CSN Login
Members Online: 3

Hair loss on Oxiplatin/5fu

cheeks964's picture
cheeks964
Posts: 54
Joined: Nov 2011

Having chemo oxiplatin/5fu every other week.

Anyoen loose there hair, doc said yes after 4 treatments, chemo nurses said after 10 days. I had my first treatment Sept 18th, still have my hair and it was my second treatment today, Oct 2nd. I get he oxiplatin infusion for 2 hours and then i leave with the 5fu for two days and them bring the pump back.

Please advise on who lost and who didn't.

Trying to get an average here.

thanks
Carolyn
cheeks917@comcast.net

herdizziness's picture
herdizziness
Posts: 3389
Joined: Apr 2010

I had hair thinning, none that people notice on the Oxy and Xeloda. I think the 5fu is just hair thinning as well.
Other may have had different affects. That's just mine. Here's hoping you get to keep your hair!!!!
Winter Marie

abrub's picture
abrub
Posts: 1528
Joined: Mar 2010

I didn't lose the hair on my head, tho I lost most of my body hair. The hair on my head went from curly to straight, but remained thick. I lost most of my eyebrows and eyelashes, however.

abrub's picture
abrub
Posts: 1528
Joined: Mar 2010

double post

cheeks964's picture
cheeks964
Posts: 54
Joined: Nov 2011

Is folfox another form of oxiplatin? I had thinning the 5 fu when i did my first treatment in may I asked the doctor today and he said by the 4th treatment. And the nurse said by 10 to 14 days. I still have it. confused about the folfox. is it the same as oxiplatin/5fu?

please advise

abrub's picture
abrub
Posts: 1528
Joined: Mar 2010

Folfox is 5FU, Leucovorin, and Oxaliplatin. Fol = 5FU (Flouracil is the chemical name), F = Leucovorin (Folinic Acid), Ox = Oxaliplatin.

I started with a thick head of hair, and kept it throughout. Just lost from the eyebrows down.

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Ever since chemo, my eyelashes have grown very long until it looks more like the eyebrows on a cat. If I don't trim them occasionally they get so long and curly that they get in my eyes.

Hooley's picture
Hooley
Posts: 149
Joined: Aug 2012

I had 6 rounds. No hair loss only slight thinning

cheeks964's picture
cheeks964
Posts: 54
Joined: Nov 2011

was your hair thick to start

cheeks964's picture
cheeks964
Posts: 54
Joined: Nov 2011

How many treatments did you have? oxiplatin/5 fu every other weeK?

cheeks964's picture
cheeks964
Posts: 54
Joined: Nov 2011

How many treatments did you have? oxiplatin/5 fu every other weeK?

cheeks964's picture
cheeks964
Posts: 54
Joined: Nov 2011

How many treatments did you have? oxiplatin/5 fu every other weeK?

annalexandria's picture
annalexandria
Posts: 2183
Joined: Oct 2011

although I was on an every three weeks cycle, so maybe slightly different? But from what I've seen and read, this isn't one of the big hair loss chemos. Hugs~Ann Alexandria
PS I believe that FOLFOX is 5-fu, oxaliplatin and Leucovorin, so similar to what you are on. Leucovorin isn't a chemo drug and doesn't affect the hair issue, as far as I know.

Jaylo969
Posts: 826
Joined: Jan 2010

Just thinned as well as eyelahes & body hair.Hair did turn very dark & my Mom kept asking me if I had dyed it black. Color is back to normal now, more or less, but with much more grey.

Best wishes to you.

-Pat

Annabelle41415's picture
Annabelle41415
Posts: 4205
Joined: Feb 2009

Fortunately my hair only thinned, but it was thin before as I've got baby fine hair and thin hair. No one ever new I'd lost hair as no one could tell. Some loose more than others, but when you start out with thin hair and it thin's more your hair still can look normal. Good luck and hope you don't have much more than that.

Kim

janie1
Posts: 753
Joined: Apr 2011

Thinned a little.

Carolyn, you are really stressed. I am so sorry. Try to meditate or try reiki.....it is awesome in how it relaxes you.

taraHK
Posts: 1961
Joined: Aug 2003

I had thinning but did not loose my hair. I believe this is the most common experience for those on FOLFOX. It's the 5FU that causes the hair thinning. The oxaliplatin does not.

Good luck!

Tara

Momof2plusteentwins
Posts: 438
Joined: May 2012

I have had 6 of 12 treatments and haven't had any hair loss. We will see - 6 more awful treatments to go.
Sandy :)

thxmiker's picture
thxmiker
Posts: 1201
Joined: Oct 2010

My hair thinned a little during chemo. It started fairly early but did not get much worse after the third treatment. It does come back during recovery.

The worse symptoms are the loss of touch and eye sight. My sense of touch diminished quite a bit. I am exceptionally slow on a ladder. My sight diminshed a bit also. I have reading glasses and lost some distance also.

Best Always, mike

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

When on Oxi and 5fu the only hair loss I had was when I cut my long hair to a "respectable" length. I'd planned on running for Congress in my District and figured I needed to get back to looking like a business man instead of a renegade biker. When they put me on Ironitecan in February of 2011 my hair did start falling out in patches. When it got to the unsightly stage, I shaved it all off. After moving to Utah, I started a new drano cocktail and the hair started to come back, but it only grows put to a certain length and stops. I haven't had a haircut in over a year now and it's still short enough that I could pass military inspection.

joemetz's picture
joemetz
Posts: 493
Joined: Nov 2011

Greeting Carolyn

sadly, you'll learn that every question you ask a doctor and then a nurse and then online anywhere... each have different answers. The common answer to most questions: "well, every case is different and everyone reacts to the meds differently as everyone's cancer is different"

If I heard that once I've heard it a 100 times.
but, as for hair... you might lose it, it might thin out, or you might not lose it.
(you catching on?)

it stinks because its such a scary journey and we each want solid answers... and what I've learned is to reduce your expectations... so you're not disappointed.

not sure if this is the right way to attack this stuff... but it has worked for me.
Probably some profession psychologist would say that's negative thinking... when I am truly a Glass Is Half Full type of guy... on the outside. But, internally, it seems like I prepare myself for the bad news, and if the bad news doesn't happen...I feel pretty damn good about things. Well, at least that's how I handled things during the main part of my first rounds of treatments (Dec. 2011 through July 2012)

as for your question on Oxy and 5fu being referenced as FolFox.
I hope I answer this correctly, and if i do not... hopefully someone will chime in and correct me. I had FolFox 6 for 24 treatments. the drugs included Oxiliplatin, 5fu, Leucovorin, Fluorouracil, and then Erbitux was added (but that drug isn't part of the FolFox combination.

so, those two drugs that you are on, are part of the FolFox "Cocktail" of drugs.
google Folfox and you'll find a boat load of stuff. Its been around for a really long time, and they keep adding or improving it.

the Oxiliplatin has many side effects such as neuropathy and the 5fu has its share of side effects... again, EVERY side effect is different for EVERY patient. It's crazy, but its true. Weight loss is obvious one of them... as diarrhea and nausea are constant with all these chemo meds.

the main thing.... Keep you head up and keep your focus.
your objective is to take these meds, and worry about GETTING better!
Laugh about your hair when or if you begin to lose it. try laughing. It helps.
try and be as positive and happy as you can... it makes this battle a lot easier.

i wish you the best in your continued battle.
you'll find a lot of info here... just remember, that each experience is different for each person.

cheers!

Joe

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

...oops, double post sorry. No delete button?

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

Lost mine in patches on the Irenotecan/avastin, no 5fu. So just shaved it all off. Was about 4th round.....Nothing like the nueropathy the 5fu caused prev treatments.

YoVita's picture
YoVita
Posts: 541
Joined: Mar 2010

except my eyebrows. JoeMetz is right - everybody is different. Remember, if you lose your hair it will grow back - it's a temporary loss. I swear mine grew back thicker! Good luck to you.

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

i did 12 tx of folfox6 jan thru july 2011. i did not loose any more hair than i did before chemo. now i am on folfiri & i have lost some hair. that is the only body hair i have lost. it has stabilized but it came out in handfulls each day for 2 wks. i did get a wig to wear if i want too when i go out. most people on folfox do not loose enough hair to need a wig. i know for we females hair is important but i look at it that i am trying to save my life & i am thankful i can be treated. so hair lost is just part of the ball game & i love my wig! hang in there!!!
hugs
judy

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

I have had 5 Folfox treatments...I have lost about half of my hair to thinning. Thankfully I had very thick long hair. I trimmed it up a week ago... Cut of about 8 inches... It looks better shorter with the thinning. My hair is still about an inch below my shoulders so it isn't super short. The shorter cut also has helped slow down the hair loss...it doesn't get as tangled and is easier to brush. Other people don't really notice the thinning until I point it out.

Alex

janderson1964
Posts: 1531
Joined: Oct 2011

I never lost any hair from oxaliplatin only from irrinotecan.

marbleotis's picture
marbleotis
Posts: 475
Joined: Mar 2012

Hair started thinning. Finished 12 treatments on Aug 23,2012. It has already started to thicken again.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network