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Getting a plan

katenorwood
Posts: 1812
Joined: May 2012

Hey guys,
I go back in again this thursday for a PET and MRI with contrast. I am so impressed with my team of doctors and that they actually are so upbeat and willing to attack this demon lurking in my body. I have a tumor board...working together for me. Some may say, yeah why didn't you have this in the beginning ? Can't answer that. Hate the 3 hr drive, but use to live in the cities so nothing new with the bumper to bumper traffic...and the fun road work. They are taking their time with everything...and can answer all of my questions, with understanding of my dx. I feel confident for the first time in 10 months that there will be a resolution to this ! Hoping a great day for all of you ! Katie

luvofmylif
Posts: 344
Joined: Sep 2012

That is so encouraging. I know what you mean about the Tumor Board. We have that where we are being treated. Nice feeling to know that all of the doctors on your treatment team develop a plan that is individualized to you and your case.

Good luck to you. I pray for everyone on this site. You are all so kind and strong.

Joan

ditto1
Posts: 630
Joined: Mar 2012

for you Katie with the commutes ahead of you, LOL. I agree on these Tumor Boards, it is nice when we have everyone one the same page. You will be in Diane and my prayers.

hwt's picture
hwt
Posts: 1848
Joined: Jun 2012

Happy to hear that you have a team you are confident of...that's very important

D Lewis's picture
D Lewis
Posts: 1523
Joined: Jan 2010

So glad to hear you have a plan and a team you can trust. Sounds like you have everything you need. You GO girl!

Deb

longtermsurvivor's picture
longtermsurvivor
Posts: 1768
Joined: Mar 2010

Our drive is six hours each way. I have about 35000 miles in travel so far on my health care. Another trip later this week. Looking at a better gas mileage car right now....

phrannie51's picture
phrannie51
Posts: 3628
Joined: Mar 2012

being in limbo for 10 months would have made me crazy!! There is something comforting about having a "team"....that they talk to each other, and the left hand knows what the right hand is doing. I'm so glad you have confidence in them...that is so darned important.

They'll get ya fixed up, girlie....and we'll be here to root you on...

p

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Glad you've got it. Hope you don't have to wait long for results, and "next step" planning. Having someone listen to, and answer your questions is wonderful.

Tim6003's picture
Tim6003
Posts: 1490
Joined: Nov 2011

through...keeping you in prayer. Drive safely :) ....

Best,

Tim

Skiffin16's picture
Skiffin16
Posts: 8058
Joined: Sep 2009

Thoughts and prayers for success....

John

katenorwood
Posts: 1812
Joined: May 2012

Hey everyone,
Darn alergies once again have kicked my butt. Had to cancel scans because of the head and chest symptoms going on. I called in and told them what was going on and they told me that they would rather have me healthy (no snot and inflamtion going on) because this would show up hot spots where they need to look. So now schedualed for Nov 1st. Thanks for all your support and kind words. You guys all rock ! Katie

CivilMatt's picture
CivilMatt
Posts: 2866
Joined: May 2012

Hey Katie,

After 10 months you deserve some resolution, with contrast (just kidding). 3-hour drive one way, you make sure you get plenty of rest or carry a six-pack of 5-Hour Energy (again just kidding).

Seriously, treat the allergies, calm the nerves and have the best scans possible.

Best always,

Matt

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