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15th infusion

foxhd's picture
foxhd
Posts: 1856
Joined: Oct 2011

Wow! I never thought I would make it to get #1. Now up to 15! Well, I had that infusion today. Also got my latest scan results. 2 remaining node tumors are stable. 2 months in a row. They must be trying to grow but can't. Thumbs up. 2 bone mets appear bigger, but are probably all swollen and beat up from the radiation. Understandable. That is why my radiation oncologist doesn't want to see me for 2 weeks.... I was afraid of todays visit. Afraid there would be a reason to discontinue my infusions. But no. Thank you, thank you, thank you! Blood work is excellent. And Dr. was smiling and gave me a hug. I squeezed her hard. I really need her to know how I feel. She has saved my life. Every day is a gift. Thanks to her...... I am spent after todays appointment. So for all newer kidney cancer board members, if you ever think we "experienced" members don't have stress or don't freak out in our follow up care, think again. And for all on board who have become my dear friends, thank you. We do this together.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

You continue to impress and inspire all that follow your story, that is great news. Next time you are out and about, have a beer on me and have another for me, then just send me the bill.

Rock on poster boy,

Gary

BDS's picture
BDS
Posts: 90
Joined: Aug 2012

Congratulations, I am glad that all is well. Now go out and have a beer. - BDS

tacyarts
Posts: 73
Joined: Apr 2012

Nice job fox, keep up the strong fight. Have a few beers for me too.

tacyarts
Posts: 73
Joined: Apr 2012

Nice job fox, keep up the strong fight. Have a few beers for me too.

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

You continue to set the standard of excellence. God I'm glad you're here!

angec's picture
angec
Posts: 616
Joined: Mar 2012

I know you were worried a bit, but glad all went well. I seriously doubt they would say that the treatments weren't helping any time soon. You had so many spots before and now are down to 4 and 2 out of 4 are stable. The other two are broken and swollen. Heck, that makes it a GGGGRRREAT day! I want you to know that when our friends go in for checkups and scans it is like we are all there with you worrying and wondering. We are all in this together! Go have yourself two beers and send Gary the bill! ;)

I am alive
Posts: 214
Joined: Jul 2012

These are amazing times we live in! I always picture you on your cycle, wind blowing on your face, you wearing sunglasses, smiling, owning the road. Congrats, man.

pjune127's picture
pjune127
Posts: 127
Joined: Dec 2011

You know how I feel about you, brave warrior! You are my mentor and inspiration. With me and all these other wonderful people praying for you, you will not falter. I will breathe easier the rest of today, because you are getting well. And hopefully I am right behind you. Much love and admiration!

Paula XO

foxhd's picture
foxhd
Posts: 1856
Joined: Oct 2011

this is a more appropriate title... Paula, I'm gonna have an oreo(s). And I treated myself to a Fosters.. I think I'll camp in early tonight , watch tv, and rest...Forgot to mention, also got an infusion of zometa today. Thank you all.

Limelife50's picture
Limelife50
Posts: 409
Joined: Nov 2011

Enjoy chilling out for a while,not sure why you buy expensive beer when you could be enjoying alot of Miller Lites for alot less money oh well each to their own.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

I refer to "lites" as yellow fuzzy water, gimmee the darks! I also refer to myself as a "beer commonsewer" so keep that in mind. LOL

foxhd's picture
foxhd
Posts: 1856
Joined: Oct 2011

When asked why I generally drink cheap "lite" beer my response is that I really don't like beer. I just like to pee alot!......I guess the stress and "radiation fatigue" hit pretty good yesterday. I fell asleep at 6:30pm and slept till 6:30 this morning. Briefly woke up at 10 checked the "puter" and was back to sleep in minutes.

DMike's picture
DMike
Posts: 237
Joined: Nov 2011

Hi Fox,
I'm happy for you. Take the day off! Some Jimmy Buffett lyrics seem appropriate:

Take it all in it's as big as it seems
Count all your blessings
Remember your dreams.

And then there are the lyrics to Margaritaville! :)

--David

donna_lee's picture
donna_lee
Posts: 388
Joined: Feb 2009

When I see what you've been going thru-drugs with a "D" and radiation, it makes my Ct's look like a walk in the park. You must have a rod up your a.. to be able to stand up after all that. Or maybe it's the stout you pour in the top side.
Any way you cut it, you are one tough biker.
Besides the fact that you are having success, the other good news to all of us is that they are coming up with newer drugs that are effective.
How do you like being a guinea pig? The weekend is coming up. Hope it's a good one.
All best,
Donna

foxhd's picture
foxhd
Posts: 1856
Joined: Oct 2011

Who? me? That has come up before. But honestly when I was offered the chance to be part of the MDX trial, I felt more like I was given a heads up to the winning numbers to a lottery. I had a 1 in 3 chance of having the right combination. AND I WON! Now I just wonder how long this trip will last...I will have a good weekend and week to come. A bike night tomorrow, 200 mile ride planned for saturday. Weather permitting, a Volkswagen show sunday. Next week I intend to continue work on the rebuild of my 1970 VW camper. I don't want to even think about cancer next week! Maybe I'll munch on some rice cakes.

dl650a
Posts: 31
Joined: Feb 2012

So Fox,
Were you able to get out for a ride yesterday? You need to get out as much as possible with winter creeping up on the north country. Congrats on #15 and good riding!

Ed

foxhd's picture
foxhd
Posts: 1856
Joined: Oct 2011

Thanks Ed. Yes, some friends and I got our ride in. Beautiful weather with no rain! You cannot beat New England in the fall. It doesn't take long to get out of the cities and onto our scenic roads. There are no long rides planned the rest of the year but now I will enjoy travelling the back roads. As the leaves drop, visibility allows for nice peeks into our landscape and a chance to view horse ranches, farms, colonial homes and classic New England. Love it. I never put my bike away in the winter like some do. I can always get some rides in as long as the roads are clear.

Max Power's picture
Max Power
Posts: 60
Joined: Sep 2012

I once got addicted to tollhouse and Bintang.

foxhd's picture
foxhd
Posts: 1856
Joined: Oct 2011

It's pez for me. and pistachios, and ......

icemantoo's picture
icemantoo
Posts: 1455
Joined: Jan 2010

Fox,

No words can describe how insperational you are to those that have to really fight RCC, not just the surgery. While I may have a few years on you for survival, your road was much more difficult.

Icemantoo

foxhd's picture
foxhd
Posts: 1856
Joined: Oct 2011

Thanks Icemantoo. Survivors guilt or whatever, I think I've had it way too easy compared to others.

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Max,

Are you sure it wasn't Oreos and poontang? LOL

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