CSN Login
Members Online: 6

radiation

foxhd's picture
foxhd
Posts: 1901
Joined: Oct 2011

Well,I finished my radiation series today. 5 sessions on a rib, and 3 steriotactic sessions on my t6 vertebrae. I felt nothing from my rib. But my spine ached quite a bit for a day or two after each session. Percs have been very helpful. Doc told me that radiation fatigue would hit me big time. I just have felt a little lazy. I expected him to spend time with me today after the session but I was told that he would see me in 2 weeks. WTF?. Oh well, whats he gonna tell me?...anywho, I had my regular scan this past friday, and I have my infusion and I get my scan results weds. I've gotta admit it, I am anxious again. I just may need to go buy some beer. And what is that oregano product that I keep hearing about?

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

Hey Fox,

Wish you were a little closer; John and I would take you out for that beer (or beers) and/or give you full access to his medicine cabinet, which includes Marinol(synthetic THC), the closest thing we have to that oregano product.

Know you've got to be anxious, but just come here when you need to vent, because--as you know--ELF! We've missed you:)!

Max Power's picture
Max Power
Posts: 60
Joined: Sep 2012

May the scan be with you.

I'm sure it'll be fine.

How many days after the scan do you get the results?

angec's picture
angec
Posts: 621
Joined: Mar 2012

Don't worry Fox.. you will do fine. The way i see it, you have come through a lot and are stronger than this disease. I know the waiting game is the worst. I don't know how far Alice lives from you, but i bet that bike can take you there! ;) Praying for you. Sending out one gigantic hug to everyone! This includes you TW. We all certainly need it! ELF!

pjune127's picture
pjune127
Posts: 127
Joined: Dec 2011

I know the waiting game.... I'm four weeks off meds and I dread the next set of scans. Fox, you know my prayers are with you. Deep breaths, my friend. Beer and oregano products sound like a great combination. I'll see what I can do for you. LOL. I'm guessing Marinol is like using edibles...inhaling is a different high. You go for it! I'll send you a bag of Oreos.

Love you!

Paula

foxhd's picture
foxhd
Posts: 1901
Joined: Oct 2011

Max, I usually have my scan the friday before my infusion on weds. Thats when I get my results. Since I had missed a treatment back in the spring, I'm always afraid some reason will come up and I will be discontinued from the MDX. Such as having my blood work revealing the need for Paula's oreos! (I don't know if it is banned. I hate to ask, as that would be reason enough to check for it.) Not a chance I am willing to take yet. And somehow marinol just doesn't seem to go with sitting in my room with a blacklight and In-a-gotta-di-vida blarring. However, I will admit to having bought several bags of PEZ. As for beer, this is the first year in about 10 that I didn't make my own. I usually make about 10 gallons in the spring. So now,I have to flush my remaining kidney with assist from Anhueser Bush. Bass Ale and Dos Equis are my favorites but thats for taste not making waste.

And one of the best things about Harleys is that I CAN get to Alice and Johns on my way to Paulas for those Oreos!

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

How I envy you Fox!

BDS's picture
BDS
Posts: 95
Joined: Aug 2012

Fox best of luck with your scan results. I will have my first CT/MRI scans in four weeks. So the waiting is going to drive me nuts. Are you allowed to alcohol drink while you are in treatment with MDX (BMS-936558)? If you can then you are lucky. I am taking Votrient (Panzopanib) and they do not want me drinking ANY alcohol.

PS - How many Mets did you originally have and how many do you have now? Just curious, in case I can get into a MDX (BMS-936558) clinical trail myself.

alice124's picture
alice124
Posts: 860
Joined: Mar 2012

BDS,

John's alcohol intake has gone down substantially by choice since being diagnosed, but he still has a beer/glass of wine a few times a week. He has been given no restriction regarding alcohol, and he's on the MDX/Votrient trial.

But it may depend on liver function. So far so good in John's case.

foxhd's picture
foxhd
Posts: 1901
Joined: Oct 2011

As far as alcohol goes, I don't think I was told not to drink. I'm only a beer drinker. My liver function tests are always good, so that is not an issue. Before I qualified for treatment my Doctor asked me how much beer I drank. I told her sometimes as many as 8. She looked at me like, "How the hell can you walk?" I had to explain that I was a guy.( She didn't know I was a biker or golfer yet). She is a more proper lady who probably sips 1 glass of wine over several hours and gets buzzed. The other issue is that if I am in the last stage of my life, I have no need to save anything. And I will do whatever I want. Sort of an unofficial bucket list. (with my wifes blessing) I drink beer and eat pizza as much as I want. Like I've said many times, "If I had a 3 piece suit, I would probably wear it to mow the lawn." I even wear dress shirts to work on the car!

As far as mets go, I've had somewhere in the 20ish number since last October. Something like a dozen in the lungs...and I was jogging 3 miles every other day...at least 4 in the liver, 4or so in the bones, a half dozen in the nodes, and my kidney. Maybe more.

I guess now you know why I have become the poster boy for MDX-1106. I hope that doesn't change tomorrow when I go for my infusion and get my latest scan results. It is that repeated quote about sliding into heaven full speed in a cloud of dust burning up at the end. And not safely walking in after a shower and clean shave. It's all about the ride!

Texas_wedge's picture
Texas_wedge
Posts: 2807
Joined: Nov 2011

My Grandmother had a saying: "Better to wear out than rust out!"

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Following my nephrectomy when friends would say "Its good to see you.", I would reply "Its better to be seen than viewed.", but you all know I'm a bit morbid at times.

foxhd's picture
foxhd
Posts: 1901
Joined: Oct 2011

Gary, I use that exact line every day.

angec's picture
angec
Posts: 621
Joined: Mar 2012

I guess it brings new meaning to "it is good to SEE you?" At least it does for me. LOL Needed a laugh today..

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network