Oct 05, 2012 - 2:57 pm
Hello friends! How have you all been? I have been doing really good. My ENT sent me to an Oncologist just because I am not the normal person they see with tongue cancer. I have never drank or smoked, I am not HPV positive, and I am 35 years old. He wanted him to be able to have it written down for studies. Oncologist then says he thinks because I am not a text book case even though I have NO cancer and it wasnt in the lymph nodes I should still have radiation and chemo to prevent it from coming back. I thought long and hard and decided I am not going to do that to my body when I am cancer free at the moment. His reasoning was I am not like the others and he cant say if it would or wouldn't come back.
I talked to the ENT and he also feels it is unnecessary. He said they will be doing scopes and regular check ups every 6 weeks on top of pet scans and my trips to the dentist every 4 mo. He feels I have enough people watching me to make sure they catch it if it was to come back and then treat as needed.They honestly think it was caused by to much trama to the tongue by a reoccuring sore and then biting my tongue in that spot over and over again for over a month. What are your thoughts? I don't see why someone would want you to put poison in your body and put someone through all that if you are okay. I know one thing I have learned through all this...ALWAYS GET A SECOND OPINION!!!
I have been praying for you all and in my thoughts daily!