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New Faces of HPV & Cancer ~ Dr. Oz - Live Chat Participation Opportunity

Skiffin16's picture
Skiffin16
Posts: 8069
Joined: Sep 2009

I saw this, thought that I'd share it...

The New Faces of HPV and Cancer:
Live Chat Tonight at 5:30 - 6:30 p.m. EDT

Think you know all there is to know about HPV? Think again. You may believe you aren't at risk anymore if you're married or in a monogamous relationship. This simply isn't true: 80% of sexually active adults will have been infected with HPV before the age of 50. And HPV can cause different types of cancer, including cervical and oral cancers.

Join Dr. Oz and Sharecare experts tonight at 5:30 - 6:30 p.m. EDT on HuffPost Live for a live chat about HPV.

And Tune In Today for an important show on HPV.

What you learn may save your life!

Submit Your Questions Now!

I tried to make him aware of our site, but the "Submit Your Questions" is pretty lacking...

JG

luvofmylif
Posts: 344
Joined: Sep 2012

Thanks for that information. One thing I hope is that more public information is put out there...so other people won't be blindsided by this. All kinds of testing for cevical cancer but nothing is mentioned about this.

We start out treatment tomorrow. First day of chemo and radiation. Just want this six weeks over. I know things will be different after tomorrow ...Unfortunately, its our daughters birthday tomorrow. Never knew last year this is how we would be spending her next b day. Wow, how quickly life changes.

Hoping and praying for the best for all of you brave and positive people on this site. Your strength lifts me up and helps me to pass that on to my husband.

Joan

Skiffin16's picture
Skiffin16
Posts: 8069
Joined: Sep 2009

Joan, yes it is life changing and you always will be aware....but.

Please know, that after three plus years, my life is pretty much back to the old normal...

So yes, I did have a "new normal" for awhile, now my "new normal", is my "old normal", only with a few battle scars.

Just know that you guys will get through this and that the very large majority actually come out pretty unscathed...eventually.

It's a long hard battle, and takes forever it seems to get back to some sense of normality...

LOL, which in my case tends to be more on the side of "Abi-Normal"....

So maybe being a little off to begin with is good in this case, LOL...

Thoughts and Prayers....
John

rayofsunshine
Posts: 1
Joined: Oct 2012

I have just been diagnosed with mild to moderate dysplasia. The doctor told me to wait for a year and have another hpv test done. This scares me to wait that long. Do you know if there is any treatment that should be done for precancer cells?

katenorwood
Posts: 1821
Joined: May 2012

Hey John,
I have known about HPV and cancer for about 8 yrs. I use to stomp my feet at the doctors because of the lack of information for my kids. But saying this fast forward, they are doing all they can for the up and coming generations. I will watch Dr. Oz...think he's cool. And I will put in a question or two that still is lurking for my girls. I had to cancel my scans for today due to another head and chest infection. grrrr....but go in Nov. 1st now. Thanks again John, it is so cool you can post like this for our group ! Katie

blackswampboy's picture
blackswampboy
Posts: 341
Joined: Jul 2012

will try to catch it.

We are the new faces of HPV and cancer.

cureitall66's picture
cureitall66
Posts: 860
Joined: Aug 2012

Thanks for sharing this with us John.

michdjp's picture
michdjp
Posts: 195
Joined: Sep 2011

Thank you we will certainly tune in. This is such a tough road to go down but without knowledge it is not only tough but scary!!!
Information is a great tool to have.
Thanks again
Michelle

Skiffin16's picture
Skiffin16
Posts: 8069
Joined: Sep 2009

I would have guessed there would have been more response to this post as a large majority of people on here are/were HPV derived cancer...

JG

KareGiver
Posts: 290
Joined: Apr 2011

Just returned from out of town and missed the Dr. Oz show. Will see if I can see it online.

Thank you for bringing it to our attention!

Lynda

KareGiver
Posts: 290
Joined: Apr 2011

I see it was a chat. Hopefully someone (you, Katie?) were able to get some questions in there!

TheOtherDitto
Posts: 57
Joined: Apr 2012

but the topic was geared more towards HPV and the chances/risks of cervical cancer. They stated there wasn't a way to test men for the HPV virus. Really the only reference to men was when one of the doctors said her gay son had ask for the Gardasil vaccine because he was "high risk" for HPV positive anal cancer. The majority of the folks on this site seem to be male; many of whom neither smoked or drank.

CivilMatt's picture
CivilMatt
Posts: 2920
Joined: May 2012

John,

I wasn’t out swinging with the other H&N HPV+, I just never saw your post. How does all the HPV+ knowledge help me now? I understand helping those unfortunate souls who might go through what I (we) have. I’ve tried to work out the possible scenarios which landed me a seat at the HPV+ table and the best most logical timeline happened 35 years ago. That is unless the HPVvirus was in something I ate or the air that I breathed. Like much of the cancer questions, they drive me crazy, not abi-normal crazy, just a little nuts (so to speak). Anyway, thanks for the info and by-the-way I tried some Cod (battered and fried) and cole slaw (sweet) and the slaw came out the winner.

Best,

Matt

Skiffin16's picture
Skiffin16
Posts: 8069
Joined: Sep 2009

Just for informational purposes Matt....

A lot of people here still have a lot of questions concerning HPV. I did post a link to our site, and asked them to stop by....

But anyways, a few years ago, hardly anyone on here mentioned or was aware of the HPV/H&N Cancer connection, nor many of their MD's.

Now there is beginning to be more and more awareness, more so since Michael Douglas...

But Dr. Oz has a huge audience, so that is very good to get the message out.

I wasn't really expecting anyone here to participate, but I had thought the show itself would have generated more response. and also a few questions/concerns, or beliefs might have been answered for a few here.

The knowledge may not help you as you are pretty well versed on the subject now... How would it have helped you say a few years ago....maybe it would have at least made you aware.

Myself, I never heard any connection between H&N Cancer and HPV... I only connected it with cervical cancer, in girls and Gardasil.

JG

CivilMatt's picture
CivilMatt
Posts: 2920
Joined: May 2012

John,

When my ENT told me, I said “HPV what”. I still am not sure that the crap can still haunt my body. I guess I am just not up to the brainiac level to understand how HPV and cancer joined forces to screw me up. I understand a dormant virus, but what compromised my immune system to let this invader setup shop? What prevents it from happening again?

Best,

Matt

I am sorry I steered your thread down this road

blackswampboy's picture
blackswampboy
Posts: 341
Joined: Jul 2012

there is a recap here:
http://www.current-movie-reviews.com/41467/dr-oz-recap-10112012-all-the-dangers-of-hpv-and-who-is-at-risk/

what I still don't understand is this:
"[Dr. Harper] says there is no good test to see if men have HPV at this time."
How so? after SCC dx, I got tested for HPV, HIV, and the Hep. why do people keep saying that there is no test for men? am I missing something?

the million-dollar question, matt.
this is the second dormant virus that brought me down: I had shingles too. that beast was hanging around in my body for 40 years, then suddenly popped up to say hello. I must be doing something wrong.

katenorwood
Posts: 1821
Joined: May 2012

BSB,
Hey I know there is alot of miss understanding and finger pointing with HPV. For a women there is no simple test either other than taking tissue samples to test for suspicious areas of concern. Being a virus...maybe it's hard to track in the body until it's caused an issue. I've been involved with getting men and women to understand these issues. A long time coming and I thank the public interest finally in this ! We need more study being done and the gardesell shot is the best so far. But it's hope for the future generations ! Katie

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

Hey Matt,
How 'ya doin', buddy? Several types of HPVs are capable of inducing changes in their host cell DNA that result in unregulated cell growth (= cancer). It is for this very reason that it is suggested that women get PAP smears that test for the presence of these viruses on a fairly regular basis. In women these viruses (the nasty cancer-causing ones) can cause uterine and/or cervical cancers. In men they can cause what we both have had to deal with.I hope that you're doing well, by the way!
Dude, if you knew how many pathogens (i.e., disease-causing viruses and bacteria) we are exposed to out there on a daily basis, you would never leave the house! :)! Trust me, they outnumber us by many, MANY orders of magnitude. Thankfully, however, we have our ever- vigilant normal flora (and our immune systems)to take care of many of them before they do any harm. Did you check out the web-site? :)!
Take Care,
Paul

Skiffin16's picture
Skiffin16
Posts: 8069
Joined: Sep 2009

There are no tests to see if you have HPV during a routine exam...

If you have something that shows up that is giving you problems, they can test that tissue with a biopsy, FNA, etc....

But, if that's the scenario..., more than likely they've already concluded it's cancer tissue which happens to be HPV. Which is more than likely what caused the cancer...LOL, big circle.

In women,as part of their annual pap exams, tissues are taken and biopsied...as that area is sustible to cancer...as a result of the biopsy HPV can be detected and can be detected without it being cancer.

Like said many times...most of us have been infected or are infected with HPV. Most of the time your body clears it, but it can't be cured.

That's the part I don't fully understand... do you still have traces, that decades later when your immune system is low, or whatever..it can rear up and bite you?

Anyways, most of us are exposed and nothing ever comes of it, a few of us it developes into cancer.

Of course this is all just my take on it from what I have read, not sure how accurate it is.

JG

blackswampboy's picture
blackswampboy
Posts: 341
Joined: Jul 2012

John, I get that to date men are not routinely given HPV DNA tests. but surely it is possible to get tissue samples from men to run a test. maybe not as convenient as via Pap smear, but tissue is tissue, and DNA is DNA.

here is a site that suggests men can be tested:
labtestsonline.org/understanding/analytes/hpv/tab/test

"Some doctors test men who at high risk for sexually transmitted diseases for HPV-related anal cancer. Such testing is similar to a cervical Pap smear. The anal lining is swabbed and the cells are examined under a microscope. HPV DNA tests can also be performed on these samples. As in cervical samples, positive results will need to be followed up by the doctor with further testing, including a more thorough exam and possible biopsy."

that is not something that I would look forward to, but I'd be happy to let them swab my throat.

I reckon that MD muddies the waters when she says there are no good tests for men. can't imagine many men who would willingly submit to anal swabbing, but a Pap test can't be much fun neither.

Skiffin16's picture
Skiffin16
Posts: 8069
Joined: Sep 2009

But I think from my understanding the tissue would have to be area specific...

You mention anal swabs, at best I'd presume that would only indicate HPV in those tissues...still not cancer, though potential.

I don't know the relationship to HPV in DNA and the rest of the body. Apparently there is nothing that shows it.

For me, I had tonsils that were infected apparently. But it doesn't show everywhere in the body that I'm aware. Only in that infected tissue of the tonsils.

Now I have heard that there is supposedly some swabs or testing oral via the Dentist for oral cancer, and have heard reference to that connected to determining HPV.

Just the bad part of it....

Even if you do show HPV, then what....

Of the 80 - 90%+ of the general population that have had it or do have it.... Only 10% or less ever developes into cancer. The other 80 - 90% never get cancer, and that's with no intervention.

JG

blackswampboy's picture
blackswampboy
Posts: 341
Joined: Jul 2012

just saying, "no good test for men" is misleading. OK, so anal cancer is not as prevalent as cervical cancer, but HPV swab testing can/is being done for men.

I would love to know why it's easier to do anal and cervical swabbing than mouth and throat swabbing.
I suspect the issue is that screening women for cervical cancer has long been a focus. that men can and do get HPV-associated cancers is only a recent concern, and the wheels of science turn slowly.
I mean, it took an extra three years to get Gardasil approved for men. What's up with that?

as for then what...knowledge is power. People testing positive for HPV-16 oral infection have a 14-times increased risk of developing HPV+ oropharyngeal cancer.
until we have near-universal vaccinations, identifying who has HPV is the first step to knowing who is at risk, and stopping its spread.

Skiffin16's picture
Skiffin16
Posts: 8069
Joined: Sep 2009

I think this has been a good discussion...definitely more research is needed, especially concerning testing and prevention.

Media recognition is definitely a step in the right direction as for knowledge and getting the word out.

JG

Joel4's picture
Joel4
Posts: 209
Joined: May 2010

Concerning HPV, I was of the why ask why school of thought.
The only thing I took from it was that my odds of beating the cancer were better since it was of an HPV origin.
I remember people asking me early on how I had gotten it and I just remember thinking I don't care, I am moving forward into beat it mode.
I totaly get why some people want to dig into the research and find out as much as they can about what particular HPV strains cause this or that BUT I am not wired that way.
I did learn a thing or two and I plan on getting my son the shot soon.

blackswampboy's picture
blackswampboy
Posts: 341
Joined: Jul 2012

let's hope HPV testing for the throat is coming down the pike.

http://www.prweb.com/releases/2012/10/prweb9973020.htm

"Progressive Health Services is now providing a new HPV test for men in San Diego as part of a research study. The test, an HPV DNA test which looks for HPV of the penis, is being offered in the context of a research study to help identify HPV in men."
.
.
"Progressive Health Services, who has been providing comprehensive STD testing and treatment for men and women for over 35 years, cites previously published research studies demonstrating that HPV can, indeed, be identified via DNA testing from the urethral opening of the penis."
.
.
"Progressive Health Services clinical director Suzann Gage, OB/GYN nurse practitioner and licensed acupuncturist, notes that research linking HPV to cervical cancer prompted FDA approval for HPV DNA testing in women via Pap smears. “Men have been asking us for HPV testing for years. We feel it is important for us to conduct our own male HPV DNA research to help shed more light on HPV in men.”
Progressive Health Services currently provides FDA approved HPV DNA testing of the throat, anus and cervix, as well as HPV DNA testing of the penis as research, at their offices in San Diego, California."

Skiffin16's picture
Skiffin16
Posts: 8069
Joined: Sep 2009

I'll definitely check it out....

From what you quoted, it sounds like progress for sure.

JG

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