Oct 09, 2012 - 11:32 pm
We thought that with this latest scan we would go to Sloan Kettering and ask that a tumor board look at his case. However, on the first look the oncology nurse made it seem like they would not take Dick's case. Hmmmmm...... It actually freaked him out a bit.
What we really want is for a group of experts to say what the best course of action is at this point. He has not had Erbitux yet and he can get it but what about SRBT? What else is out there? Should he try full doses of the stuff he is on and go to every two weeks for a few months? We will go anywhere in the country if someone thinks they have something to try. We want to do this before he gets "too sick" to go.
I'm looking for advice and experiences here friends. What do you have? I know you are not docs but I know you have experiences and contacts.