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Rapid weight gain post-treatment

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

Hey guys,
I just got back from seeing my chemo-therapist. Looks like we got it all. I'm almost a year post-treatment and I'm picking up weight FAST. Sounds good until you consider the fact that I'm not eating enough to put on THIS much weight (this rapidly, anyway). The doc says the treatments may have affected my thyroid glands; he's going to check my thyroid function after the holidays. Anyone else experience this?

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

Yes, I have gained weight...over three years out...

No, it's because I eat at the wrong times, and...well, umm at this point, food tastes so damn good.

Maybe, you have thyroid problems..., it's very common if you had rads. Many here have had to go on Synthroid or similar synthetic drugs, but it's usually easily treated and maintained.

Actually, your MD's should have been aware and ordered TSH and Free T4 blood labs when you have your routine blood draws post Tx.

My TSH levels were high for nearly three years, the last nine months or so, they have fallen back in to normal ranges.

Anyways, if it's thyroid related, they should be able to see it and come up with a plan fairly fast.

Best,
John

osmotar's picture
osmotar
Posts: 951
Joined: Jul 2011

I agree with John get your thyroid checked, I had an under active thyroid prior to any treatments, one of the things they kept an eye during treatments.

longtermsurvivor's picture
longtermsurvivor
Posts: 1758
Joined: Mar 2010

before I was even done with rads. It is true most gain weight when this happens. I lost weight. Go figure.

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

We are just bass ackwards people Pat....

JG

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

Ya think?! :)!I've known that I was wired up all wrong (especially north of the neck) for years!

phrannie51's picture
phrannie51
Posts: 3618
Joined: Mar 2012

so they'll be checking mine every few months. For sure get yours checked...a non-working thyroid is another gift from rads :).

p

CivilMatt's picture
CivilMatt
Posts: 2825
Joined: May 2012

Hi Denis,

I got a call today from my GP office today and they said my thyroid was low and that they wanted to recheck it in two weeks. Thyroid low, here I thought it was around my neck (it must have slipped down)?

Steady at 174 LBS

Best,

Matt

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

See what I mean? And you call Skiffin the comedian! Maybe I'll wear a choker to keep them from slipping! :)!

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Once I started gaining weight after treatment, it came back with a vengeance. Doc checked the thyroid levels,and let me know I needed to start medication. It's common - you'll see many folks here with thyroid issues post-treatment.

hwt's picture
hwt
Posts: 1832
Joined: Jun 2012

I asked my ONC about thyroid testing and she said she doesn't do it for a year following tx. Can't recall her reasoning.

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

Thanks for all of the feedback, guys. Extremely helpful as usual!

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

It takes awhile and progressively goes out, usually not recvoering once damaged. Very easy to have the test added....

Actually if you have any of your complete blood profile (as I have kept every one of mine, near 25 or so)... It might even have the test results on there.

TSH
Free T-4

JG

Paintslinger's picture
Paintslinger
Posts: 70
Joined: Jun 2012

What?!

Debi16043's picture
Debi16043
Posts: 37
Joined: Aug 2011

I gained 8 pounds in 2weeks and was so tired couldnt drag myself out of bed. My tsh was 7.5 and doctor put me on medicine. What was some out theres tsh number? Just wondering how high some of you had.

Skiffin16's picture
Skiffin16
Posts: 8057
Joined: Sep 2009

I think mine at the highest was nearly 7.4, but in reality, that's not extreme I think I remember a few people well over 10 on here. Which still may not be that high, relatively speaking, not sure.

It also depends on your Free T4 and how you are feeling.

In your case you were having some issues. For me it was just a little fatigue early evening.

I did try the synthroid, but I felt it was causing a few issues and they took me off.

As of the last few exams, the TSH has been right at 5..., and my Free T4 was always in range.

My MD's say that hormones are still relatively not down to a science and there is still a lot of unknowns. Numbers that may cause one person problems, doesn't in others.

JG

francma's picture
francma
Posts: 60
Joined: Jun 2011

Mine was 11.84
the range should be:
0.34 - 5.60

So diagnosis is hypothyroidism and taking levothyroid 75mcg. My rad onc. says (I think) 20% of patients get thyroid destroyed from radiation. So have to take meds rest of my life. These test results came up 5 months post treatment

dales2loud's picture
dales2loud
Posts: 45
Joined: Sep 2011

I lost weight for 5 months after treatment then it slowly started coming back. I've gained 25 pounds in 8 months and it needs to stop but I can taste food again and its sooo hard to stop eating.
I hope they find whats going on with your gain.

Dale

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