Oct 01, 2012 - 9:16 pm
I will be going in on Wednesday Oct 3rd to get my 1st CT scan. Yes I have said before in other blogs that Im dealing with Scanxiety that we all talk about, I was blessed to get thru this battle in pretty good shape. As some of you know since my wife posted this information way back when I started treatment in a blog that I use a wheelchair from Polio although I use crutches to get around the house, garage, to get in an out of Van etc. I had to decide on the PEG tube or a Port and how it might effect my abilities to use crutches and wheelchair. Well I chose not to use a PEG or port, the port had me concerned because I knew without it I would be having my arms poked many times, and since they are what I use to get around that was a big concern, the PEG to was a concern because I did not want to affect the treatment plan with malnutrition issues. Well here I am 8 weeks out and as you likely know I made it without both items, I lost 35 lbs and needless to say a few arm bruses but that was ok. This is not to say one way or the other about the PEG or Port, its simply FYI of my decision based on my circumstances. The treatments were tough, RADS were crazy tough, and we all know how I thought NO WAY on the MASK but again made it. I guess the excessive rambling is just to say the fight was tough and I was blessed to get thru it and yes the fight was worth it, but now I just feel I need to hear those 3 beautiful letters NED, not that I deserve it, I just want it. I have said when I was 1st dx it was tough to hear but after the shock and with help from this site I knew it was time to fight and get rid of this cancer, and thats exactly what I am praying we did. I know from both this site and personal experience that there are no guarantees with cancer and sadly a few NEDS have turned south on folks. So I just want to hear NED for now and know that I won the fight and can now relax (until the next CT/PET LOL) because in all honesty Im not sure I could fight this battle again. So thanks to all of you that have supported Diane and I thru the last 6 months and if I may request your prayers and support for a good outcome it will be appreciated.