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Update on Bill

deb824
Posts: 21
Joined: May 2012

Wow I haven't been here in weeks and the first post I see is from Steved. I am so happy to hear that your surgery went well and you are back on the boards. Good luck with your recovery. I posted here about my boyfriend Bill who has stage 2 rectal cancer and had successful surgery on Feb 16, 2012. He then had a reversal of his colostomy on June 9th and ended up back in the hospital with an obstruction. For those of you who don't remember during his surgery to unblock the obstruction his colon ruptured in 3 places. He was septic and in the ICU for about a month , on a ventilator. He has since that time which was June 29th, had three more surgeries. He is doing well, although after 3 months he is still in the hospital. He has had one complication after another. They moved him to his own room after they weaned him off the ventilator. He is in isolation because he has Mersa virus. His has another colostomy and an intestinal fistula. He had 2 other fistulas but they were able to stable those. He also has a hernia for which they put a mesh screen in during one of his surgeries. However, it disintigrated due to the intestinal leak. So bottom line is......He has now been in the hospital for 3 months. He can only have liquids because every thing he eats leaks out thru the fistual. His wound is closing very very slowly. The intestinal fluids leak on him and causes a horrible red rash on his skin. He has a jp pump. He gets an injection for pain every 4 hours and TPN and fat emulsion every night thru his pic line. They are trying to get him home but they need the wound to be small enough so they can put a colostomy bag over it. Apparently he is looking at 2 more surgeries. One to close the fistula (don't know when)And then a colostomy reversal which probably won't be done for at least a year. So, it has been and still is a pretty rough road. ALthough much less stressful than when we didn't know if he would survive the sepsis. Also, we have not even had time to think about the fact that he has cancer. I can't go there and worry about that, I just take it one day at a time. The first 2 months I was going to the hospital every day and twice a day on the weekends. Since he has stabilized I have cut back on my visits. I have to take care of myself as well!!!I will read the boards to catch up and see how everyone else is getting along. Thanks for listening!!
Deb

janie1
Posts: 753
Joined: Apr 2011

I'm so sorry Deb. Yes, I remember you posting a while back and were going through so much.
Thank you for coming back and updating us. It sure is a roller coaster ride.
If one is going to have cancer and have all these complications, thankfully Bill has Stage 2. He will get back on track and you will get through it. Sorry it has been so, so stressful. I am ok with losing months or a couple of years, as long as there is light at the end of the tunnel. This disease is h@ll, and we go thru so much.
You are absolutely doing the right thing by giving yourself some of a break. Take care of yourself. You don't need to get sick yourself.
I'm sure Bill is over-the-top grateful for what you have done to support him.
Better days ahead!!!!!

(hugs)

danker
Posts: 730
Joined: Apr 2012

When I had my iliostomy reversal I developed a fistula. So 7 more weeks on the bag.
However my fistula healded itself from the inside out!!! How lucky was that? Colonoscopy year later showed NED.

k44454445's picture
k44454445
Posts: 494
Joined: Jul 2012

what strength & fighting spirit you both have! be sure you take care of yourself! prayers for both of you.
hugs
judy

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