Oct 05, 2012 - 6:41 pm
Some of you may remember me, I started posting about 5 weeks ago. My sister in law Kelly was diagnosed with Uterine carcinomasarcoma 3c1. She was diagnosed in California and had a complete hyst. We were told that it was all the way thru the myometrium and was in one of 24 pelvic lymph nodes, also there were cells in the wash of the abdomen. Luckily Kelly was able to afford to come to NY for a second opinion at Sloan Kettering with Dr. Hyman.
Here is what we found out, this may help someone else. Kelly is 66, no children, perfect weight, no other health problems and works out regularly. Her first doctor recomended carbo taxol and no radiation, after meeting today with SK he is recommending that she join a clinical trial that uses ifosfamide and paclitaxel, this is GOG-0261. He explained to us that when his lab did the pathology they got a different results, they found that it was also in an ovary and in a second lymph node, this does not change the stage or the treatment. This trial is in phase 3 and she will get the ifosfamide and paclitaxel over a 3 day period every 3 weeks for 6 times, along with this she will take Mensa to protect her bladder. No radiation, because at this stage what would you radiate?
They will do CAT scan verses PET scans and after treatment if there is recurrence he said we start all over with a new biopsy, that we won't assume it is the same thing and treat it the same way until they know what it is.