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what a day !

Tonsil Dad's picture
Tonsil Dad
Posts: 488
Joined: Dec 2011

well I just thought I would post, today was my birthday (47) and as I
might of mentioned before I go to a Tiki bar on the beach on a Sunday afternoon every
week (recharges the batteries). Well today when I got there unbeknown to me
my wife had a suprise party all lined up. Family and friends all shown up
and a good day was had by all........I'm posting this after a few Bud Lights (quite a few )
letting people know WE can beat this and live a NEW normal life ( by the way
what does Bud Light taste like now). If I could post pictures like John (Skiffen) does
I would, but I don't know how so you have to take my word, it was warm and sunny, lots
of beer and food and a good time had by all.

God bless
Tonsil dad,

Dan

Hard12Find
Posts: 203
Joined: Sep 2012

My wife and I enjoyed a nice weekend on Washinton staes Hood canal, no phones no computers, no cell service, just rest and sporadic fun. Took the kayaks out this morning, watched the salmon jump and the seals play......
Happy birthday with many re turns

CivilMatt's picture
CivilMatt
Posts: 2903
Joined: May 2012

Hi Dan,

Sounds like your batteries got a full charge today, good for you and Happy Birthday too.

Best,

Matt

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

Sometimes our significant others can be so sneaky.

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

Happy Birthday Dan...

My absolute favorite time, is Island Time.....

One of our Chocolate Labs - Kali...she is on Island Time..., LOL..we actualy say Kali Time.

Kali is never in a hurry to do anything, and she definitely takes her time. Which is kind of annoying a 2:00AM when you take them (Kali and Jazmine - sisters) out to potty.

I'm due for a little recharging soon also. We are going to St. George Island up in the Florida Panhandle...barrier island.

We rent a beach house up there usually late October for mine and Shelley's Anniversary... The dogs love the water and the beach house is right on the beach (Beach House, LOL)....

Of course fishing will be involved, a few beers, steamed crabs, smoked mullet and fresh fish.

Soooo, if anyone else just happens to rent a place there during the last week of the month, look me up.

I'll be the one thinking of Dan, while;

I got my toes in the water, ass in the sand.
Not a worry in the world, a cold beer in my hand.
Life is good today, life is good today...

Best,
John

luvofmylif
Posts: 344
Joined: Sep 2012

Jealous...that sounds like a great time.

alligatorpointer's picture
alligatorpointer
Posts: 131
Joined: Jul 2012

I don't post much but check in here everyday to see what positive thoughts are sure to be found from all the caring folks who offer support. Many of you make me smile with your light-hearted comments and that is some of the best medicine available anywhere. John (Skiffin), you have been a regular source of delightful comments that give me a lift because I also love to fish and live in Florida, too, and had a laborador retriever who was my best 'island time' beach buddy. I have been away from my beach house on Alligator Point in the FL Big Bend since July. That was when my son was diagnosed with throat cancer and I traveled to upstate NY to be with him through his treatments because he lives alone and there were no other caregivers available. I have missed the beach and especially the fishing so I look forward to having a vicarious experience through your posts, recipes, and photos. Thank you. Alligator Point is in a less developed area of Franklin County ... but not far from St.George Island. October is my favorite month to fish from the shore. I do not have a boat but don't need one since the fishing is great directly from the beach. October is such a beautiful month most everywhere and while I cannot be fishing at the beach, I have been enjoying the cool weather and brightly colored autumn leaves in upstate NY. I know you will have a wonderful fun-filled week on St. George Island and am looking forward to your posts afterward. Thanks for sharing the fun with all of us.

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

I definitely will be thinking of all of you here...and a few not.

My buddy GlennaM unfortunately lost the battle early this year...we spoke often of trying to have a SGI Beach Get Together with a few of my Abi-Normal Sisters, she is missed.

I of course all ready have some casual plans on possibly meeting up with a fishing buds on the various fishing/boating forums I belong.

But if nothing else, I can always find my way around the water,

I wish I had an extra day really... The day we leave there is a Art & Seafood Festival in Appalachicola.

But you can rest assured that I'll be posting a few photos....

I usually send a few to my co-workers back in the office just to rub it in.... I make sure it's usually a bust time of the day, just to make it hurt extra special, LOL...

BTW, thoughts and prayers for your son..., how is he doing?

Best,
John

alligatorpointer's picture
alligatorpointer
Posts: 131
Joined: Jul 2012

My son is doing well considering the brutality of the treatments. He completed the 7 weeks of rad/chemo on Sept. 7th. His post treatment PET scan is scheduled for Friday (end of this week). He is impatient for the PEG and PORT to be removed so that he can try to get back in shape for the ski season. He is eating fairly well now with only minor taste bud distortions and the usual difficulty with bread being harder to swallow than other foods. His salivary glands seem to be functioning normally, too. I credit the MuGard for how well he tolerated much of the treatment. He did have some pain when swallowing, but no mouth sores. The skin on his neck was not seriously burned either, probably because he slathered on the Medline Remedy Skin Repair Cream that his radiation oncologist told him to use every day. He did not lose any weight during treatment because the wonderful nurses at the radiation oncology office were adamant that he maintain his nutritional status and weighed him every day and pushed him when he needed their gentle but firm nagging (they could nag when mom couldn't). During weeks 6 & 7 and for 2 weeks post treatment, he used the PEG with Jevity because everything by mouth tasted like metal and he had no appetite for food along with discomfort when swallowing. But he is no longer using the PEG and is truly enjoying real food again. Everything (except chocolate) seems to taste good now although there are still many foods that he ate before dx that he has not yet tried post tx. The post-treatment problem he continues to have is with the buildup of mucus deep in his throat which causes him to cough a lot when he tries to sleep so he is a bit sleep-deprived. Sleeping has taken an odd pattern. He has insomnia until about 2am and reads until he manages to drift off to sleep but then begins to have uncontrollable coughing episodes every hour or two until about 6am when he finally falls into a deep exhausted sleep from which he does not awake until about noon. He does not nap during the day and rarely coughs while he is awake. He does go for long walks (several miles) to exercise. Hopefully, this 'coughing while trying to sleep' problem will resolve over time. He seems to have had an easier go of it than many who post on here. As a mom/caregiver, I am very grateful that, so far, he has been spared some of the extreme misery that many have had to suffer. My heartfelt sympathy and admiration is with those who have experienced the worst of this terrible disease and confront it so bravely. The posters on this forum have been an inspiration and source of hope when I needed it most. Words are not adequate to express my gratitude for all of you who post your words of wisdom, experience, encouragement, and compassion here. I sincerely thank each and everyone of you. I plan to return to Alligator Point after my son's PET scan results and subsequent doctor visits are completed by the end of Oct. We have no way of knowing what the future holds, but the fact that so many survivors are still here and enjoying life is comforting for those of us who are new riders on 'the bus'. Thanks for caring, sharing, and asking.

katenorwood
Posts: 1818
Joined: May 2012

Dan,
How cool ! It sounds like you had a blast, and were actually surprised ! Love hearing fun times had by other warriors ! Again Happy 47th guy ! Katie

George_Baltimore's picture
George_Baltimore
Posts: 303
Joined: Jun 2009

For not saying you were going to have "boiled crabs" like they do in the south. I can't think of anything more disgusting. Oh, to be able to enjoy some Chesapeake Bay Blues, caught with just a chicken neck on a string and a net, sprinkled generously with Old Bay seasoning, washed down with a Natty Boh (sigh).

D Lewis's picture
D Lewis
Posts: 1523
Joined: Jan 2010

I like the 'chicken neck on a string' capture method. Reminds me of trolling for snapping turtles when I was a kid. Didn't eat them, though.

Deb

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

Definitely Old Bay..., I love that stuff.. It's great for Low Boils also.

I bet you even know the difference by looking at Blue Crabs, which are male and which are female.... just by their painted finger nails.

JG

Grandmax4's picture
Grandmax4
Posts: 583
Joined: Dec 2011

We spend Sunday with my son, daughter-in-law,and smallest Grandson at a big fun pumpkin patch~~~ tho it was cold, windy and lightly raining, we still had fun. There's barn after barn with things for the kids..slides from the haymound,animals, a whole barn of little goats,zip lines, little train..it's become a family tradition over the last nine years...is really fun when my Daughter's family gets to come too...they didn't this year, but, I, Hubs and my small Grandson is heading to Chicago to spend next weekend ..can't wait birthday party at Legoland!

hwt's picture
hwt
Posts: 1882
Joined: Jun 2012

Happy Birthday Dan! I was blessed with a new great-nephew yesterday (10/07) named Jacob.

D Lewis's picture
D Lewis
Posts: 1523
Joined: Jan 2010

May you have many many more celebrations like that one, surrounded by family and dear friends! I love life.

Deb

phrannie51's picture
phrannie51
Posts: 3669
Joined: Mar 2012

Sounds like a wonderful time was had by all. Here's to many MANY more birthday celebrations.

p

Crazymom's picture
Crazymom
Posts: 295
Joined: Nov 2011

YEA!...enjoy life...glad you are enjoying your birthday!

Ann

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

I am so glad to see you have had such a nice time on your birthday.

KareGiver
Posts: 290
Joined: Apr 2011

Life is good :)

luv4lacrosse's picture
luv4lacrosse
Posts: 1385
Joined: Jul 2010

Happy B day and you deserve to let loose. I bet it not only recharged the batteries, but having those who care the most about you spending their day with you must have been heartwarming.

Best

Mike

luv4lacrosse's picture
luv4lacrosse
Posts: 1385
Joined: Jul 2010

Happy B day and you deserve to let loose. I bet it not only recharged the batteries, but having those who care the most about you spending their day with you must have been heartwarming.

Best

Mike

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

I'm so happy you were able to enjoy your day! You definitely have much to celebrate, hoping for many many more!!!
Billie

Tim6003's picture
Tim6003
Posts: 1490
Joined: Nov 2011

John (skiffin) and Alligatorpoint ..small world. I spent many years in Tallahassee FL and many, many trips to both St. George and Alligator Point....very small world indeed...my mom now lives in Daytona Beach ... :)

Tim

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

Since you have been there and know your way, I'll look for your foot prints in the sand...

Foot Prints in the Sand

JG

alligatorpointer's picture
alligatorpointer
Posts: 131
Joined: Jul 2012

Thanks for starting this fun thread, Dan. Adding my best wishes that you enjoy at least another 47 happy birthday celebrations surrounded by loving family and friends. It has been delightful reading all the posts by everyone sharing the good times they had this past weekend. Yay for Tiki bars with beer and fishing with buddies and pumpkin patches with kids ... Yay for all of you with the determination to survive and embrace life in all its definitions of normal.

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