Oct 05, 2012 - 7:44 am
I am deperate for some help. My husband is 74 and was first diagnosed with PCA 8 years ago. A year ago he was diagnosed with stage 4 with bone and soft tissue mets. His bone cancer is widespread throughout and he has a large tumor on his chest and coccyx in the soft tissue. He has been getting Lupron shots for 8 months. His PSA goes up and down was at 17 two weeks ago and was 8.9 last week. During this 8 months he has become increasingly disabled. He is incontinent of stool, can no longer walk or feed himself, and is so confused he does not know where he is or who he is talking to, and has lost 78 pounds. He had a CT scan last week which said his bone lesions had doubled in size and there were numerous new sites. This Monday he had a boen scan which said that the cancer showed only minimal growth and was moderately stable (the whole time he was on the scanning table he was tearing at his clothes and trying to climb down). He has never been given a Gleason score because an attempt to biopsy the cancer was unsuccessful. At this point he is totally bedfast, calls out all night long for help, even though he appears comfortably placed in bed and is warm and dry, and can not respond to even the most basic questions coherently. An MRI of the brain was done and I was told the results were negative for brain mets. His Oncologist claims he is 'making progress' with the Lupron and wants to continue it. He also claims that all the other symptoms are not cancer related and he can not help me with them. (As of March my husband was still doing light work around the home, reading, paying bills, shopping, and has had no other diseases diagnosed.) My primary care physician keeps referring me back to the Oncologist. I currently am caring for him at home, but it is extremely difficult because he is totally immobile, has an indwelling catheter, can not feed or clean himself, and is incontinent of stool. A month ago he had his last round of radiation to the pelvis, with the hope that it would relieve some nerve pressure and allow him to regain some use of his legs. It was not successful. I do not know what to do at this point. When I ask the Oncologist to give me some indication of what is happening, he just keeps saying "the PSA is pretty good". Any comments would be greatly appreciated!