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Called in sooner for dx update

katenorwood
Posts: 1827
Joined: May 2012

Hey everyone,
Wasn't suppose to go in til Nov., for PET scan....got a call from Masonic this a.m. and wanting me in for a CT guided biopsy of my lung. I was more than a bit taken aback. The tumor board had finally met, and sorted through all of my past records, scans and re-did the pathology. Seems they want to reclassify my staging...and believe I have mets in the lungs and bone. I should be a mess....but am very calm. I made sure that the specialist I see on Thursday is a specialist in adenoid cystic carcinoma. Was reassurred he is. What a rollercoaster ride this year has been. I told the gal that called, I want to discuss options before they set up any procedure. Will update as I find out more. Hells bells....think you may be in the clear and whap ! Thinking of you all ! katie

hwt's picture
hwt
Posts: 1935
Joined: Jun 2012

You've certainly had more than your share to deal with. Your strong logical approach will serve you well. I will keep you in my prayers that it is not mets.

Candi

katenorwood
Posts: 1827
Joined: May 2012

Candi,
I have no other choice than to be proactive. I am positive I am with the right group of doctors now.....each dx is unique in my eyes. Little anxious on mets, but what do you do ? Would explain my body kicking my butt the last few months. Thank you for your prayers (everyone) ! Katie

ditto1
Posts: 630
Joined: Mar 2012

and hope you hold on to the calm as long as you can. I know the axiety is there, but you are doing the right thing by letting them know you want to be in charge on possible procedures and discuss them accordingly. Praying all will be well. Katie you are a strong lady and we have enjoyed knowing you are out there and the many responses you have helped me with. I will be praying for you.

KareGiver
Posts: 290
Joined: Apr 2011

Sending thoughts and prayers...

katenorwood
Posts: 1827
Joined: May 2012

Thank you ! katie

katenorwood
Posts: 1827
Joined: May 2012

Ditto1,
I hope I can keep a level head...and I promised myself at the start of this I would stay well informed and make the best possible choices for myself. The strenghth of the group is helping me get through some impossible days. Katie

CivilMatt's picture
CivilMatt
Posts: 2955
Joined: May 2012

Katie,
oops

CivilMatt's picture
CivilMatt
Posts: 2955
Joined: May 2012

Katie,

As always, hoping for the best possible outcome for you.

Fellow warrior,

Matt

katenorwood
Posts: 1827
Joined: May 2012

Matt,
Thank you. And I will try my best. Katie

phrannie51's picture
phrannie51
Posts: 3725
Joined: Mar 2012

How did they go from a colonscopy to this? Is this taking ALL you history, ALL your old pathology, and records, and coming to a conclusion? I'm so sorry you are going thru this...especially after the scope just the other day. I'm thinking ok...lets get this biopsy done, it ain't cancer till somebody who KNOWS it is, says so....

Sending a host of prayers and positive thoughts to you Katie....this ain't fair!!

p

katenorwood
Posts: 1827
Joined: May 2012

Phrannie,
I guess I knew I was ducking under the radar for too long. I did not have a team in place a yr. ago that knew anything about ACC. Heck, until 5 mo's ago I knew squat about this dx. I have had this in me for a very long time. I now have doctors with knowledge on how this dx travels in the body and what to look for. I also have educated myself...not that this helps relieve the anxiety. I was promised by the medical oncologist that if my body is able to, they will aggressively attack this demon. So here goes girl. I've seen you all fight and fight with all you have....I will do no less. Katie

ToBeGolden's picture
ToBeGolden
Posts: 697
Joined: Aug 2010

I hope your team comes up with a good treatment plan for you. If you are anything like me, your emotions will tend to be all over the place. However, I hope you can find some really good times in the days ahead. All of us cancer patients, and our caregivers, must attempt to hold onto the good times and simply plow thru the bad ones. Rick.

katenorwood
Posts: 1827
Joined: May 2012

Rick,
I have no regrets on how I've been enjoying life ! I am positive I have a good team in place now. And yes plan on plowing through this full steam ahead. Katie

Grandmax4's picture
Grandmax4
Posts: 585
Joined: Dec 2011

and hoping for the best. You can do this !

katenorwood
Posts: 1827
Joined: May 2012

Thank you ! I wish this c thing would just poof and disappear...but no worries today, I'm gonna hit some sales and buy those presents for my grandbabies. Katie

Jan Trinks's picture
Jan Trinks
Posts: 467
Joined: Apr 2009

Kate:

Glad you're not a mess! Hang in there! You're in my prayers!

Jan (Basketcase)

katenorwood
Posts: 1827
Joined: May 2012

Jan,
It's weird...the calm before the storm ? Or maybe just the knowledge I have a team of specialists in my corner that treat me as an individual. Katie

NoDuck
Posts: 134
Joined: May 2012

Prayers coming your way. You have been there for so many of us. Hugs from your CSN Family.

Deb

katenorwood
Posts: 1827
Joined: May 2012

Deb,
Thank you....we are a family of fighters, I mean my own. Irish, and outspoken. But I feel with you all our CSN family, we can be true to one another, shoot from the hip with a love and concern for a fellow warrior ? Maybe I'd be a little more crazed without you. Katie

Hard12Find
Posts: 207
Joined: Sep 2012

I am sorry you are facing these possibilities, once is more than enough for anyone to face that tough news. We are all here for you and praying for a positive outcome.
Jim

Billie67's picture
Billie67
Posts: 834
Joined: Jul 2012

Is everything and you have an amazing one. It also sounds like you have a great medical team to help you kick the tar out of this monster. Know you are in my prayers and thoughts.
Be strong!
Billie

VivianLee5689's picture
VivianLee5689
Posts: 546
Joined: Aug 2012

I am praying for a good outcome.

Tonsil Dad's picture
Tonsil Dad
Posts: 488
Joined: Dec 2011

Sorry to hear this news, I will be sending prayers for
a positive ...or is it a negative...outcome.
Be strong and have faith.

God bless
Tonsil dad,

Dan.

katenorwood
Posts: 1827
Joined: May 2012

Jim,
but possibilities sound soooo good to me after a yr., of we don't know....no other treatments to try other than to keep cutting on you. Thank you for your kind words and prayers ! One day at a time...and not giving in to the big picture. Katie

This link is crazy long....sorry everyone...I intend on checking the super feed link so that I have question for the doctors. You all are so appreciated !

nick770's picture
nick770
Posts: 195
Joined: May 2012

Hang in there , your attitude is Amazing. You will get thru this , best of everything to you

Crazymom's picture
Crazymom
Posts: 295
Joined: Nov 2011

You have been through a difficult year. Hang in there. I am so sorry you are going through this craziness, but it sounds to me like they are not sure what is going on. Praying for you to have clarity and health. Ann

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