl
Posts: 969
Joined: Oct 2010

17 Oct looks like a blip in the CEA data to me, doubling rates greater than 20-30 days look highly suspicious. Total miss or somebody's transcription error like 170, fat fingered with a double 7?

janie1
Posts: 753
Joined: Apr 2011

You mentioned above - Mitomycin.

Just wondered what you know about it. What exactly does it do?

I had an infusion of it put in my Hai pump for liver mets. (It's not the routine drug that is used with the pump.)

Hoping it does something.

Thanks.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

sorry i never saw your question, mitomycin is a cheap old chemo, really effective for knocking out my circulating tumour cells per my chemo sensitivity tests.

so had it twice, to stop any mets coming back somewhere new.

hugs,

pete

tachilders's picture
tachilders
Posts: 315
Joined: Jun 2012

If it makes you feel any better, Avastin is not chemo, but rather another monoclonal Ab, si its closer to Removab than chemo....

Tedd

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

the side effect profile is pretty scary, doc nesstlehut warned me against systemic avastin, i am taking his advice.

now locally injected avastin i like, after reading ren blog, the half life of avastin is long. no wonder its had such a good effect on stopping 

my immune suppressor cells.

hugs,

pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

no i saw the lab results, its 1770, the spike was caused by removab, it had stimulated a massive tumour cell die off.

this was about a week after arriving hallwang. its proof rat and mouse antibodies can be effective against colorectal.

hugs,

pete

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