Oct 05, 2012 - 10:16 am
My last radiation treatment is Monday, Oct. 8. You all have been so incredible in helping me through the fear, the pain, the lack of knowledge...on and on and on.
Now for yet another question. I met with my radiation oncologist for the last time and asked "what happens next?" In three months, I will have a PET scan and will see the radiation and chemo oncologists and the surgeon. The doc said that all three will monitor me.
First question...why all three?
Also, when I started treatment, the docs said they were going for the "cure." I asked him how will they know if I'm cured. He talked about being monitored for two years. Then he said some things I really didn't understand and I was not feeling good, so I didn't ask a lot of questions.
I do trust my doc, and although this doesn't matter in the scheme of things, I know other people will be asking me if "they got it."
The doc seemed to say that there might/will be things that happen down there, but they find that things down there "usually regress" and that they really keep an eye on things.
Instead of rambling, let me try to get to the bottom line...I thought after treatment that they would do the scans, the DREs, etc and would be able to say it's all gone. That doesn't seem to be the case.
Can anyone educate me on what happens next and what to expect? Also, is it this way with most cancers?
One thing I've learned from this experience is that some people are truly insensitive, inconsiderate, and nosy. I'm sure I have been that way at times in my life. People who ask these questions literally exhaust me and make me angry as well. They don't ask out of concern for me, but they want to be in the know and be able to gossip.
Anyway...I've told most people like that that I have colorectal cancer. Is the follow up to rectal cancer similar to the follow up for anal cancer?
Sorry the long post...any info on how things are monitored or how one is considered NED would be helpful. It seems strange to me that I have to wait three months and still might not know. Oh yeah...the doc said he figured my question was really if I will have to have a colostomy. Then he talked about all the monitoring and didn't mention it again.
Thank you for any help