Oct 11, 2012 - 7:24 am
Hello to All
Having come across this site by accident, I am impressed with the wealth of knowledge members have provided especially KONGO. If I may,I will provide some background concerning my situation. I am will be 72 in January and have been dealing with the problem of suspected prostate cancer since 1995 when I had a prostate infection, at that time my PSA was 3.8. My urologist recommended CIPRO and the frequent urination that I experienced went away. Since that time I have had yearly PSA tests with my PSA rising and falling based on the condition of my prostate or blatter. The diagnosis at this time was BPH, as I had a large prostate 40>ml. Cancer was not foremost in the mind of my urologist at this time so we decided on a watch and wait program with regular PSA tests.
I could live with this situation until 2007 when I read about a new test PET/MRI performed by a Professor here in Germany. As my prostate was increasing in size to a very large 150ml (measured by an MRI) I decided to take this test to gain some peace of mind. Of note is that I had also taken a total of 4 PCA3 tests over a two year period with values of 40,19,26 and 10, as I did not want to to undergo a biopsy. As you can tell from the results the PCA3 test is totally worthless as it provides such a large discrepancy between reading. At this point my PSA would rise to 9 and later drop down to 5 or 6, based on the condition on my prostate or blatter. My urologist in Germany (he was one of the best)showed no concern over the fluctuation in my PSA, stating that it was all caused by the size of my prostate.
Back to the peace of mind that I wished for. I went to this Professor and had the PET/MRI and to the surprise of myself and my urologist the result was a 1cm growth in my prostate that the good professor thought might be cancer. In my mind this was devastating, however my urologist assured my that this reading was the result of my large prostate and not a cause of cancer. It should be noted the my urologist is also a professor and well respected throughout Germany by his colleagues. He gave the PET/MRI no credence!!!! Here I was faced with a Professor (also well respected) who thought I had a suspected growth and a urologist who wanted to totally disregard this finding.
This was a situation wherein I as the patient had to decide the appropriate course of action. I opted for a biopsy, against the judgement of my urologist, which came back negative (10 samples). While this proved to be good news it was only short lived as the nuclear medicine Professor informed me that they did not biopsy the right spot given the size of my prostate. Once again I was left with this uncertainty as to what course of action to take. A decision was made to take yearly PET/MRI over the next two years to ascertain if any thing changes.
This brings us to the present, wherein my prostate has now grown to a record growth of 270ml and a recent MRI with spectography indicates a suspected growth 3cm by 1.4 cm in the right side of the prostate and a smaller on on the left side. None have penetrated the capsule of the prostate. I have had a new urologist over the past three years, however he also appeared to show no concern over these results once again contributing the results to my large prostate.
Once again I am left to take the next step, that being a 3D biopsy which will hopefully target the suspect area and provide concrete information as to what is going on in my prostate.
I guess the bottom line here is that I survived that past 15 years without having to wear diapers but it came with significant mental anguish. I have a younger wife (16 years) and a young daughter (20) and so no other option than to wait and see what may happen based on the advise of my doctors.
I hope that the 3D biopsy confirms their steadfast opinion. I wish all of you with the same affliction good health and gods speed.